Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. K

    HELLO MY NAME IS:

    ktsmom = Dana, 42, Piedmont America, (any Okies on this site will get that reference), mom to Katy, age 3 and recently diagnosed with CF, and Kyra, 6, no CF and no results back yet from her carrier test<br> <br> We keep a fish tank with various rates of success and we have two cats who live...
  2. K

    Cf & gut troubles

    Absolutely it is possible to start out having more tummy problems than lung problems and I wish that more doctors on the front lines (our family practitioners and pediatricians) recognized that.<br> <br> This is my own personal crusade lately as I'm still feeling so guilty that my DD, who only...
  3. K

    Cf & gut troubles

    Absolutely it is possible to start out having more tummy problems than lung problems and I wish that more doctors on the front lines (our family practitioners and pediatricians) recognized that.<br> <br> This is my own personal crusade lately as I'm still feeling so guilty that my DD, who only...
  4. K

    Cf & gut troubles

    Absolutely it is possible to start out having more tummy problems than lung problems and I wish that more doctors on the front lines (our family practitioners and pediatricians) recognized that.<br> <br> This is my own personal crusade lately as I'm still feeling so guilty that my DD, who only...
  5. K

    Basic question about stools

    And also our DD never had any chest issues either; which is why I guess it never occurred to the doc to test her for cf.  Only when he finally referred us to a ped Gastroenterologist were we told to screen for cf to rule it out.<br> <br> Also the stools were very smelly.
  6. K

    Basic question about stools

    And also our DD never had any chest issues either; which is why I guess it never occurred to the doc to test her for cf.  Only when he finally referred us to a ped Gastroenterologist were we told to screen for cf to rule it out.<br> <br> Also the stools were very smelly.
  7. K

    Basic question about stools

    And also our DD never had any chest issues either; which is why I guess it never occurred to the doc to test her for cf.  Only when he finally referred us to a ped Gastroenterologist were we told to screen for cf to rule it out.<br> <br> Also the stools were very smelly.
  8. K

    Basic question about stools

    I'll try to be brief but this is a hot topic with me because I pleaded with my doc for months about my daughter's stools and why they were like they were.<br> <br> Graphic descriptions so be warned: soft, not really formed, and orange-colored grease stains gravitating towards the edges of the...
  9. K

    Basic question about stools

    I'll try to be brief but this is a hot topic with me because I pleaded with my doc for months about my daughter's stools and why they were like they were.<br> <br> Graphic descriptions so be warned: soft, not really formed, and orange-colored grease stains gravitating towards the edges of the...
  10. K

    Basic question about stools

    I'll try to be brief but this is a hot topic with me because I pleaded with my doc for months about my daughter's stools and why they were like they were.<br> <br> Graphic descriptions so be warned: soft, not really formed, and orange-colored grease stains gravitating towards the edges of the...
  11. K

    thelizardqueen

    Have a very Happy Birthday!!<br> <br> And read this part tomorrow, since it has nothing to do with you celebrating your special day.<br> <br> I was reading an old thread about Double Delta F508 which it turns out my daughter has, and you mentioned a classification or typing system of the...
  12. K

    thelizardqueen

    Have a very Happy Birthday!!<br> <br> And read this part tomorrow, since it has nothing to do with you celebrating your special day.<br> <br> I was reading an old thread about Double Delta F508 which it turns out my daughter has, and you mentioned a classification or typing system of the...
  13. K

    thelizardqueen

    Have a very Happy Birthday!!<br> <br> And read this part tomorrow, since it has nothing to do with you celebrating your special day.<br> <br> I was reading an old thread about Double Delta F508 which it turns out my daughter has, and you mentioned a classification or typing system of the...
  14. K

    3 month old with cf

    For what it is worth, here is what I am doing (less than a month into my 3 year old's diagnosis):<br> Take one day at a time.<br> Read this message board to draw inspiration from families living with this every day and to learn about the things you can expect in the future (both good and...
  15. K

    Vest pros and cons

    Yes Alyssa, he did tell me her number and it was 37.  I have the same concern you do except she does not exhibit any symptoms at all and never has (she is 6).  <br> <br> She has no GI symptoms and she is actually overweight; she has had just a few ear and sinus infections in her life.  However...
  16. K

    OT -- the color of poop

    I'll jump in here only because ever since dd started presenting with her GI problems we are all about poop in my family.  When I was trying to get her diagnosed I did all kinds of web searches about her poop symptoms and accidently stumbled upon pictures of poop more than once.  Pictures.  Of...
  17. K

    Vest pros and cons

    My 3-year-old was diagnosed 18 days ago because of GI problems.  Her first throat swab cultured PA (quite a shock, as she had not exhibited any signs of respiratory symptoms).  We are on Cipro and Zithromax, inhaled Tobi, Pulmozyne, Ursodiol (blood work revealed high liver enzyme count), Creon...
Top