Cystic Fibrosis Forum (EXP)

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  1. A

    Newly diagnosed...for the 2nd time in 28yrs

    Veneicia, Welcome to the site! Yes, that is a pretty high borderline number - a lot of people with CF have far lower numbers and I'd have to say it would be very strange if they didn't find any CF genes. Hope they get it straightened out soon and you can start treating with a doctor who...
  2. A

    Newly diagnosed...for the 2nd time in 28yrs

    Veneicia, Welcome to the site! Yes, that is a pretty high borderline number - a lot of people with CF have far lower numbers and I'd have to say it would be very strange if they didn't find any CF genes. Hope they get it straightened out soon and you can start treating with a doctor who...
  3. A

    Newly diagnosed...for the 2nd time in 28yrs

    Veneicia, Welcome to the site! Yes, that is a pretty high borderline number - a lot of people with CF have far lower numbers and I'd have to say it would be very strange if they didn't find any CF genes. Hope they get it straightened out soon and you can start treating with a doctor who...
  4. A

    Newly diagnosed...for the 2nd time in 28yrs

    Veneicia, Welcome to the site! Yes, that is a pretty high borderline number - a lot of people with CF have far lower numbers and I'd have to say it would be very strange if they didn't find any CF genes. Hope they get it straightened out soon and you can start treating with a doctor who...
  5. A

    Newly diagnosed...for the 2nd time in 28yrs

    Veneicia, Welcome to the site! Yes, that is a pretty high borderline number - a lot of people with CF have far lower numbers and I'd have to say it would be very strange if they didn't find any CF genes. Hope they get it straightened out soon and you can start treating with a doctor who...
  6. A

    My 2yo might have CF. A few questions-RESULTS IN! UPDATED! 1-16-08

    The fact that her numbers "went up" probably has more to do with the facility/lab and or collection methods etc than it does with any real "changes" in her body - so don't worry that it indicates she is "getting worse" in any way - I'm sure it was just a difference in the facility. Be sure to...
  7. A

    My 2yo might have CF. A few questions-RESULTS IN! UPDATED! 1-16-08

    The fact that her numbers "went up" probably has more to do with the facility/lab and or collection methods etc than it does with any real "changes" in her body - so don't worry that it indicates she is "getting worse" in any way - I'm sure it was just a difference in the facility. Be sure to...
  8. A

    My 2yo might have CF. A few questions-RESULTS IN! UPDATED! 1-16-08

    The fact that her numbers "went up" probably has more to do with the facility/lab and or collection methods etc than it does with any real "changes" in her body - so don't worry that it indicates she is "getting worse" in any way - I'm sure it was just a difference in the facility. Be sure to...
  9. A

    My 2yo might have CF. A few questions-RESULTS IN! UPDATED! 1-16-08

    The fact that her numbers "went up" probably has more to do with the facility/lab and or collection methods etc than it does with any real "changes" in her body - so don't worry that it indicates she is "getting worse" in any way - I'm sure it was just a difference in the facility. Be sure to...
  10. A

    My 2yo might have CF. A few questions-RESULTS IN! UPDATED! 1-16-08

    The fact that her numbers "went up" probably has more to do with the facility/lab and or collection methods etc than it does with any real "changes" in her body - so don't worry that it indicates she is "getting worse" in any way - I'm sure it was just a difference in the facility. Be sure to...
  11. A

    UK: Organs to be taken without consent

    I am an organ donor. The idea of a default opt in is fine with me, but I would be very concerned about the conflict of interest it seems to put the doctors in -- they can say it wouldn't happen all they want but I don't believe that when the very same doctors at the very same locations are...
  12. A

    UK: Organs to be taken without consent

    I am an organ donor. The idea of a default opt in is fine with me, but I would be very concerned about the conflict of interest it seems to put the doctors in -- they can say it wouldn't happen all they want but I don't believe that when the very same doctors at the very same locations are...
  13. A

    UK: Organs to be taken without consent

    I am an organ donor. The idea of a default opt in is fine with me, but I would be very concerned about the conflict of interest it seems to put the doctors in -- they can say it wouldn't happen all they want but I don't believe that when the very same doctors at the very same locations are...
  14. A

    UK: Organs to be taken without consent

    I am an organ donor. The idea of a default opt in is fine with me, but I would be very concerned about the conflict of interest it seems to put the doctors in -- they can say it wouldn't happen all they want but I don't believe that when the very same doctors at the very same locations are...
  15. A

    UK: Organs to be taken without consent

    I am an organ donor. The idea of a default opt in is fine with me, but I would be very concerned about the conflict of interest it seems to put the doctors in -- they can say it wouldn't happen all they want but I don't believe that when the very same doctors at the very same locations are...
  16. A

    New Mom- help understanding dx of CF

    Be very thankful that someone is pursuing the genetic testing! My kids have a normal sweat test numbers but genetic testing shows they have two very common CF genes. No sweat testing is not always the best way to diagnose. My daughter was misdiagnosed for 8 years because nobody suggested genetic...
  17. A

    New Mom- help understanding dx of CF

    Be very thankful that someone is pursuing the genetic testing! My kids have a normal sweat test numbers but genetic testing shows they have two very common CF genes. No sweat testing is not always the best way to diagnose. My daughter was misdiagnosed for 8 years because nobody suggested genetic...
  18. A

    New Mom- help understanding dx of CF

    Be very thankful that someone is pursuing the genetic testing! My kids have a normal sweat test numbers but genetic testing shows they have two very common CF genes. No sweat testing is not always the best way to diagnose. My daughter was misdiagnosed for 8 years because nobody suggested genetic...
  19. A

    New Mom- help understanding dx of CF

    Be very thankful that someone is pursuing the genetic testing! My kids have a normal sweat test numbers but genetic testing shows they have two very common CF genes. No sweat testing is not always the best way to diagnose. My daughter was misdiagnosed for 8 years because nobody suggested genetic...
  20. A

    New Mom- help understanding dx of CF

    Be very thankful that someone is pursuing the genetic testing! My kids have a normal sweat test numbers but genetic testing shows they have two very common CF genes. No sweat testing is not always the best way to diagnose. My daughter was misdiagnosed for 8 years because nobody suggested genetic...
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