Cystic Fibrosis Forum (EXP)

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  1. P

    Medical Journal's

    I have both non sense mutations and they are both G542X. Ive told my doc that Im very interested in the PTC 124 project so he said that when I see him in December he might know more stuff about it. One of the doc are going to a cf meeting to talk about upcoming drugs so hopefully they would...
  2. P

    Medical Journal's

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Pipeline/#PROTEIN_ASSIST/REPAIR">about ptc 124</a> This should help some.
  3. P

    Medical Journal's

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Pipeline/#PROTEIN_ASSIST/REPAIR">about ptc 124</a> This should help some.
  4. P

    Medical Journal's

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/Pipeline/#PROTEIN_ASSIST/REPAIR">about ptc 124</a> This should help some.
  5. P

    Quality CF Care

    My nurse sent me the same thing.
  6. P

    Quality CF Care

    My nurse sent me the same thing.
  7. P

    Quality CF Care

    My nurse sent me the same thing.
  8. P

    Question about Oxygen

    Hang in there, things will start to look up, I dont have any answers, cause Ive never been of oxygen before but hopefully someone on here will help answer your questions for you.
  9. P

    Question about Oxygen

    Hang in there, things will start to look up, I dont have any answers, cause Ive never been of oxygen before but hopefully someone on here will help answer your questions for you.
  10. P

    Question about Oxygen

    Hang in there, things will start to look up, I dont have any answers, cause Ive never been of oxygen before but hopefully someone on here will help answer your questions for you.
  11. P

    Please Pray for Daine

    Welcome back and welcome home, glad to hear that you are doing better.
  12. P

    Please Pray for Daine

    Welcome back and welcome home, glad to hear that you are doing better.
  13. P

    Please Pray for Daine

    Welcome back and welcome home, glad to hear that you are doing better.
  14. P

    halloween pictures

    Well, I thought Id share these pictures with those that dont like to read blogs, so I hope you enjoy!! At work I dressed up as a Mime, it was fun, for halloween night we didnt do anything but relax, we didnt even pass out candy. <img...
  15. P

    halloween pictures

    Well, I thought Id share these pictures with those that dont like to read blogs, so I hope you enjoy!! At work I dressed up as a Mime, it was fun, for halloween night we didnt do anything but relax, we didnt even pass out candy. <img...
  16. P

    halloween pictures

    Well, I thought Id share these pictures with those that dont like to read blogs, so I hope you enjoy!! At work I dressed up as a Mime, it was fun, for halloween night we didnt do anything but relax, we didnt even pass out candy. <img...
  17. P

    PFT's, O2 Sats and Finger Clubbing - Survey

    FEV1 = 89% O2 Sat = 98-100% Finger Clubbing - Mild
  18. P

    PFT's, O2 Sats and Finger Clubbing - Survey

    FEV1 = 89% O2 Sat = 98-100% Finger Clubbing - Mild
  19. P

    PFT's, O2 Sats and Finger Clubbing - Survey

    FEV1 = 89% O2 Sat = 98-100% Finger Clubbing - Mild
  20. P

    Please Pray for Daine

    I hope she is doing alright, do you have an update yet?
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