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Thank you for the Reply, Emily.
I hope you are doing well. It is nice to see all of the adults participating in this board. I lurk sometimes just to see what issues affect everyone.
Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising.
I hope it is the 'answer' for my little girl. :-)
Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising.
I hope it is the 'answer' for my little girl. :-)
Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising.
I hope it is the 'answer' for my little girl. :-)
Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising.
I hope it is the 'answer' for my little girl. :-)
Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising.
I hope it is the 'answer' for my little girl. :-)
My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness.
Do you have any advice for a parent with a child who has CF?
What did your parents do right?
What did your parents do wrong?
What would be most important to you...
My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness.
Do you have any advice for a parent with a child who has CF?
What did your parents do right?
What did your parents do wrong?
What would be most important to you...
My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness.
Do you have any advice for a parent with a child who has CF?
What did your parents do right?
What did your parents do wrong?
What would be most important to you...
My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness.
Do you have any advice for a parent with a child who has CF?
What did your parents do right?
What did your parents do wrong?
What would be most important to you...
My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness.
Do you have any advice for a parent with a child who has CF?
What did your parents do right?
What did your parents do wrong?
What would be most important to you...
These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease.
With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease.
With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease.
With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease.
With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease.
With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/
">http://www.cff.org/
</a>
<b>What Is Cystic Fibrosis?</b>
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/
">http://www.cff.org/
</a>
<b>What Is Cystic Fibrosis?</b>
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/
">http://www.cff.org/
</a>
<b>What Is Cystic Fibrosis?</b>
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/
">http://www.cff.org/
</a>
<b>What Is Cystic Fibrosis?</b>
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
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