Cystic Fibrosis Forum (EXP)

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  1. M

    Does anyone have F508 and W1282x?

    Thank you for the Reply, Emily. I hope you are doing well. It is nice to see all of the adults participating in this board. I lurk sometimes just to see what issues affect everyone.
  2. M

    Does anyone have F508 and W1282x?

    Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising. I hope it is the 'answer' for my little girl. :-)
  3. M

    Does anyone have F508 and W1282x?

    Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising. I hope it is the 'answer' for my little girl. :-)
  4. M

    Does anyone have F508 and W1282x?

    Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising. I hope it is the 'answer' for my little girl. :-)
  5. M

    Does anyone have F508 and W1282x?

    Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising. I hope it is the 'answer' for my little girl. :-)
  6. M

    Does anyone have F508 and W1282x?

    Thank for your response, Moxie. You are correct about PTC124. I have been reading alot about it. We have discussed it with our Genetics person at the U of M Clinic and she thinks it is very promising. I hope it is the 'answer' for my little girl. :-)
  7. M

    What did your parents do right/wrong?

    My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness. Do you have any advice for a parent with a child who has CF? What did your parents do right? What did your parents do wrong? What would be most important to you...
  8. M

    What did your parents do right/wrong?

    My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness. Do you have any advice for a parent with a child who has CF? What did your parents do right? What did your parents do wrong? What would be most important to you...
  9. M

    What did your parents do right/wrong?

    My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness. Do you have any advice for a parent with a child who has CF? What did your parents do right? What did your parents do wrong? What would be most important to you...
  10. M

    What did your parents do right/wrong?

    My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness. Do you have any advice for a parent with a child who has CF? What did your parents do right? What did your parents do wrong? What would be most important to you...
  11. M

    What did your parents do right/wrong?

    My daughter is a newborn (about 10 weeks old). I want her to grow up happy, healthy, and knowing she is more than her illness. Do you have any advice for a parent with a child who has CF? What did your parents do right? What did your parents do wrong? What would be most important to you...
  12. M

    Does anyone have F508 and W1282x?

    These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease. With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
  13. M

    Does anyone have F508 and W1282x?

    These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease. With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
  14. M

    Does anyone have F508 and W1282x?

    These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease. With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
  15. M

    Does anyone have F508 and W1282x?

    These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease. With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
  16. M

    Does anyone have F508 and W1282x?

    These are the mutation my daughter has. I know that everyone is different and that 2 people with the same mutations will not have the same disease. With all that being said... I am still curious if there are any adults on here that have the same mutations. If yes, how are you doing?
  17. M

    Nana needs info on CF

    The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/ ">http://www.cff.org/ </a> <b>What Is Cystic Fibrosis?</b> Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
  18. M

    Nana needs info on CF

    The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/ ">http://www.cff.org/ </a> <b>What Is Cystic Fibrosis?</b> Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
  19. M

    Nana needs info on CF

    The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/ ">http://www.cff.org/ </a> <b>What Is Cystic Fibrosis?</b> Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
  20. M

    Nana needs info on CF

    The best place to start for information is <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/ ">http://www.cff.org/ </a> <b>What Is Cystic Fibrosis?</b> Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children...
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