Cystic Fibrosis Forum (EXP)

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  1. A

    Introduction

    Heidi, Welcome. I noticed on your signature line you have a-typical for your daughter -- do you know her genes? How does she differ from your 5 & 7 year old? My kids are considered a-typical too. My daughter didn't start treatments until age 14, my son just started recently at age 21.
  2. A

    Introduction

    Heidi, Welcome. I noticed on your signature line you have a-typical for your daughter -- do you know her genes? How does she differ from your 5 & 7 year old? My kids are considered a-typical too. My daughter didn't start treatments until age 14, my son just started recently at age 21.
  3. A

    Introduction

    Heidi, Welcome. I noticed on your signature line you have a-typical for your daughter -- do you know her genes? How does she differ from your 5 & 7 year old? My kids are considered a-typical too. My daughter didn't start treatments until age 14, my son just started recently at age 21.
  4. A

    Introduction

    Heidi, Welcome. I noticed on your signature line you have a-typical for your daughter -- do you know her genes? How does she differ from your 5 & 7 year old? My kids are considered a-typical too. My daughter didn't start treatments until age 14, my son just started recently at age 21.
  5. A

    Introduction

    Heidi, Welcome. I noticed on your signature line you have a-typical for your daughter -- do you know her genes? How does she differ from your 5 & 7 year old? My kids are considered a-typical too. My daughter didn't start treatments until age 14, my son just started recently at age 21.
  6. A

    Christmas trees and mold

    Hmmmm this is something to consider -- I never thought about it before. I'm glad to see the article, although it was very limited (only studied one tree - one house) it is still something to keep in mind. For years now we didn't get a real tree because of limited space (only had a little 2 foot...
  7. A

    Christmas trees and mold

    Hmmmm this is something to consider -- I never thought about it before. I'm glad to see the article, although it was very limited (only studied one tree - one house) it is still something to keep in mind. For years now we didn't get a real tree because of limited space (only had a little 2 foot...
  8. A

    Christmas trees and mold

    Hmmmm this is something to consider -- I never thought about it before. I'm glad to see the article, although it was very limited (only studied one tree - one house) it is still something to keep in mind. For years now we didn't get a real tree because of limited space (only had a little 2 foot...
  9. A

    Christmas trees and mold

    Hmmmm this is something to consider -- I never thought about it before. I'm glad to see the article, although it was very limited (only studied one tree - one house) it is still something to keep in mind. For years now we didn't get a real tree because of limited space (only had a little 2 foot...
  10. A

    Christmas trees and mold

    Hmmmm this is something to consider -- I never thought about it before. I'm glad to see the article, although it was very limited (only studied one tree - one house) it is still something to keep in mind. For years now we didn't get a real tree because of limited space (only had a little 2 foot...
  11. A

    Delta F508 / R117H-7T Article

    Ditto to all !!! Cuddos to Emily for finding this article!!! Wow!!! what a great read. Yes Lauren -- That paragraph also struck me as ....oh I don't know... scary? I would be furious to learn I picked up B. Cepacia at clinic -- that should no longer be happening. I wonder too, how it is that...
  12. A

    Delta F508 / R117H-7T Article

    Ditto to all !!! Cuddos to Emily for finding this article!!! Wow!!! what a great read. Yes Lauren -- That paragraph also struck me as ....oh I don't know... scary? I would be furious to learn I picked up B. Cepacia at clinic -- that should no longer be happening. I wonder too, how it is that...
  13. A

    Delta F508 / R117H-7T Article

    Ditto to all !!! Cuddos to Emily for finding this article!!! Wow!!! what a great read. Yes Lauren -- That paragraph also struck me as ....oh I don't know... scary? I would be furious to learn I picked up B. Cepacia at clinic -- that should no longer be happening. I wonder too, how it is that...
  14. A

    Delta F508 / R117H-7T Article

    Ditto to all !!! Cuddos to Emily for finding this article!!! Wow!!! what a great read. Yes Lauren -- That paragraph also struck me as ....oh I don't know... scary? I would be furious to learn I picked up B. Cepacia at clinic -- that should no longer be happening. I wonder too, how it is that...
  15. A

    Delta F508 / R117H-7T Article

    Ditto to all !!! Cuddos to Emily for finding this article!!! Wow!!! what a great read. Yes Lauren -- That paragraph also struck me as ....oh I don't know... scary? I would be furious to learn I picked up B. Cepacia at clinic -- that should no longer be happening. I wonder too, how it is that...
  16. A

    Where do I go to research mutations???

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.genet.sickkids.on.ca/cftr/app ">http://www.genet.sickkids.on.ca/cftr/app </a> This is the only data base of genes I've ever seen, but when I put in my kids two genes, it doesn't really tell me anything I can understand. Here is...
  17. A

    Where do I go to research mutations???

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.genet.sickkids.on.ca/cftr/app ">http://www.genet.sickkids.on.ca/cftr/app </a> This is the only data base of genes I've ever seen, but when I put in my kids two genes, it doesn't really tell me anything I can understand. Here is...
  18. A

    Where do I go to research mutations???

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.genet.sickkids.on.ca/cftr/app ">http://www.genet.sickkids.on.ca/cftr/app </a> This is the only data base of genes I've ever seen, but when I put in my kids two genes, it doesn't really tell me anything I can understand. Here is...
  19. A

    Where do I go to research mutations???

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.genet.sickkids.on.ca/cftr/app ">http://www.genet.sickkids.on.ca/cftr/app </a> This is the only data base of genes I've ever seen, but when I put in my kids two genes, it doesn't really tell me anything I can understand. Here is...
  20. A

    Where do I go to research mutations???

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.genet.sickkids.on.ca/cftr/app ">http://www.genet.sickkids.on.ca/cftr/app </a> This is the only data base of genes I've ever seen, but when I put in my kids two genes, it doesn't really tell me anything I can understand. Here is...
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