Cystic Fibrosis Forum (EXP)

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  1. A

    SSDI questions

    try PM'ing Julie -- she is very helpful with this sort of thing. She is very busy with work and the triplets so she may not see your post. Best wishes
  2. A

    SSDI questions

    try PM'ing Julie -- she is very helpful with this sort of thing. She is very busy with work and the triplets so she may not see your post. Best wishes
  3. A

    SSDI questions

    try PM'ing Julie -- she is very helpful with this sort of thing. She is very busy with work and the triplets so she may not see your post. Best wishes
  4. A

    SSDI questions

    try PM'ing Julie -- she is very helpful with this sort of thing. She is very busy with work and the triplets so she may not see your post. Best wishes
  5. A

    SSDI questions

    try PM'ing Julie -- she is very helpful with this sort of thing. She is very busy with work and the triplets so she may not see your post. Best wishes
  6. A

    update on Alexa

    My daughter wasn't diagnosed until she was 14 years old, so what I have to say is not the same as having a very young child with PA and Staph - but wanted to let you know that yes, it does happen to others at 6 months and even younger, and yes some people do get rid of both PA and staph when...
  7. A

    update on Alexa

    My daughter wasn't diagnosed until she was 14 years old, so what I have to say is not the same as having a very young child with PA and Staph - but wanted to let you know that yes, it does happen to others at 6 months and even younger, and yes some people do get rid of both PA and staph when...
  8. A

    update on Alexa

    My daughter wasn't diagnosed until she was 14 years old, so what I have to say is not the same as having a very young child with PA and Staph - but wanted to let you know that yes, it does happen to others at 6 months and even younger, and yes some people do get rid of both PA and staph when...
  9. A

    update on Alexa

    My daughter wasn't diagnosed until she was 14 years old, so what I have to say is not the same as having a very young child with PA and Staph - but wanted to let you know that yes, it does happen to others at 6 months and even younger, and yes some people do get rid of both PA and staph when...
  10. A

    update on Alexa

    My daughter wasn't diagnosed until she was 14 years old, so what I have to say is not the same as having a very young child with PA and Staph - but wanted to let you know that yes, it does happen to others at 6 months and even younger, and yes some people do get rid of both PA and staph when...
  11. A

    I don't know where to start.......

    <b>trinitycf</b> Maria, Did you get genetic testing on your girls? Do you know what their mutations are - just curious, since I have read that it is very rare in African Americans -- just curious what genes they have. Glad to hear you did eventually get the correct diagnosis - I know it is...
  12. A

    I don't know where to start.......

    <b>trinitycf</b> Maria, Did you get genetic testing on your girls? Do you know what their mutations are - just curious, since I have read that it is very rare in African Americans -- just curious what genes they have. Glad to hear you did eventually get the correct diagnosis - I know it is...
  13. A

    I don't know where to start.......

    <b>trinitycf</b> Maria, Did you get genetic testing on your girls? Do you know what their mutations are - just curious, since I have read that it is very rare in African Americans -- just curious what genes they have. Glad to hear you did eventually get the correct diagnosis - I know it is...
  14. A

    I don't know where to start.......

    <b>trinitycf</b> Maria, Did you get genetic testing on your girls? Do you know what their mutations are - just curious, since I have read that it is very rare in African Americans -- just curious what genes they have. Glad to hear you did eventually get the correct diagnosis - I know it is...
  15. A

    I don't know where to start.......

    <b>trinitycf</b> Maria, Did you get genetic testing on your girls? Do you know what their mutations are - just curious, since I have read that it is very rare in African Americans -- just curious what genes they have. Glad to hear you did eventually get the correct diagnosis - I know it is...
  16. A

    Genetic Results In

    I am confused about the "complex carrier and the "benign variant" part (just never heard the terms before -- of course I know what the words mean, just not used in relation to a CF diagnosis) .... but I wanted to let you know what has happened with us so you would have it in your brain, in case...
  17. A

    Genetic Results In

    I am confused about the "complex carrier and the "benign variant" part (just never heard the terms before -- of course I know what the words mean, just not used in relation to a CF diagnosis) .... but I wanted to let you know what has happened with us so you would have it in your brain, in case...
  18. A

    Genetic Results In

    I am confused about the "complex carrier and the "benign variant" part (just never heard the terms before -- of course I know what the words mean, just not used in relation to a CF diagnosis) .... but I wanted to let you know what has happened with us so you would have it in your brain, in case...
  19. A

    Genetic Results In

    I am confused about the "complex carrier and the "benign variant" part (just never heard the terms before -- of course I know what the words mean, just not used in relation to a CF diagnosis) .... but I wanted to let you know what has happened with us so you would have it in your brain, in case...
  20. A

    Genetic Results In

    I am confused about the "complex carrier and the "benign variant" part (just never heard the terms before -- of course I know what the words mean, just not used in relation to a CF diagnosis) .... but I wanted to let you know what has happened with us so you would have it in your brain, in case...
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