Cystic Fibrosis Forum (EXP)

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  1. M

    PTC 124 ?

    That would be wonderful! The genetic person at our CF clinic says the research that is being done on the X mutations is very promising. I found an article that says the drug may be available as soon as 2009. My daughter is less than 1 month old now, so this gives me hope for her future.
  2. M

    PTC 124 ?

    That would be wonderful! The genetic person at our CF clinic says the research that is being done on the X mutations is very promising. I found an article that says the drug may be available as soon as 2009. My daughter is less than 1 month old now, so this gives me hope for her future.
  3. M

    PTC 124 ?

    That would be wonderful! The genetic person at our CF clinic says the research that is being done on the X mutations is very promising. I found an article that says the drug may be available as soon as 2009. My daughter is less than 1 month old now, so this gives me hope for her future.
  4. M

    PTC 124 ?

    That would be wonderful! The genetic person at our CF clinic says the research that is being done on the X mutations is very promising. I found an article that says the drug may be available as soon as 2009. My daughter is less than 1 month old now, so this gives me hope for her future.
  5. M

    PTC 124 ?

    That would be wonderful! The genetic person at our CF clinic says the research that is being done on the X mutations is very promising. I found an article that says the drug may be available as soon as 2009. My daughter is less than 1 month old now, so this gives me hope for her future.
  6. M

    PTC 124 ?

    Does anyone have any information or links regarding PTC 124?
  7. M

    PTC 124 ?

    Does anyone have any information or links regarding PTC 124?
  8. M

    PTC 124 ?

    Does anyone have any information or links regarding PTC 124?
  9. M

    PTC 124 ?

    Does anyone have any information or links regarding PTC 124?
  10. M

    PTC 124 ?

    Does anyone have any information or links regarding PTC 124?
  11. M

    F508 and W1282x

    Emma moved alot in the weeks before her due date. She was due on 12/14, but I had an unplanned c-section on 12/5 after 21 hours of labor. She was born at 7 pounds 3.2 ounces, but was down to 6 pounds 8 ounces when we left the hospital. Now she is up to a little more than 7 pounds 5 ounces...
  12. M

    F508 and W1282x

    Emma moved alot in the weeks before her due date. She was due on 12/14, but I had an unplanned c-section on 12/5 after 21 hours of labor. She was born at 7 pounds 3.2 ounces, but was down to 6 pounds 8 ounces when we left the hospital. Now she is up to a little more than 7 pounds 5 ounces...
  13. M

    F508 and W1282x

    Emma moved alot in the weeks before her due date. She was due on 12/14, but I had an unplanned c-section on 12/5 after 21 hours of labor. She was born at 7 pounds 3.2 ounces, but was down to 6 pounds 8 ounces when we left the hospital. Now she is up to a little more than 7 pounds 5 ounces...
  14. M

    F508 and W1282x

    Emma moved alot in the weeks before her due date. She was due on 12/14, but I had an unplanned c-section on 12/5 after 21 hours of labor. She was born at 7 pounds 3.2 ounces, but was down to 6 pounds 8 ounces when we left the hospital. Now she is up to a little more than 7 pounds 5 ounces...
  15. M

    F508 and W1282x

    Emma moved alot in the weeks before her due date. She was due on 12/14, but I had an unplanned c-section on 12/5 after 21 hours of labor. She was born at 7 pounds 3.2 ounces, but was down to 6 pounds 8 ounces when we left the hospital. Now she is up to a little more than 7 pounds 5 ounces...
  16. M

    F508 and W1282x

    Thank you for the update. I am glad to hear things are going a little better. Is your daughter going to a CF center? If yes, she should talk to the CF team about adding enzymes. They started Emma on them at our first appointment. It has helped. She eats a bit less. She cries a bit less...
  17. M

    F508 and W1282x

    Thank you for the update. I am glad to hear things are going a little better. Is your daughter going to a CF center? If yes, she should talk to the CF team about adding enzymes. They started Emma on them at our first appointment. It has helped. She eats a bit less. She cries a bit less...
  18. M

    F508 and W1282x

    Thank you for the update. I am glad to hear things are going a little better. Is your daughter going to a CF center? If yes, she should talk to the CF team about adding enzymes. They started Emma on them at our first appointment. It has helped. She eats a bit less. She cries a bit less...
  19. M

    F508 and W1282x

    Thank you for the update. I am glad to hear things are going a little better. Is your daughter going to a CF center? If yes, she should talk to the CF team about adding enzymes. They started Emma on them at our first appointment. It has helped. She eats a bit less. She cries a bit less...
  20. M

    F508 and W1282x

    Thank you for the update. I am glad to hear things are going a little better. Is your daughter going to a CF center? If yes, she should talk to the CF team about adding enzymes. They started Emma on them at our first appointment. It has helped. She eats a bit less. She cries a bit less...
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