Cystic Fibrosis Forum (EXP)

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  1. P

    The Pari Trek

    This will be very helpful for when I take a cruise in August this year, Ill diffanatley have to look into this
  2. P

    My Hubby's Test Was Negative, Yea!

    congratulations, his not a carrier, that is always a relief, I had my husband tested after we got married and he is not a carrier either.
  3. P

    My Hubby's Test Was Negative, Yea!

    congratulations, his not a carrier, that is always a relief, I had my husband tested after we got married and he is not a carrier either.
  4. P

    Question on Cepacia

    my doc told me to stay 6feet away from someone with cf, not 3 feet. Here is something about me thou, and probably the same with everyone else, like if Im talking to someone in person with cf, I try and keep a good distance away, cause Im so worried about getting their germs. I went to a cf party...
  5. P

    Question on Cepacia

    my doc told me to stay 6feet away from someone with cf, not 3 feet. Here is something about me thou, and probably the same with everyone else, like if Im talking to someone in person with cf, I try and keep a good distance away, cause Im so worried about getting their germs. I went to a cf party...
  6. P

    i have a personal question.......

    I dont have that problem, I do just fine, but I think everyone even thos that dont have cf get tired, I dont get out of breath either, but there has been a thread on here before I think, if my memory serves me right about something like this.
  7. P

    i have a personal question.......

    I dont have that problem, I do just fine, but I think everyone even thos that dont have cf get tired, I dont get out of breath either, but there has been a thread on here before I think, if my memory serves me right about something like this.
  8. P

    How my Doc. appointment went yesterday.

    Has anyone ever came up to you guys and ask when are you due? I have never had that but reading some of the posts just made me think of it.
  9. P

    How my Doc. appointment went yesterday.

    Has anyone ever came up to you guys and ask when are you due? I have never had that but reading some of the posts just made me think of it.
  10. P

    How my Doc. appointment went yesterday.

    I do workout, mainly walk on the treadmill or the eliptical machine, but here soon I might start on the weights, I work out with my mother-in-law. My doctor has a British accent that I like, its pretty neat to listen to him talk although it is hard to understand him sometimes. I am 5 feet tall...
  11. P

    How my Doc. appointment went yesterday.

    I do workout, mainly walk on the treadmill or the eliptical machine, but here soon I might start on the weights, I work out with my mother-in-law. My doctor has a British accent that I like, its pretty neat to listen to him talk although it is hard to understand him sometimes. I am 5 feet tall...
  12. P

    Clinic visits?

    every two months for me, althought the doc would really like to see me every month, but I dont think so specially if Im feeling good and healthy. He is about 1hour away from where I live.
  13. P

    Clinic visits?

    every two months for me, althought the doc would really like to see me every month, but I dont think so specially if Im feeling good and healthy. He is about 1hour away from where I live.
  14. P

    How my Doc. appointment went yesterday.

    Well, I must say it went pretty well. I gained 4 pounds, now I weigh 122pd, yay, my pfts went up almost 10% they are 73%, 2months ago they were 65%, I feel they could be a little higher tho since I havent been on pulmozyme for 2 weeks now, due to stupid pharmacy, and I have been on hypertonic...
  15. P

    How my Doc. appointment went yesterday.

    Well, I must say it went pretty well. I gained 4 pounds, now I weigh 122pd, yay, my pfts went up almost 10% they are 73%, 2months ago they were 65%, I feel they could be a little higher tho since I havent been on pulmozyme for 2 weeks now, due to stupid pharmacy, and I have been on hypertonic...
  16. P

    I tried the hypertonic saline

    <blockquote>Quote<br><hr><i>Originally posted by: <b>gsplover</b></i><br>I cough the entire time I neb the saline. Then I do my vest and don't cough at all.<hr></blockquote> Same here, but since the cough is a loose cough, I make myself cough on purpose during the vest, by huffing or just...
  17. P

    I tried the hypertonic saline

    <blockquote>Quote<br><hr><i>Originally posted by: <b>gsplover</b></i><br>I cough the entire time I neb the saline. Then I do my vest and don't cough at all.<hr></blockquote> Same here, but since the cough is a loose cough, I make myself cough on purpose during the vest, by huffing or just...
  18. P

    Colomycin

    I have been on colymycin in the past but I complained about it giving me shortness of breath so with me fussing all the time the doc put me on tobi. I just remembered that when he did have me on coly, it was when I cultured psuedo for the first time (I think) and he wanted to see if he can wipe...
  19. P

    Colomycin

    I have been on colymycin in the past but I complained about it giving me shortness of breath so with me fussing all the time the doc put me on tobi. I just remembered that when he did have me on coly, it was when I cultured psuedo for the first time (I think) and he wanted to see if he can wipe...
  20. P

    Dying...

    Same here, I always worry about my loved ones too. I too think about how it will be for me and how sad it will be for my family, but in a way Im a little scared of death, but I know when it comes I wont be so afraid, I will probably be more accepting of it.
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