Cystic Fibrosis Forum (EXP)

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  1. W

    What would you do?

    I wouldn't do it either - I keep my CF pretty much under wraps except with those I am close with too, so I understand not wanting a big display that say I HAVE CF. That being said, I think it was nice of them to ask you <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. W

    Natural Therapies

    fruits and veggies and nuts! Look into curcumin, oregano oil, whole food supplements, and probiotics. There are some amino acids that are thought to help, though i don't know which ones. Avoiding fat if digestion and weight gain aren't an isse is beneficial as well - though it is necessary...
  3. W

    Smoking and family events...

    thanks deb!
  4. W

    Do you work?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i> Yes, I work as a teacher fulltime - 40 hours week. Yes, I get run down, but I think it's more from the job than the CF</end quote></div> That was me - not logged in - at work <img...
  5. W

    Smoking and family events...

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>melleemac</b></i> I will never take my boys to an inside event which allows smoking! In fact, I fell out with my mother over 6 months ago because I told her as long as she was smoking inside my boys would not be allowed to visit...
  6. W

    Smoking and family events...

    well I know I am not the norm - and I would have to say no matter, what do what you are comfortable with - you won't have a good time if you are worried about the smoke. However, I think that if you protect your child at all possible times from adverse exposures, such as smoke, then spending a...
  7. W

    CF and drinking alchohol

    Well I was in the chat room for a bit too - I know the pros and cons of drinking. I am almost 29 and I have been drinking socially for at least 15 years - starting in high school. Socially=on social occassions. I am not sitting down at the bar pounding them down night after night. Yes, maybe...
  8. W

    Dr. Apt. Monday

    I am laughing so hard right now, imagining people going in to get weighed jingling and clanking away!
  9. W

    hypertonic saline question... dropping sats

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dramamama</b></i> hi guys- I need some help. I just tried hypertonic saline today and suddenly felt real weird...my sats dropped from 98-99% to 94% and I am coughing up all kinds of crud...now my joints are hurting which makes me...
  10. W

    Only for Moms

    My son was breastfed and I took my enzymes as well as albuterol and I think advair, but I don't remember for sure on that. I am pregnant now and taking the same three things I mentioned above - my doc says all are OK, so I would assume they would be fine for breastfeeding too.
  11. W

    Update on Jazzysmom (AKA Melissa)

    I'm sending out happy and healthy thoughts to her!
  12. W

    COURTNEY IS GOING TO BE FAMOUS

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ClashPunk82</b></i> Wow that's great, congrats. I remember I was in the paper when I was 5 years old. I was one of the first patients to move over to the new Children's in Boston. It was this big article about the move and they...
  13. W

    Getting to know you....

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>65rosessamurai</b></i> I'm only guessing what you said, but seemed to indicate using French and Spanish to travel (to Europe)? (Am I: Warm? Cold? Antarctic?) Sorry, I'm only bilingual, not trilingual. Though I'm still working on...
  14. W

    Getting to know you....

    oui, Scarlett, mais j'oublie beaucoup de francaise parce que je parle espanol tout le temps pour mon travialle.
  15. W

    Getting to know you....

    1) Favorite Color - pink, black 2) Favorite Food - anything spicy and gummy bears from CVS 3) Hobbies - reading, writing, yoga (5 years praciticng Kripalu!!) 4) Extra - uh - I speak French and Spanish, since we're talkin' languages here, and I am getting my master's degree in English lit 5)...
  16. W

    CBC white blood count ??

    OK, so you probably know by now I am pregnant (11 weeks tomorrow! hooray!) and I just had all my routine stuff done at the OB - pap, blood work, etc. and they called today and said my white blood count was slightly elevated and they were going to pull it again in a month. My question is - as...
  17. W

    I made a garlic and oregano oil drink...

    ha! I did the same thing onc, minus the oregano oil. I had a herbalist tell me for a cold to mince four cloves of garlic and wash them down with some water, and do this 3-4 times a day. i did it once and had projectile vomit like the exorcist. I still don't care much for the smell of garlic...
  18. W

    tattoo gallery :)

    ooh, I have a really huge tattoo on my back - I will post as soon as i can. I have a new computer and all my pics are still on the old one.
  19. W

    Thank You

    I agree too. Maybe because I have kept myself from getting embroiled in any serious drama, but I feel accepted here and I enjoy reading everyone's perspectives. As far as some of the other stuff....well I wish people were more open and sometimes sensitive about others opinions and...
  20. W

    Diagnosed at Birth

    I was diagnosed at 6 weeks and I have mild Cf - no IVs, hospital stays or major illnesses as of yet. PFTs in the 70s
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