Cystic Fibrosis Forum (EXP)

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  1. W

    Malabsorbtion Problems?

    Maybe try even just a metamucil or citrucil first? Increasing your fiber might help both bulk up and push out whatever's in there. I did have a blockage as a small child and my stomach (intestines, I guess actually) really really hurt. I don't know other's experiences with that, but I know I...
  2. W

    Tough love....THEN what?

    My dad told me once he felt like his job was like that of a missionary. He would just keep preaching the lesson and hope that at some point I got it. But he wasn't going to give up. And he still does it!! I did a lot of things that were detrimentmental to my health, much of which my parents...
  3. W

    delta508

    I am "overweight" also, my pre-pregnancy weight was about 122 (I am about 128 now) and I am 5'2 - my family is not big. i think I just have decent absorption, though I am on enzymes, and some lucky twist of genetics. I am not sure my mutation - one is delta 508 but I don't know/can't remember...
  4. W

    I am SOOOO mad at...........

    I'm so glad to know that she made the team! As a mom, I would have done exaclty the same thing that you did - but I wanted to mention that as a kid, after 6th grade I begged my mom to stop going to school and practices and all that and let me deal with CF on my own. I really didn't tell a lot...
  5. W

    HELP

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i> I think all CF teenagers go through a rebellion period. I know I did for a while. I went so far as to not take my pills at all - I would hide them, throw them out, etc. And at lunch I was eating small...
  6. W

    questions about how you were raised

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i> And it is my right to advocate for these CF kids who are being put in situations that could make their health worse. And I wont' be intimidated, no matter how many people disagree with me, to continue to do so.</end...
  7. W

    questions about how you were raised

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>catboogie</b></i> and about daycare... *clears throat* i really wasn't going to respond to this thread until the daycare stuff came up. i am adamently opposed to daycare. i do understand that there are people who get into...
  8. W

    questions about how you were raised

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Seana30</b></i> Amy, I am not trying to put you down in anyway, and 99% of your posts and comments are heartfelt and people listen to you because when you speak you know what you are talking about. BUT.....you are not a parent...
  9. W

    questions about how you were raised

    I am a mom, but not a mom of a CFer - however, being a CFer myself, I think I have a nice long sturdy leg to stand on. I read so much about mom's of CFers who try to shield their children from everything. I know there was a waterpark debate going for a while, and I have read about parent's not...
  10. W

    cf moms and wannabe moms

    My pregnancy was uneventful and undamaging to my health. Nor did I have any problems taking care of my baby once he came - but my health was good to begin with. I think if you are healthy now, most likely you will be healthy after. I personally didn't slow down my life at all - I have found...
  11. W

    Tilt Board?

    when I was a kid I just laid upside down on my parents legs, we never had a tilt board - but it sounds like it would be beneficial.
  12. W

    mastering pft's

    I was told for years that my PFTs didn't really reflect my health status as they were always lower than what my life and health reflected. The doctors said I didn't "try" hard enough - mind you, being 13 and having someone scream "Blow blow blow" at you was a bit annoying....but now they have...
  13. W

    coughing

    ah, let's see... Scarlett81 - I have the "laughing" cough too - in fact, usually when I cough at school, the first things the kids say is "you sound like you're laughing!" Lizardqueen - I don't get out of breath either - I just cough - but wierdly not after sex (maybe all those endorphins <img...
  14. W

    coughing

    I am trying to type this as I neb my hypertonic saline - and I realize that I either stop breathing or breathe really fast when I type - wierd. So my question is about coughing - how often do you do it? I wonder the correlation between coughing and health as well, as I have had decent health...
  15. W

    Waterparks

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i> I used to always go to water parks growning up. Same with public pools, lakes and hot tubs. I've never had a problem with them.</end quote></div> Me too, I grew up around pools and such. In fact, I was on a...
  16. W

    Would you...

    nope, I wouldn't. And I'd live everyday assuming that I wouldn't get sick. If I did, then I would deal with that cookie as it crumbled, but I wouldn't want to live each day waiting to get sick.
  17. W

    Is anyone trying to get pregnant?

    I'm not trying to get pregnant anymore, because I am!! This will be my 2nd child. With my first, I concieved immediately, went off all meds except enzymes and had a healhty 8.5 months (he came early). I only visited the clinic once during that time. I was misdiagnoed with gestational...
  18. W

    Question about drinking pop/soda and CF?

    nope, I have alwasy ate and drank whatever I wanted. I don't have weight issues, but I am on enzymes for eveything i eat. You could add a calcium supplement if you are concerned, though I think with the amount of soda you're going to allow a toddler to drink, you probably woulnd't need it to...
  19. W

    stopping breastfeeding

    In my opinion as a ,mom and a Cfer but not a mom of a Cfer, I would say bf for as long as you can - even if it is only at night. Breastmilk is miraculous!
  20. W

    what role does Cf play in your life?

    There is a post on here about what your future looks like and it has gotten me thinking. In all actuality, I think I should mix CF into my future outlook, but I don't. I know that many here are "sick" with Cf and that just as many are (relatively) healthy. Many of you know by now, that I...
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