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I was wondering if people might give me a brief list of their mutations and a health assessment (like: have had transplant; PFTS are in this range; have B. cepacia or pseudenomas; etc.) . I ask for a few reasons: 1) curiosity; 2) I know I am delta f508 and that my other mutation (I think) is...

Khoyle - I don't know the safety issues of a vaporizer - I know in the "old days" kids used to sleep in "mist tents" as the moisture seems to help loosen up the phlegm. I have alwasy used a vaporizer when i am sick and have not yet (knock on wood) cultured anything bad. I guess you could always...

Try soy milk or goat's milk (goat's milk is actually often better tolerated than cows milk) - my son had a hard time with cows milk at first too, and he doesn't have CF

Why is your child taking meds for things she hasn't tested positive for? I can't speak for you or your docs, but I'd question giving any meds that weren't needed. Also, have you tried a vaporizer in her room at night to ease her bronchial tubes? Put some eucalyptus or tea tree oil in it...

Well, just to join in the fun, I am 28 with CF. Saw the Dead in 95 a few times before Jerry died, and have partaken many (many) times in all that goes with the "Dead" scene. I can't divulge all my secrets on line, but I definitely haven't lived an unhip life. Though I'm probably too old to be...

As I was driving home from work I was thinking a lot about this posting and how very unkind it might have seemed. I am lucky and I should be more grateful for that. I don't mean to discredit any of the CF centers that care for people or to come across as trying to be "better" than others. I...

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I am not going to start an argument here and if I have "offended" anyone by being honest about how I feel about this disease, then I apologize. Destiny, if you'd read through this thread you might see that I admit there is a lot I do not know about Cf and that I do hate having it and would...

At my wedding we wanted to honor my sister, my husband's mom and brother as they have all passed away. We bought carnations and tied a little note to them that said "In loving memory of:" and listed their names and then passed them out to people when they were seated for the ceremony.

I've been practicing kripalu yoga for about 5 years. I love it. I think the breathing techniques are really helpful. I often do them before I take PFTs to increase my percent and it works (maybe this is cheating, but oh well!). I've been taking classes at the same private studio all this...

laughter - the best medicine - and it might help clean out your lungs while you're at it! I was thinking that I'd like to laugh. and I am a firm believer of being able to laugh at myself. So I was wondering if anyone had any funny Cf stories to share? I have a hard time making things I type...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>How lucky for you to be in good health, Wanderlost... but how unfortunate for you to take that good health, and a proactive healthcare team that clearly is concerned with keeping your health where it stands, for granted...

Carmen, Did you have any trouble conceiving your babies? I am 28 and trying for #2. My first was conceived with no problem, but it has been a year now without conception. I am getting disheartened. My first pregnancy was great though, no complications, no problem gaining weight, nothing...

Thank you all for your thoughts. I actually had no idea about the osteoporosis thing. Being that my health is good, I do tend to be in denial about my CF. It is so easy to pretend that it isn't there and yet every clinic visit reminds me that it is. But I don't plan on letting this thing...

I am going to complain for a moment. How often does everyone go to the CF clinic? I have some issues about the Cf foundation's guidlelines as I don't feel that they are individualized at all and rather treat us all as if our illness is exactly the same. For example, I go the the clinic 2x...

What is b. cepacia and how can you get it? I have read a lot of people's comments who say they developed it. Can I avoid developing it?

I don't see the nutritionist either and haven't since I was about 12 - though they pop in once in a while just to be in compliance with the CF foundation guidelines (and I have a whole other bi**h about that). The last time I saw her, she did actually give me some hints for losing weight, but...

When should I should I stop waiting for that to happen?? <img src="i/expressions/face-icon-small-wink.gif" border="0"> My favorite day was when my milk came in after having my son. I put on a bikini top and stood in the mirror for a while!

I am 28 and was diagnosed when I was 6 weeks. I've never had trouble gaining weight and I have never taken any nutritional supplements - though I do take Creaon 20 at each meal. In fact, I am actually getting a little pudgy as my 30's are approaching! I'd like to lose 10 pounds, so it is...

I am new here and I have been posting like crazy because I never talk to people about my CF and the few people that I know with it are "sick." I have read about so many healthy people here, it's great! Anyway - what I'd like to know is about weight. I am actually a little overweight (in my...