Cystic Fibrosis Forum (EXP)

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  1. W

    my own little set of eggies! :)

    Since we've all been folowing Julie's journey towards pregnancy, I thought I'd updat on my own. Some of you may remember that I was pregnant at Christmastime, but miscarried soon after. Well, today I go in for my follicle study - that's where they do an ultrasound to see how many eggs the...
  2. W

    my own little set of eggies! :)

    Since we've all been folowing Julie's journey towards pregnancy, I thought I'd updat on my own. Some of you may remember that I was pregnant at Christmastime, but miscarried soon after. Well, today I go in for my follicle study - that's where they do an ultrasound to see how many eggs the...
  3. W

    pseudemona question

    1) is it pseudenoma or pseudemona? 2)The last time I went to the clinic, about a week ago, I just happened to glance at my chart and saw a lab sheet that said many pseudemona asperillius (or whatever) type 2. So I asked the doc, as I have NEVER been told that I have psuedemonas. I do not take...
  4. W

    pseudemona question

    1) is it pseudenoma or pseudemona? 2)The last time I went to the clinic, about a week ago, I just happened to glance at my chart and saw a lab sheet that said many pseudemona asperillius (or whatever) type 2. So I asked the doc, as I have NEVER been told that I have psuedemonas. I do not take...
  5. W

    just an update, nothing too exciting

    I had my clinic visit today. I have been kinda congested lately and thought my PFTs might have gone down, but they were at 79% which is actually up a bit, so that was nice to hear. I mentioned I wanted to try the hypertonic saline, and so they gave me a nebulizer, but have to locate a pharmacy...
  6. W

    just an update, nothing too exciting

    I had my clinic visit today. I have been kinda congested lately and thought my PFTs might have gone down, but they were at 79% which is actually up a bit, so that was nice to hear. I mentioned I wanted to try the hypertonic saline, and so they gave me a nebulizer, but have to locate a pharmacy...
  7. W

    Enzyme ??

    I was reading the banana thread and I was wondering: when and with what do you take your enzymes? I take mine with just about everything - I always did, since childhood, but now I am wondering if I actually need to do that. It never occured to me to just take them with fatty foods. huh. I...
  8. W

    Sad news

    I reported about a month ago that I was pregnant, but sadly I miscarried at the end of December. We are hoping to be pregnant again soon and I wanted to thank everyone for their prayers and aupport and kind words.
  9. W

    How many CFers are home owners?

    I am a home owner. I bought my home when I was 25 (I am now 28), and have lived there close to 4 years. My husband has lived with me for two of those years, but the house is in my name only.
  10. W

    Racial issues starting

    What kind of town do you live in? Is it uncommon to see interracial relationships? Where I live it is very very common, so nothing like that has really happened in my family. Of course racism exists here, but I haven't had to deal with it yet in my own family - hopefully I won't have to...
  11. W

    When do I tell others?

    I don't tell people very quickly - but that has always been my choice - my paretns never hid it and year after year as a kid, each new teacher or new friend I made, my mom went and explained to them all about CF. That was embarrassing to me and might be why I chose not to tell people...
  12. W

    Hey Ladies....

    I always used ortho tri cyclen - for about 10 years and never had any problems
  13. W

    Age of Diagnoses and Age now

    I was diagnosed at 6 weeks with failure to thrive - I was literally starving and actually had to have a blood transfusion. That is the only time I have been in the hospital with CF. I am now 28 and the mother of one, working on another!
  14. W

    side effects of skipping Ultrase

    When I was a little girl - about 6 or 7, I stopped taking my pills. I didn't tell my parents, I just decided I didn't want to take them anymore. I ended up with a bowel obstruction. I rarely forget now. I have tried to alter them to help with weight loss (I know, I know - a CFer who wants to...
  15. W

    Problem with Parents who smoke

    My mother smokes - it wasn't until I was 18 that she started going outside to do it - and I no longer lived with her at that time! There is some weak excuse for this as in the 70s and 80s before people really realized how bad second hand smoke was to people, but I think it really boiled down to...
  16. W

    conveinent coughing

    I try to hold my cough in as well. And I always get those "time to quit smoking" comments. My students always laugh because my face gets very red - but they are good natured about it - they think i have asthma- it was easier to explain that way, so it doesn't surprize them when I do have a...
  17. W

    CF moms

    In the thread "Mild form of the diease" (sorry, don't know how to link it), someone asked me about my pregnancy and then another mom replied to that too, so I wanted to start a thread to ask some questions of other CF moms: **did you have gestational diabetes? (I was diagnosed as such, and I...
  18. W

    CF moms

    [No message]
  19. W

    Any suggestions would be helpful

    I use a neti all the time and it really helps a lot - just watch how much salt you use becasue too much burns! Also, I add a little tincture of goldenseal into mine as it helps kill some of the bacteria living in the nose. good luck!
  20. W

    cure b4 2020

    As long as I can remember the "cure" has been "5-10 years away. " Not to be a pessimist, but I am no longer waiting for anything called a cure, but something to make Cf a (much) longer lifespan - or to where there is no "average lifespan." ( which, as an aside has moved from 18 to 30 in the 28...
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