Cystic Fibrosis Forum (EXP)

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  1. M

    Camping

    We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img...
  2. M

    Camping

    We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img...
  3. M

    Camping

    We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img...
  4. M

    Bruising & Muscle Twitching

    I bruise easily but not severely as you have mentoined. Do you do IV's alot because I dont know but perhaps the heparin flush is contributing? Additinoally it is worth mentioning the twitches to your doc to be evaluated for restless leg syndrome. Or I also get very twitchy feeling legs if I...
  5. M

    Bruising & Muscle Twitching

    I bruise easily but not severely as you have mentoined. Do you do IV's alot because I dont know but perhaps the heparin flush is contributing? Additinoally it is worth mentioning the twitches to your doc to be evaluated for restless leg syndrome. Or I also get very twitchy feeling legs if I...
  6. M

    Bruising & Muscle Twitching

    I bruise easily but not severely as you have mentoined. Do you do IV's alot because I dont know but perhaps the heparin flush is contributing? Additinoally it is worth mentioning the twitches to your doc to be evaluated for restless leg syndrome. Or I also get very twitchy feeling legs if I...
  7. M

    Bruising & Muscle Twitching

    I bruise easily but not severely as you have mentoined. Do you do IV's alot because I dont know but perhaps the heparin flush is contributing? Additinoally it is worth mentioning the twitches to your doc to be evaluated for restless leg syndrome. Or I also get very twitchy feeling legs if I...
  8. M

    Bruising & Muscle Twitching

    I bruise easily but not severely as you have mentoined. Do you do IV's alot because I dont know but perhaps the heparin flush is contributing? Additinoally it is worth mentioning the twitches to your doc to be evaluated for restless leg syndrome. Or I also get very twitchy feeling legs if I...
  9. M

    Bruising & Muscle Twitching

    I bruise easily but not severely as you have mentoined. Do you do IV's alot because I dont know but perhaps the heparin flush is contributing? Additinoally it is worth mentioning the twitches to your doc to be evaluated for restless leg syndrome. Or I also get very twitchy feeling legs if I...
  10. M

    New and bewildered

    HI Sarah, I am very sorry to hear about your situation. I too am an adult diagnosis, 21, which was 6.5 years ago and went through alot to get diagnosed -- though not nearly what you and your family have went through. The fact that your brother cultured staph and pseudo is probably a portion...
  11. M

    New and bewildered

    HI Sarah, I am very sorry to hear about your situation. I too am an adult diagnosis, 21, which was 6.5 years ago and went through alot to get diagnosed -- though not nearly what you and your family have went through. The fact that your brother cultured staph and pseudo is probably a portion...
  12. M

    New and bewildered

    HI Sarah, I am very sorry to hear about your situation. I too am an adult diagnosis, 21, which was 6.5 years ago and went through alot to get diagnosed -- though not nearly what you and your family have went through. The fact that your brother cultured staph and pseudo is probably a portion...
  13. M

    New and bewildered

    HI Sarah, I am very sorry to hear about your situation. I too am an adult diagnosis, 21, which was 6.5 years ago and went through alot to get diagnosed -- though not nearly what you and your family have went through. The fact that your brother cultured staph and pseudo is probably a portion...
  14. M

    New and bewildered

    HI Sarah, I am very sorry to hear about your situation. I too am an adult diagnosis, 21, which was 6.5 years ago and went through alot to get diagnosed -- though not nearly what you and your family have went through. The fact that your brother cultured staph and pseudo is probably a portion...
  15. M

    New and bewildered

    HI Sarah, I am very sorry to hear about your situation. I too am an adult diagnosis, 21, which was 6.5 years ago and went through alot to get diagnosed -- though not nearly what you and your family have went through. The fact that your brother cultured staph and pseudo is probably a portion...
  16. M

    hypertonic saline vs. pulmozyme

    I have read some articles showing that some just dont respond well to pulmozyme, there are a # of theories as to why. Whether or not you and your son 'feel' the treatments are doing good they most assuradely are so please do not set a bad example for your son by allowing him to think that it is...
  17. M

    hypertonic saline vs. pulmozyme

    I have read some articles showing that some just dont respond well to pulmozyme, there are a # of theories as to why. Whether or not you and your son 'feel' the treatments are doing good they most assuradely are so please do not set a bad example for your son by allowing him to think that it is...
  18. M

    hypertonic saline vs. pulmozyme

    I have read some articles showing that some just dont respond well to pulmozyme, there are a # of theories as to why. Whether or not you and your son 'feel' the treatments are doing good they most assuradely are so please do not set a bad example for your son by allowing him to think that it is...
  19. M

    hypertonic saline vs. pulmozyme

    I have read some articles showing that some just dont respond well to pulmozyme, there are a # of theories as to why. Whether or not you and your son 'feel' the treatments are doing good they most assuradely are so please do not set a bad example for your son by allowing him to think that it is...
  20. M

    hypertonic saline vs. pulmozyme

    I have read some articles showing that some just dont respond well to pulmozyme, there are a # of theories as to why. Whether or not you and your son 'feel' the treatments are doing good they most assuradely are so please do not set a bad example for your son by allowing him to think that it is...
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