Cystic Fibrosis Forum (EXP)

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  1. M

    what can i do if i can't walk in great strides?

    we call it 'angel walking' I have people do it every year for one reason or another. You do everythin gbut the physical walking. You can still send out letters etc you could even say you are participating instead of 'walking'. You could send a family member to walk in your place if it made you...
  2. M

    what can i do if i can't walk in great strides?

    we call it 'angel walking' I have people do it every year for one reason or another. You do everythin gbut the physical walking. You can still send out letters etc you could even say you are participating instead of 'walking'. You could send a family member to walk in your place if it made you...
  3. M

    what can i do if i can't walk in great strides?

    we call it 'angel walking' I have people do it every year for one reason or another. You do everythin gbut the physical walking. You can still send out letters etc you could even say you are participating instead of 'walking'. You could send a family member to walk in your place if it made you...
  4. M

    Another Lindsey update

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i> Since she has shared every step & emotion with us her tx is really hitting home for me..........I guess now we just wait!</end quote></div> I feel the exact same way and I think because I am new to the site and...
  5. M

    Another Lindsey update

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i> Since she has shared every step & emotion with us her tx is really hitting home for me..........I guess now we just wait!</end quote></div> I feel the exact same way and I think because I am new to the site and...
  6. M

    Another Lindsey update

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i> Since she has shared every step & emotion with us her tx is really hitting home for me..........I guess now we just wait!</end quote></div> I feel the exact same way and I think because I am new to the site and...
  7. M

    LINDSEY GOT HER CALL FOR LUNGS

    Lindsey - Wow in just the short itme I have been on here you have already made such an impression on me. I hope your new lungs are perfect for you! I am sure you will retain your wonderful outlook on this whole ordeal and hope to hear from you soon!
  8. M

    LINDSEY GOT HER CALL FOR LUNGS

    Lindsey - Wow in just the short itme I have been on here you have already made such an impression on me. I hope your new lungs are perfect for you! I am sure you will retain your wonderful outlook on this whole ordeal and hope to hear from you soon!
  9. M

    LINDSEY GOT HER CALL FOR LUNGS

    Lindsey - Wow in just the short itme I have been on here you have already made such an impression on me. I hope your new lungs are perfect for you! I am sure you will retain your wonderful outlook on this whole ordeal and hope to hear from you soon!
  10. M

    Doing Nebs day and night

    I have changed back my work time from 7-8 and now I have to get up at 4:45am to get to work by 8am. The months I am 'on' TOBI are much harder than the months I am off. Normally I wake and do my vest and xopenex and TOBI if applicable in the morning then I go to gym 1/2-45min because I feel it...
  11. M

    Doing Nebs day and night

    I have changed back my work time from 7-8 and now I have to get up at 4:45am to get to work by 8am. The months I am 'on' TOBI are much harder than the months I am off. Normally I wake and do my vest and xopenex and TOBI if applicable in the morning then I go to gym 1/2-45min because I feel it...
  12. M

    Doing Nebs day and night

    I have changed back my work time from 7-8 and now I have to get up at 4:45am to get to work by 8am. The months I am 'on' TOBI are much harder than the months I am off. Normally I wake and do my vest and xopenex and TOBI if applicable in the morning then I go to gym 1/2-45min because I feel it...
  13. M

    A Group E-Hug for Allie

    Hugs from my husband and myself! May you find your way through this difficult time.
  14. M

    A Group E-Hug for Allie

    Hugs from my husband and myself! May you find your way through this difficult time.
  15. M

    A Group E-Hug for Allie

    Hugs from my husband and myself! May you find your way through this difficult time.
  16. M

    How much have you raised???

    I was our United Way Rep for the section of a company I wokr for. Per United way and my company you can write in the palce you wnat your united way dollars going and they have to send it there. We have a blank line on our form but if your work doesnt have a blank line write it in and call around...
  17. M

    How much have you raised???

    I was our United Way Rep for the section of a company I wokr for. Per United way and my company you can write in the palce you wnat your united way dollars going and they have to send it there. We have a blank line on our form but if your work doesnt have a blank line write it in and call around...
  18. M

    How much have you raised???

    I was our United Way Rep for the section of a company I wokr for. Per United way and my company you can write in the palce you wnat your united way dollars going and they have to send it there. We have a blank line on our form but if your work doesnt have a blank line write it in and call around...
  19. M

    Strep throat and CF?

    Whether your kid sounds like they have CF or not the item in your post that resonates with me is that YOU DONT FEEL SOMETHINGS RIGHT! You must as a mother go with your gut so I applaud you for sticking with it. I am an adult diagnosis who had a bunch of borderline tests. Please read my blog...
  20. M

    Strep throat and CF?

    Whether your kid sounds like they have CF or not the item in your post that resonates with me is that YOU DONT FEEL SOMETHINGS RIGHT! You must as a mother go with your gut so I applaud you for sticking with it. I am an adult diagnosis who had a bunch of borderline tests. Please read my blog...
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