Cystic Fibrosis Forum (EXP)

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  1. M

    Oral Antibiotics

    Hi Karen THey definately need a culture to know if your bacteria are resistant to the drugs you always take. They should not rx the same one all the time as that raises risk of bacteria becoming resistant, they should rotate them and if you have become resistant to cipro they should stop rx it...
  2. M

    Oral Antibiotics

    Hi Karen THey definately need a culture to know if your bacteria are resistant to the drugs you always take. They should not rx the same one all the time as that raises risk of bacteria becoming resistant, they should rotate them and if you have become resistant to cipro they should stop rx it...
  3. M

    Oral Antibiotics

    Hi Karen THey definately need a culture to know if your bacteria are resistant to the drugs you always take. They should not rx the same one all the time as that raises risk of bacteria becoming resistant, they should rotate them and if you have become resistant to cipro they should stop rx it...
  4. M

    Dry air is killing me

    Just a note that people with bad mold allergies shouldnt have plants because of the mold that is in the soil and released to the air. At least this is what I have been told/read. If you do keep plants I have read one idea of putting down foil over the dirt to reduce the amount of mold spores...
  5. M

    Dry air is killing me

    Just a note that people with bad mold allergies shouldnt have plants because of the mold that is in the soil and released to the air. At least this is what I have been told/read. If you do keep plants I have read one idea of putting down foil over the dirt to reduce the amount of mold spores...
  6. M

    Dry air is killing me

    Just a note that people with bad mold allergies shouldnt have plants because of the mold that is in the soil and released to the air. At least this is what I have been told/read. If you do keep plants I have read one idea of putting down foil over the dirt to reduce the amount of mold spores...
  7. M

    CF Services Pharmacy

    I had horrid trouble with them and every person I talked with screwed things up worse and bills were a nightmare. I couldnt handle dealign wth them though I did find that when I could order online there were no complications but if I had to call for anything forget it!
  8. M

    CF Services Pharmacy

    I had horrid trouble with them and every person I talked with screwed things up worse and bills were a nightmare. I couldnt handle dealign wth them though I did find that when I could order online there were no complications but if I had to call for anything forget it!
  9. M

    CF Services Pharmacy

    I had horrid trouble with them and every person I talked with screwed things up worse and bills were a nightmare. I couldnt handle dealign wth them though I did find that when I could order online there were no complications but if I had to call for anything forget it!
  10. M

    Another tax question...

    I posted this somewhere else but dont see it now and cant find it. Does someoen have spreadhseets they use to track all their medical expenses that I can use I would liek to start doing this. Can someone post the link to the medical deductions information from IRS? Also if you meet the 7.5%...
  11. M

    Another tax question...

    I posted this somewhere else but dont see it now and cant find it. Does someoen have spreadhseets they use to track all their medical expenses that I can use I would liek to start doing this. Can someone post the link to the medical deductions information from IRS? Also if you meet the 7.5%...
  12. M

    Another tax question...

    I posted this somewhere else but dont see it now and cant find it. Does someoen have spreadhseets they use to track all their medical expenses that I can use I would liek to start doing this. Can someone post the link to the medical deductions information from IRS? Also if you meet the 7.5%...
  13. M

    Dry air is killing me

    I too always have worst trouble in winter with dryness and very bad bleeding sinus's 4 years ago we started turnign down our heat in winter (we used to keep it 73+) not we keep it 67-68 and I have alot less trouble wiht bleeding. I also drink insane amounts of water. Humidifiers can increase...
  14. M

    Dry air is killing me

    I too always have worst trouble in winter with dryness and very bad bleeding sinus's 4 years ago we started turnign down our heat in winter (we used to keep it 73+) not we keep it 67-68 and I have alot less trouble wiht bleeding. I also drink insane amounts of water. Humidifiers can increase...
  15. M

    Dry air is killing me

    I too always have worst trouble in winter with dryness and very bad bleeding sinus's 4 years ago we started turnign down our heat in winter (we used to keep it 73+) not we keep it 67-68 and I have alot less trouble wiht bleeding. I also drink insane amounts of water. Humidifiers can increase...
  16. M

    Hemoptysis

    OMG My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said...
  17. M

    Hemoptysis

    OMG My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said...
  18. M

    Hemoptysis

    OMG My #1 problem with my lungs is hemoptysis. I rarely get sick enough to have to start IV's and never sick enough to go in hospital (mild CF, late DX) however I end up on IV"s and hospitalized 1-2X year due to hemoptysis. I have always wondered how I could get it to go away. THey always said...
  19. M

    CF MUTATIONS

    If anyone ever comes across info on P67L I woudl love to hear it, in 1998 it was identified for the first time (I was dx symptomatically before that) and it is classified as only the 5th confirmed mutation inferring a 'dominant mild effect' anyway I have never been able to figure out if it is a...
  20. M

    CF MUTATIONS

    If anyone ever comes across info on P67L I woudl love to hear it, in 1998 it was identified for the first time (I was dx symptomatically before that) and it is classified as only the 5th confirmed mutation inferring a 'dominant mild effect' anyway I have never been able to figure out if it is a...
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