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Been AWOL trying to launch a new career but so nice to see all the familiar names. Needing some help with a 50 psi compressor to replace the Invacare one that is not longer made!!! What other brands out there? Pros/cons? Recommendations??? Thanks!!!

http://abcnews.go.com/Health/wireStory/yucky-ducky-study-reveals-bath-time-toys-dirty-54046504

https://clinicaltrials.gov/ct2/show/study/NCT02953314?term=vertex&cond=Cystic+Fibrosis&draw=2&rank=29&show_locs=Y As I noted in another thread, DS has his quarterly appointment a couple weeks back and his doctor was very hot on Symdeko, after recommending against Orkambi for him. Just saw they...

https://www.fda.gov/Safety/Recalls/ucm571001.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery This same manufacturer had same recall for product about a year ago which at the time we were using a product. I never started up again, thank God, as it sounds from another FDA release...

http://investors.vrtx.com/releasedetail.cfm?ReleaseID=1035299

http://investors.vrtx.com/releasedetail.cfm?ReleaseID=1033559, A wonderful day.

He wants to know when they remove it if it will hurt? And whether they need to put that sticky protective covering or just a bandaid? A big piece or a little piece? And how many days will it stay on for?

Just curious: does your cf center do 14 days IV if you stay in. hospital but 21 if you go home? And do they sa 4 treatments per day the entire time while on IV? and do they somehow giv you ten extra hours every day?

Is this "normal?" DS has been as\king for much more water/gateroade than normal. He doesn't have too bad stools and isn't peeing more than typical , or if so, only slightly. He didn't have much to drin\k in the 2 wee\ks leading up to it so I'm thin\king his body is trying to ma\ke up , but...

Vertex has three or four studies enrolling heterozygotes for the next generation triple combination. Vrtx.com has a list of pipeline and link to clinical trials in case you haven't heard about these.

So DS had both a CF and an asthama excerbation after catching RSV. We we in hospital from Wednesday to Monday on IV antibiotics and home the finish course. His FEV was down to less than 60% but back to 77% before we left. He is complete recovered from the surface. I am waiting another day to do...

Anyone with input on one in Detroit area? Or suggestions on how to research or what to ask (besides if they do Eclipse)? THANKS!

Autumn shared Eclipse pointer. any others for PICC line or Home IV time? What do you wish you knew? Things to watch for? Ask? Do? Don't do? THANKS!

Under "normal" circumstances, how long does it take to return to "baseline" for a kiddo with a cold and doctor hearing something in one lung lobe? DS started antibiotics 2 days ago for 21 day course. Pretty sure he caught my cold which I caught from DH. DH was bac\k to his normal in days...

DS nose has been running so much and blown so much the inside is raw and when he blows he is in excruiating pain and little spots of blood. Is there a prescription med they give tohelp? Vaseline? (Safe for CF in nose?) Other suggestions? Thanks in advance all on this and other post..

DS finally got us fa rest cold and we are having a hard time getting the extra vests done because he feels so bad while doing so going to try to get a gaming system for tv that will help psh through. Doesn't have to be latest and greatest but ideally one two or more can play together and that...

results look good, hopefully fda will ok kalydeco for residual function in meantime. http://investors.vrtx.com/releases.cfm?hdr02=press

https://www.fda.gov/Drugs/DrugSafety/ucm546154.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery

Check out slide 19: http://seekingalpha.com/article/4035567-vertex-pharmaceuticals-vrtx-presents-35th-annual-j-p-morgan-healthcare-conference?auth_param=6g2i3:1c79trs:526c5ba977d309f2211bfc034ae22510

http://www.fda.gov/Safety/Recalls/ucm523959.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery FYI: If you don't, you might consider subscribing to the FDA recalls. I do and have found several long before I heard elsewhere and one I never did that was also recalled for cerpacia...