Cystic Fibrosis Forum (EXP)

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    Need thoughts on GI issues for 34 month old CF

    DS will be 3 in June. Since 6 months he's had GI issues. One hospitalization for IDOS, although from later conversations drs don't know for sure it was that. Prior to that he had constipation with marble poops, etc.. After release he started eating solids like crazy, gained a couple pounds in a...
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    Need your input

    Our son will be 3 shortly and now that he understands virtually everything we say (and do), and now that he will actually be able to remember things, I want to make sure I minimize the mommy screw-ups. I vividly can remember things from my early years that hurt, stung, made me sad, or happy...
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    allergies, allergy meds, black circles

    We've had an extreme warm winter and this is suppose to be worse pollen season on history, so I've heard. After spending more time outside once it warmed up, DS has been coughing more--not a ton, but more. We tried Claritin per dr's recommedation and nighttime coughing spells (like 2 minutes not...
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    Free Web-i-Nar on Feeding Issues for Special Needs

    Also posted on nutrition but wanted to share with "families" too because eating issues can affect the entire family! For the parents out there who struggle with feeding issue, I can't recommend this presentation highly enough. We were at the point the doctors started discussing feeding tubes...
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    Free Web-i-nar on Feeding Issues for Special Needs

    For the parents out there who struggle with feeding issue, I can't recommend this presentation highly enough. We were at the point the doctors started discussing feeding tubes because of my mismanagement with food. And I could not get our son to take his medicines. I truly believe Ellyn Satter's...
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    Insights from current 661 or 809 trials

    We're new to the forum and like the rest of you are desparate for any insights 661 and 809. We are so overjoyed by the gift 770 is to those who benefit and look forward to the day when there is drug that can help more CFers. I've picked up bits and pieces from some of the other messages and...
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