Cystic Fibrosis Forum (EXP)

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  1. L

    Happy Birthday Avery!

    Today my little girl turned 5! Seems like yesterday she was just a tiny baby, now she is 5 and sassy! Chuck father to Avery now 5 DDF508 (I need to change my signature)
  2. L

    Happy Birthday Avery!

    Today my little girl turned 5! Seems like yesterday she was just a tiny baby, now she is 5 and sassy! Chuck father to Avery now 5 DDF508 (I need to change my signature)
  3. L

    CFer on E! with Kimora Lee Simmons

    I only caught the end of it but a little girl in NYC got to meet Simmons and it looked like she had a princess party with a few friends. It was a Make A Wish Foundation event. You can tell it really made her day. Chuck
  4. L

    Avery did it again!

    She went in for her bhronch this morning and did a great job. Doctor said "if I didn't know she had CF, I would have thought she was a normal kid". As her parent we are hard on her to do her meds, but it all paid off today. But all the credit goes to her. Chuck
  5. L

    Do adults still get bronchs?

    I was at an office a few years back talking to one of the pulmonologist and he was stating they don't do them to the adults with CF because of trouble being put under. It came up tonight at dinner with my family? Just wondering. Chuck
  6. L

    Do adults still get bronchs?

    I was at an office a few years back talking to one of the pulmonologist and he was stating they don't do them to the adults with CF because of trouble being put under. It came up tonight at dinner with my family? Just wondering. Chuck
  7. L

    Here is Avery and I on the news yesterday talking about CF and Great Strides

    You have to love 4-year olds on live TV with fish faces and constant waves. This is our third time on tv to talk about CF in East TN. Go to the videos on the right hand side and scroll until you see walk for cystic fibrosis. <a target=_blank class=ftalternatingbarlinklarge...
  8. L

    Here is Avery and I on the news yesterday talking about CF and Great Strides

    You have to love 4-year olds on live TV with fish faces and constant waves. This is our third time on tv to talk about CF in East TN. Go to the videos on the right hand side and scroll until you see walk for cystic fibrosis. <a target=_blank class=ftalternatingbarlinklarge...
  9. L

    I just got chill bumps

    I was on wikipedia just goofing around and one of my all time favorite bands is Journey. Well it comes to find out I remember a few years ago watching VH1 behind the music on Journey that they went to the hospital to vist a dying boy as his last request. Well the entire band went and brought a...
  10. L

    We lost one yesterday in East Tennessee

    Donna was her name and she posted a few times after she learned she had CF a few years ago, she was 33 when she found out. She worked with my mom and so I felt like I knew her because my mom knew what she was going through and would tell me all about her. So please pray for her family and keep...
  11. L

    Tennessee and Memphis game tonight

    If your looking for someone to pull for tonight in the #1 vs. #2 matchup between TN and Memphis, let me tell you Bruce Pearl the coach for the University of Tennessee is an advocate for Cystic Fibrosis. If you follow college basketball then you know who he is, but what you may not know is that...
  12. L

    Tennessee and Memphis game tonight

    If your looking for someone to pull for tonight in the #1 vs. #2 matchup between TN and Memphis, let me tell you Bruce Pearl the coach for the University of Tennessee is an advocate for Cystic Fibrosis. If you follow college basketball then you know who he is, but what you may not know is that...
  13. L

    Robert Randolph and The Family Band to play a benefit concert in Knoxville,TN Oct. 5th

    Robert Randolph and The Family Band to play a benefit concert in Knoxville,TN Oct. 5th Will be a great time! We have already sold 1600 tickets, need to sell 900 more. If your in town or near Knoxville come out and support our cause with a night of great music for CF! My fraternity Pi Kappa...
  14. L

    My baby Avery turned 4 today!

    Just got back from her party, she had a blast! Chuck father to Avery now 4! With CF DDF508 and Rhett 2 carrier
  15. L

    My baby Avery turned 4 today!

    Just got back from her party, she had a blast! Chuck father to Avery now 4! With CF DDF508 and Rhett 2 carrier
  16. L

    Great read on the CFF website about a potential drug!!

    here is the link! Keep the pipeline moving! <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/aboutCFFoundation/PressRoom/2007PressReleases/index.cfm?ID=7247&blnShowBack=False&idContentType=3127 ">http://www.cff.org/aboutCFFoun...se&idContentType=3127 </a> Chuck father...
  17. L

    If you or someone you know has CF and you love football check this out

    Some people tailgate, we raise money in the name of Avery and Cystic Fibrosis. Who would have thought a bunch of college friends who love the Univeristy of Tennessee football would do so much to make a difference. Scroll down to OTT for Avery to see my baby! <a target=_blank...
  18. L

    If you or someone you know has CF and you love football check this out

    Some people tailgate, we raise money in the name of Avery and Cystic Fibrosis. Who would have thought a bunch of college friends who love the Univeristy of Tennessee football would do so much to make a difference. Scroll down to OTT for Avery to see my baby! <a target=_blank...
  19. L

    If you or someone you know has CF and you love football check this out

    Some people tailgate, we raise money in the name of CF and my little girl Avery! Who would have thought a bunch of college friends who loved University of Tennessee football would help make a difference. My friend put this together and I wanted to share it with all of you. Scroll down to OTT...
  20. L

    Just came across this!!!

    Sunday night on the web. This will be on down the road, if it works! Keep the pipeline full! Chuck father to Avery 3 with 2x DF508 and Rhett 2 carrier <a target=_blank class=ftalternatingbarlinklarge href="http://www.wchstv.com/newsroom/healthyforlife/2029.shtml...
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