Cystic Fibrosis Forum (EXP)

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  1. G

    vegetarian

    So what does it mean to a child with cf to all of a sudden give up eating meat? She is already pretty thin and I'm concerned that this will make matters worse. Has anyone had to deal with this or have any advice?
  2. G

    UC Davis

    Does anyone have experience with the UC Davis CF Children's Clinic?  
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    Moving

    We are moving to the Ashland/Medford area and we are wondering if there are any families with children in the area and if so, what CF Clinic do you go to? 
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    Not sure why

    When Sheila was dx at 7 years old her Fev 1 was at 104 percent. When she turned 8 she started vest therapy twice a day, pulmozyme, and albuterol. During that year her PFT's started to drop and her FEV 1 was down to about 97-98. That was still not too bad. Her health has been good and the...
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    Colonoscopy

    called my friend Andy Sable, a gastroenteritis, to make an appointment for a colonoscopy. A few days later, in his office, Andy showed me a color diagram of the colon, a lengthy organ that appears to go all over the place, at one point passing briefly through Minneapolis . Then Andy explained...
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    Helicopter

    Give it a try. My high score was 4535 but that was after about a week of practice! <a target=_blank class=ftalternatingbarlinklarge href="http://www.hurtwood.demon.co.uk/Fun/copter.swf">http://www.hurtwood.demon.co.uk/Fun/copter.swf</a>
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    20/20 research

    I was contacted by 20/20 research for a paid cf survey that is about 45 minutes long. Has anyone been contacted or know what this is all about?
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    Ahh, how true, indeed

    about WORRY................ Is there a magic cutoff period when Offspring become accountable for their own Actions? Is there a wonderful moment when Parents can become detached spectators in The lives of their children and shrug, 'It's Their life,' and feel nothing? When I was in my twenties...
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    A must watch

    If you haven't seen this Oprah it is worth watching. <a target=_blank class=ftalternatingbarlinklarge href="http://video.stumbleupon.com/?s=ithct48cqw&i=ufcchmyxqsuj9vwsemax">http://video.stumbleupon.com/?...i=ufcchmyxqsuj9vwsemax</a>
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    What color is it?

    Make sure you read the directions first. <a target=_blank class=ftalternatingbarlinklarge href="http://www.humorsphere.com/fun/8787/colortest.swf ">http://www.humorsphere.com/fun/8787/colortest.swf </a>
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    Go ahead make yourself crazy

    Careful it can be addictive. <a target=_blank class=ftalternatingbarlinklarge href="http://members.iinet.net.au/~pontipak/redsquare.html">http://members.iinet.net.au/~pontipak/redsquare.html</a>
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    Newborn screening

    For those who are interested; this is something that has been long overdue in my opinion. My daughter was diagnosed at 8 years old and if the law was in place at birth we would have had that much of a head start on her treatments. This could help alot of those who wouldn't have known...
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    Will dogs lead us to a cure?

    Fetch this. <a target=_blank class=ftalternatingbarlinklarge href="http://www.sciencedaily.com/videos/2006/0704-doggy_genes.htm">http://www.sciencedaily.com/vi...6/0704-doggy_genes.htm</a>
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    Netipot

    My wife has had really bad sinus problems the last few years and wants to try this thing. Has anyone had any luck with it? I personally think it's kind of bizarre but if it works why not? <a target=_blank class=ftalternatingbarlinklarge...
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    Logging onto life

    I just came across this in our local paper and thought it would be good to share. This is something that could be started anywhere. <a target=_blank class=ftalternatingbarlinklarge...
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    12 Days

    Enjoy the show <img src="i/expressions/musicnote.gif" border="0"> <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=2Fe11OlMiz8">http://www.youtube.com/watch?v=2Fe11OlMiz8</a>
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    Driver's License

    Check your drivers license... Now you can see anyone's Driver's License on the Internet, including your own! I just searched for mine and there it was...picture and all! Thanks Homeland Security! Privacy, where is our right to it? I definitely removed mine, I suggest you all do the same...
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    Fun Christmas Story

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.flashfunpages.com/couple.swf">http://www.flashfunpages.com/couple.swf</a>
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    We got elfed!

    Merry Christmas from the grsswspr family. <a target=_blank class=ftalternatingbarlinklarge href="http://www.elfyourself.com/?id=9623358117">http://www.elfyourself.com/?id=9623358117</a>
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    mild gene or ?

    I am wondering if someone who has inherited two different cf genes if the milder of the two will be more characteristic or symtomatic of the disease?
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