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Question..... I have a friend who has a child with an illness totally different from CF, her physician recommended taking her daughter to a chiropracter to see if they could get any positive results from it. She so far has done a lot better since seeing him. The same day she went we were...

Question..... I have a friend who has a child with an illness totally different from CF, her physician recommended taking her daughter to a chiropracter to see if they could get any positive results from it. She so far has done a lot better since seeing him. The same day she went we were...

I know I haven't posted in a while but I have a question. Holly was started on Advair again the past few weeks. It has helped her with her shortness of breath. my question is this.....she is coughing twice as much now as she was before. she lay behind me in bed coughing horribly for about 2...

i want to add a montage to holly's great strides page, how do you do this? our walk isn't until november but i already have friends donating & posting it on myspace for help in donating & i want it to be there!!

I need advice on how to handle a School Nurse situation. Holly's nurse is calling me atleast every other day for what seems like stupid things to me. I may be overreacting about this but I don't know. Today she called me & told me that Holly was having trouble breathing. I rushed up to the...

this may be a little off topic but I was reading another post & thought about it... how often do you change your childs toothbrush, I know the obvious, after every infection but what if the culture MRSA or Pa, should it be changed daily, should it be sterilized like the nebs? Im crazy & change...

This is going to sound pretty rediculous but I'm going to ask anyway...Holly has started the enzymes, her bm's have regulated & I think they are helping...problem now is that she takes them each seperately & after drinking the drink to get them down she tells me shes full after about 6-10 bites...

Ok-I don't know if many remember but my daughter was having a problem with constipation/loose stools...up until now she has never even touched an enzyme....so she had the little poop in a jar test done (eek that was GROSS) & the dr called & she needs to start enzymes. They are calling me a...

does anyone have bleeding that occurs during or after a sinus rinse with thier child? I am concerned about frequent nose bleeds--is this normal? when you get a nose bleed how much blood is normal & how much before I should get worried? I thought this was happening because of the sinus rinse but...

Please help me if you can-I don't want to feel alarmed about nothing. Holly has been pretty constipated for about a month now. we have given her a laxative, she has been doing the Miralax (about a week) & I have given her apple juice (normally helps her go within an hour). when she does go it...

Has anyone heard from Mary & how is Isaiah is doing? I am wondering about him. I hope that he is doing well & she is holdin up well.

Tricia is awake--Nate just posted a blog---please--keep this family in your prayers. If you don't pray keep them in your thoughts. Tricia is awake now & having difficulties communicating with Nate becuase of the trach which I am sure anyone could imagine is very difficult. Gwyneth has been...

Hello, I need some help with Miralax. Holly has NO digestive issues that pertain to CF. she is frequently constipated & getting very backed up. I think it may be due to all the probiotics she was taking while on abx, but anyways. I went & bought some miralax. It said not to use if you are under...

Well, Holly has had her PICC removed for around 36 hours & her arm is itchy & she says its burning--has anyone ever had this or is this normal????

Can someone please fill me in on what exactly they look for in a Bronchoscopy? Holly had one & the dr left me a vm & basically just said she has some sever inflamation & some mild inflamation. He also said that she had a thick film substance present in the tissue (maybe misunderstood by me) or I...

holly is in the hospital... i will update later as soon as i get more information.

Does anyone know if the 105 vest will fit onto the 104's compressor thingy??? I am asking because my VEST is blown up & someone on the site was very kind to offer to loan me her compressor but I don't know if my vest will fit the compressor. any help would be great.

Can someone please explain the difference to me? Is this similiar to her MRSA which doesn't actually go away but can be "dormant"? How will this affect her lungs in the long run vs. when it was non mucoid? sorry for all the questions but I just need some help understanding.

I found a news articly on CF & Ibuprofen used for inflamation. Holly takes zithro 3x weekly for inflamation. does anyone use Ibuprofen for inflamation? Does it work better than zithro? heres the link <a target=_blank class=ftalternatingbarlinklarge...

How do you guys sterilize your nebs while traveling? i'm taking a 10 hour drive