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**posted it here too, wondering if any of you have gone through this as a child?**** i know most cf'ers sweat ALOT!!! we have dealt with that issue since my daughters birth. but lately (last couple weeks) at night she is literally soaking wet with sweat,her pillow is soaked through to the other...

i know most cf'ers sweat ALOT!!! we have dealt with that issue since my daughters birth. but lately (last couple weeks) at night she is literally soaking wet with sweat,her pillow is soaked through to the other side, and her bed sheets feel like someone poured water on them. i have had to buy...

How long do you neb hypersal? sophia just started on it and it seems like it goes on "forever"....usually i shut it off at about 25 min, but it seems there is still alot coming out of the neb cup.

does any one have a current phone number for respirtech, i am having problems with my daughters vest and the numbers on the internet (800.793.1261/651.379.8999) arent working. thanks

does any one have a current phone number for respirtech, i am having problems with my daughters vest and the numbers on the internet (800.793.1261/651.379.8999) arent working. thanks

does any one have a current phone number for respirtech, i am having problems with my daughters vest and the numbers on the internet (800.793.1261/651.379.8999) arent working. thanks

I was just wondering if there are any other single parents who get NO support from the other parent AT ALL...no financial, no contact with cf child, etc... Just wondering how you all handle the schedule and stress of working and cf financially and emotionally. Im in need of some advice!!! <img...

ok, long story short (or as short as possible)....my daughter was pretty sick 2 weeks ago and was put on oral prednisone for one week (then taken off) and pulmicort .5mg/2ml 2x daily ongoing thru winter. in the past week and a half since she has recovered she has turned into a little monster...

Ok...so, we got bad news today. My daughter has Croup... what should I expect?? im sitting here tonight watching her breathe...really worried.

ok, so i understand that when they say on the cff.org website that 37yr of age is the MEDIAN age that it does not mean "average" age people live to with cf...but how can that be if this article states that today only 47% of people with cf live beyond the age of 18?????? (does this seem...

ok, so i understand that when they say on the cff.org website that 37yr of age is the MEDIAN age that it does not mean "average" age people live to with cf...but how can that be if this article states that today only 47% of people with cf live beyond the age of 18?????? (does this seem...

specifically intersted in the Basic-G germicide...it says it kills psuedomonas, staph a, mrsa, aspergillus, h1n1, etc, etc....just wondering if anyone has had any experience with this product??? can you spray it around kids? does it have an odor? thanks!

specifically intersted in the Basic-G germicide...it says it kills psuedomonas, staph a, mrsa, aspergillus, h1n1, etc, etc....just wondering if anyone has had any experience with this product??? can you spray it around kids? does it have an odor? thanks!

so excited, had to share!! my little one took her enzymes with water for the first time today!! swallowed them whole!! yippee!!! this could be good! one less thing (applesauce/spoon) to drag around!

i have tried everything to get my daughters slide show from photobucket on here and this is what i end up with....the first pic and the IMG link written around it????? what am i doing wrong??? i have tried posting every link they have on photobucket to the end of my sig and it either does this...

my daughter has been coughing only through the night and in early morning (this is new to her). her doc said she is trying to expel mucus plugs. she will be 2 the end of this month and i need suggestions on how to help her "get them out". her lungs seem very irritated (i assume from the dry air...

Ive been reading a few posts about the benefits of lavender for respiratory issues?? anyone try??

been reading alot recently about the effects of neutriophils and the role they play in cystic fibrosis. coinsidently a recent post has prompted me to ask if anyone has ever taken the liquid NAC, what were your results, is it safe for children, what has your doctor stated about it???

what do you do about chest pt when your child has a stomach bug?? my daughter is miserable and i am afraid to put her in her vest....although she cant technically "throw up" because of her nissan...when i tried she started wretching. but i am afraid to go a couple of days without cpt. need some...

I was thinking of getting my daughter a med id bracelet now that she is almost 2. Does anyone else have one for their child? What do you have inscribed on it??