Cystic Fibrosis Forum (EXP)

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  1. L

    How do you nicely avoid things

    How do you nicely tell folks... How do you keep from making people mad, when you don't feel comfortable taking your CF child to visit them? This is my in-laws house...which makes it harder. We have been having get togethers at our house, but are starting to get invites to their house. We avoid...
  2. L

    How did you educate everyone?

    <P>I was just wandering how you educated your family and friends about you or your child's CF?  Most people, I know, have no idea what CF is...much less what it takes to keep someone healthy.</P> <P> </P> <P>Did you sit folks down, make a little book, ect?</P> <P> </P>
  3. L

    Anyone else dreading the upcoming months?

    <P>The next few months are the favorites of most families...but dreaded by me.  I dread cold/flu season and I dread get togethers with family and friends...  Sad huh!?</P> <P> </P> <P>In the spring, summer, and early fall it seems easier...we all breathe a sigh of relief.  Dinner with...
  4. L

    SSDI

    I posted in the Family section, but some of you may know too...Can you get your child dissability? 
  5. L

    SSDI

    Do any of your children recieve Social Security Dissabilty?
  6. L

    Does anyone have AFLAC

    Do any of you have AFLAC.  There is a Critical Care Plan that will not eleminate you for having CF, but this particular plan will not cover ICU stays.  Would this really be worth paying for?  Doesnt look like it pays for regular or sick stays like Bronchs or IV's.  I was thinking if it wont pay...
  7. L

    Brasfield Score

    Do you know your Brasfield Score from your chest x-ray?  I am not even sure what this is or what it means.  Have any of you heard this?
  8. L

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    HEY...SO NEEDLESS TO SAY, I AM FREAKING OUT! I JUST FOUND OUT TODAY THAT THERE IS ANOTHER CF CHILD AT MY DAUGHTER'S ELEMENTARY SCHOOL. WHAT PRECAUTIONS DO WE NEED TO TAKE? MY DAUGHTER GOES TO A SMALL SCHOOL OF ONLY JUST 200-300 KIDS. OF COURSE THIS OTHER CHILD IS NOT IN HER SAME CLASSROOM...
  9. L

    Vent Filters...do you use them.

    Hey guys, I heard somewhere that it is a good idea to use those vent filters that fit under the vents in the floor of your home. Is this a good idea. It sounded good to me until an AC professional told me that it can prevent air flow and cause mold to grow in your duct work. Has anyone else...
  10. L

    Dirty public pools...

    We have a camper at the beach at a very nice, expensive camp site. It is permanant and has a deck, ect. The camp site has an underground pool with a water slide. The pool has always been fairly clean (never upto my standards, but ok) This year the water is clear, but I can see along the...
  11. L

    What preventative measures do you take?

    I have always gone far an beyond what is called to keep Lexi healthy. I truely believe that prevention is the key and am at times a little OCD with things. I was really just wanting some feedback from you all of what measures you take to keep yourself or child healthy. I am looking for things...
  12. L

    What preventative measures do you take.

    I have always gone far an beyond what is called to keep Lexi healthy. I truely believe that prevention is the key and am at times a little OCD with things. I was really just wanting some feedback from you all of what measures you take to keep your child healthy. I am looking for things like...
  13. L

    What preventative measures do you take.

    I have always gone far an beyond what is called to keep Lexi healthy. I truely believe that prevention is the key and am at times a little OCD with things. I was really just wanting some feedback from you all of what measures you take to keep your child healthy. I am looking for things like...
  14. L

    Mold in my parent's home.

    My parents are remodeling their home. They live in a house that my great grandfather built and my grandfather grew up in. It is georgeous and very special. They have been slowly remodeling it for the past few years. They have recently done some major work in the largest part of the house...
  15. L

    How do you keep family updated?

    Hey guys, it's been a while... I am sooo happy to say that Lexi had her CF check up today and recieved the best report in sooo long! We are extatic! We have made so many changes: no house plants, no plug-ins or air fresheners, unscented soap, unscented detergents and dryer sheets, unscented...
  16. L

    Lexi is not getting well, so frustrating.

    My Lexi was in the hospital this summer and did 5-6 weeks of IV antibiotics. Her cough never completely cleared up like we had hoped, but her next couple of cultures came back clear of the Pseudomonas and Orsa. We thought we were in the clear and the tune up was a success, but now I am...
  17. L

    Miley Cyrus' CF tattoo!

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.nydailynews.com/gossip/2009/12/05/2009-12-05_miley_cyrus_shows_off_new_just_breathe_tattoo_.html ">http://www.nydailynews.com/gos..._breathe_tattoo_.html </a> Check it out... Miley Cyrus' Just Breathe tattoo she had done in honor...
  18. L

    Live Christmas Trees

    What is your view on visiting homes with live trees?
  19. L

    Lexi has the flu...

    Please pray for little Lexi, she has the flu. My husband was sick over the weekend with the flu. Her CF doctors started her on Tamiflu and of course I sent her to stay with my sister for 2 days. She comes home today with cough and fever. I assume it is H1N1, b/c she was vaccinated for the...
  20. L

    Worried about my Lexi...

    I am wondering if it might be time for some more IV's. We were in the hospital in June and did 5 weeks of Ceftazadine and Vanc. Lexi had ORSA and lots of Psuedomonas when they did her Bronch. Her persitant cough, which is the reason they did her Bronch only went away for a few weeks<img...
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