Search results

Here's a link to the surgeon. Charles Hoopes. Click on the link below and read his Curriculum Vitae. You'll have your choice of articles to read and while he may not be as intelligent/educated as your wife in the medical field, he seems to be a pretty intelligent fellow.....my guess is that...

Oh I see. So, while others post precautions of their centers, those post are not "irresponsible". While my posting a differing post is. The "life in a bubble" is a figure of speech used by the transplant surgeon. That is a fact. I'm assuming you weren't there for that conversation. I would...

I read your reply and respect your concerns. I found myself getting mad a bit then realized that you're not a bad fella at all. You care about others with CF and those that have been transplanted. I get it. I'm simply reporting fact. Her team didn't want her to live in a bubble. Maybe...

My Julie's doc didn't believe that he transplanted her to live life in a bubble. There is nothing that she can't eat. I wrote her story....Julie: The Courage to Breathe. All proceeds to the CF Foundation. Take a read. It's available everywhere. Enjoy the 2nd chance my fellow CF spouse...

Guys/Gals, 2 years ago, Julie's Dream Team challenged conventional wisdom. Do we beg people to give cash....write a check to the CF Foundation? Or........Could we ask people to spend their money on themselves, helping to find a cure for Cystic Fibrosis at the same time? We NEVER thought that...

http://www.sdentertainer.com/lifestyle/health-wellness/cystic-fibrosis-cure-getting-closer-at-san-diego-lab/ PUSH FORWARD. WE ARE CLOSE!!! Roy E. Ice Julie's Dream Team www.juliesdreamteam.com

Just wanted to show you all that Lulu.com has sent the first royalty check for "Julie: The Courage to Breathe" to the CF Foundation. Amazon.com is next to report out. I think everyone whose life this disease touches should pick up a copy. It's available on Kindle and Nook as well. Excerpts...

112. That's the number of pages in Julie: The Courage to Breathe. Sales of Julie's amazingly courageous story have been great but I find myself thinking how odd it is that, of all of those in the world that want a cure for Cystic Fibrosis...and my willingness to give 100% of all royalties to...

Thanks LL. I wouldn't consider myself to be an author but I'm a husband that has lived with this disease in my life. This book is absolutely truthful and written from the heart. Thanks for picking up a copy. Reading a book....something as simple as reading a book can help find the cure. I...

Guys, For the past 20 years, I've had CF be a part of my life. Reading this forum, while helpful will never lead to a cure. It's going to take money for research....and you know we're close to CF standing for Cure Found. For goodness sakes...pick up a copy of my Julie's story: Julie: The...

Jenny, I watched this miracle unfold from a foot away. Julie's story is AMAZING! I would never consider myself an author but I wrote this book from the heart. I hate CF. I hate it with everything that is within me and I learned how to beat it. We can buy time until the cure is found (and...

All, For those that don't know, I wrote my Julie's story of Cystic Fibrosis and her ultimate transplant. I did so because I believe those with CF deserve a cure. I have directed the publisher to direct 100% of my author royalties to the CF Foundation. Julie: The Courage to Breathe is...

I've done the math folks. There are 9 million of us that LOVE the 30,000 (70,000 world-wide). I've seen the pain associated with the loss of loved ones to this disease. Hell, I was inches away from being one of those that lost a loved one to CF. By God's grace, it didn't happen. I spoke...

I wanted to tell you a quick story about a fat kid. That fat kid is me, Roy Ice. When I was 16, I met a girl that coughed. She coughed A LOT. Eight years later, I would marry the girl that saw something special in my heart. Eight months after the marriage, we learned that my beautiful...

http://www.wlky.com/Hometown-Heroes-Roy-and-Julie-Ice/-/9366718/18474742/-/7k2aehz/-/index.html#.URWSJLRFP1M.facebook

Julie's story is available. 100% of my author royalties are directed to the CF Foundation to help get us all closer to the cure we desperately need. I hope you all enjoy it. When purchased through http://www.lulu.com/spotlight/curecf the donation to the CF Foundation is greater than retail...

Thanks Stacey. It's been a tough but wonderful year. Being a caregiver for a cystic is tough work. Being a caregiver for a cystic that's received new lungs is twice as difficult at first but as life as settled down a bit, the work lessens. We're ready to kick finding a cure into high gear...

All, Over a year ago, I became a member of CysticFibrosis.com. I shared the creation of Julie's Dream Team with you all. A team that does nothing but drink beer and eat pizza/wings. To date, our methods of asking those to "Live life...help others live theirs" has generated over $250,000 for...

All, Wanted to let you all know that I've been asked to share my Julie's story of battle with CF and her recent double-lung transplant at the National Convention being held by Buffalo Wild Wings in the first week of March. Why? In October of 2011, I asked our Louisville area stores (8 total) to...

All, Wanted to let you all know that I've been asked to share my Julie's story of battle with CF and her recent double-lung transplant at the National Convention being held by Buffalo Wild Wings in the first week of March. Why? In October of 2011, I asked our Louisville area stores (8 total) to...