Search results

Our insurer is pulling out of Obamacare, too (my husband has CF). And, Vanderbilt (where he see's his CF doctors, ENT and rheumatologist) is not accepting any Obamacare plans in 2017.

LL, The quick onset of moderate to severe joint pain, pustules on his elbows, extreme fatigue, new cavitary nodules found on CT and low grade fevers in addition to lab results mentioned above; PR3 of 402 are leading the doctors to this diagnosis. Also, loss of appetite and weight. In the spring...

My husband is 38 years old, diagnosed at 17 with CF. He has had relatively good health up until the last year. Last year he was on several rounds of po antibiotics and 1 round of IVs in October. This year he has been ok, but with extreme fatigue. In mid August he started having moderate to...

My husband is 33.  No, he has never been hospitalized for a pulmonary exacerbation.  He has been hospitalized 3 times for pancreatitis.  <br><br>No, we do not have children.  We've had an extremely difficult time adopting (domestic and international).  My husband's CF team wrote a fantastic...

My husband is 33. No, he has never been hospitalized for a pulmonary exacerbation. He has been hospitalized 3 times for pancreatitis. <br><br>No, we do not have children. We've had an extremely difficult time adopting (domestic and international). My husband's CF team wrote a fantastic letter...

My husband is 33. No, he has never been hospitalized for a pulmonary exacerbation. He has been hospitalized 3 times for pancreatitis. <br><br>No, we do not have children. We've had an extremely difficult time adopting (domestic and international). My husband's CF team wrote a fantastic letter...

No, Bill, unfortunately not.  I've seen your postings in the past and noticed you have V562I.  My husband as well as our genetic counselor have both called Ambry to confirm that I am a carrier of V562L and not V562I.  Although, there is not a lot of information out there, I've been able to find...

No, Bill, unfortunately not. I've seen your postings in the past and noticed you have V562I. My husband as well as our genetic counselor have both called Ambry to confirm that I am a carrier of V562L and not V562I. Although, there is not a lot of information out there, I've been able to find...

No, Bill, unfortunately not. I've seen your postings in the past and noticed you have V562I. My husband as well as our genetic counselor have both called Ambry to confirm that I am a carrier of V562L and not V562I. Although, there is not a lot of information out there, I've been able to find...

Sandy, <br><br>My husband is remarkably "healthy" for a CF patient, such a blessing.  He was diagnosed at the age of 17 and has led a very normal life.  His physician has told him that he has a mild case and should expect to live a normal lifespan.  Thankfully, he has never been hospitalized by...

Sandy, <br><br>My husband is remarkably "healthy" for a CF patient, such a blessing. He was diagnosed at the age of 17 and has led a very normal life. His physician has told him that he has a mild case and should expect to live a normal lifespan. Thankfully, he has never been hospitalized by a...

Sandy, <br><br>My husband is remarkably "healthy" for a CF patient, such a blessing. He was diagnosed at the age of 17 and has led a very normal life. His physician has told him that he has a mild case and should expect to live a normal lifespan. Thankfully, he has never been hospitalized by a...

Hello, I am relatively new to this site.  My husband has CF and we recently found out that I am a carrier of V562L.  No one knows anything about this mutation.  I can only find one article about a young boy with a mild case of CF, but his other mutation is not known (at least when the article...

Hello, I am relatively new to this site. My husband has CF and we recently found out that I am a carrier of V562L. No one knows anything about this mutation. I can only find one article about a young boy with a mild case of CF, but his other mutation is not known (at least when the article was...

Hello, I am relatively new to this site. My husband has CF and we recently found out that I am a carrier of V562L. No one knows anything about this mutation. I can only find one article about a young boy with a mild case of CF, but his other mutation is not known (at least when the article was...