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Anyone with mutation V562L?

M

mmw

New member
My husband is 33. No, he has never been hospitalized for a pulmonary exacerbation. He has been hospitalized 3 times for pancreatitis. <br><br>No, we do not have children. We've had an extremely difficult time adopting (domestic and international). My husband's CF team wrote a fantastic letter about him and his prognosis. We still, however; have had so many programs deny us because of his diagnosis of CF. We have started looking into trying to pregnant, but recently learned that I am a CF carrier. I'm trying everything in power to learn about my mutation, V562L, to try to make the best decision possible.<br><br>I hope this helps. Good luck to you and your son.<br>
 
F

ffevziyildiz

New member
<P>Dear mmw;</P>
<P> </P>
<P>Firstly thanks for your answer. I said that my son is 14 months old and he is normally now but you know we are concern about his future life then we ask a lot of thing when we meet with a CF patient. You said your husband has been hospitalized 3 times for pancreatitis. How was it increase. How are his lungs. And we will be very happy if he offer we something for our son. </P>
<P> </P>
<P>Best regards.  </P>
 
F

ffevziyildiz

New member
<P>Dear mmw;</P>
<P></P>
<P>Firstly thanks for your answer. I said that my son is 14 months old and he is normally now but you know we are concern about his future life then we ask a lot of thing when we meet with a CF patient. You said your husband has been hospitalized 3 timesfor pancreatitis. How was it increase. Howare his lungs.And we will be very happy ifhe offer wesomething for our son.</P>
<P></P>
<P>Best regards. </P>
 
F

ffevziyildiz

New member
<P>Dear mmw;</P>
<P></P>
<P>Firstly thanks for your answer. I said that my son is 14 months old and he is normally now but you know we are concern about his future life then we ask a lot of thing when we meet with a CF patient. You said your husband has been hospitalized 3 timesfor pancreatitis. How was it increase. Howare his lungs.And we will be very happy ifhe offer wesomething for our son.</P>
<P></P>
<P>Best regards. <BR></P>
 
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