What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. C

    any parents out there dealing with CF adult children that have given up

    My son is 20. He is depressed. He failed out of college in the winter. He seems completely un-motivated at this point. We tried a drug study and it didn't seem to help. No drugs or alcohol problems. Apathetic towards school, his doctors and life in general to a point. You are not alone. Most of...
  2. C

    Do you know any information on phase2Trial

    My sons cohort 2 809/770 study ends the end of this month, If that helps.
  3. C

    Do you know any information on phase2Trial

    My sons cohort 2 809/770 study ends the end of this month, If that helps.
  4. C

    vx-661 recruiting

    most drugs get approved in phase 4. 770 got approved in phase 3. phase 2 of the 809/770 trial has 2 cohorts. my son is in cohort 2. data will be presented in the fall most likely. 809/770 cohort 1 has already presented their data last year in the fall. 661 is just opening in phase 2. no idea if...
  5. C

    vx-661 recruiting

    most drugs get approved in phase 4. 770 got approved in phase 3. phase 2 of the 809/770 trial has 2 cohorts. my son is in cohort 2. data will be presented in the fall most likely. 809/770 cohort 1 has already presented their data last year in the fall. 661 is just opening in phase 2. no idea if...
  6. C

    vx-661 recruiting

    Yes. They directed me to the correct email address. The trial site has the wrong address.
  7. C

    vx-661 recruiting

    Yes. They directed me to the correct email address. The trial site has the wrong address.
  8. C

    vx-661 recruiting

    emailed the correct address 2 days ago. no response.
  9. C

    vx-661 recruiting

    emailed the correct address 2 days ago. no response.
  10. C

    809 Trial

    My son is in the 809/770 cohort 2 trial. I travel (drive) 500 miles one way to the center. First 3 times are 1 day. We get there the day before, then leave between 12 and 3pm from an 8am appointment. 1st visit is paperwork, blood,sweat and no drug. 2nd visit is the same before and after you...
  11. C

    809 Trial

    My son is in the 809/770 cohort 2 trial. I travel (drive) 500 miles one way to the center. First 3 times are 1 day. We get there the day before, then leave between 12 and 3pm from an 8am appointment. 1st visit is paperwork, blood,sweat and no drug. 2nd visit is the same before and after you...
  12. C

    Anybody have any information about Vertex 661?

    FYI. Typo on the email I'm told. Should be medicalinfo@vrtx.com, not medical_info@vrtx.com . Called them yesterday.
  13. C

    Anybody have any information about Vertex 661?

    FYI. Typo on the email I'm told. Should be medicalinfo@vrtx.com, not medical_info@vrtx.com . Called them yesterday.
  14. C

    vx-661 recruiting

    Thanks. Called that number. Typo on the email I'm told. Should be medicalinfo@vrtx.com, not medical_info@vrtx.com .
  15. C

    vx-661 recruiting

    Thanks. Called that number. Typo on the email I'm told. Should be medicalinfo@vrtx.com, not medical_info@vrtx.com .
  16. C

    vx-661 recruiting

    I tried emailing links on the site again today. Email wont go through. Had the same results a few weeks ago. My son is a double delta and in a trial now with 809. I would switch him after a month but no dice. Also this is still not listed on the CF website trial channel. Anyone have any luck...
  17. C

    vx-661 recruiting

    I tried emailing links on the site again today. Email wont go through. Had the same results a few weeks ago. My son is a double delta and in a trial now with 809. I would switch him after a month but no dice. Also this is still not listed on the CF website trial channel. Anyone have any luck...
  18. C

    809

    I have some info here: <a href="messageview.cfm?catid=5&threadid=615856">http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=615856</a>
  19. C

    809

    I have some info here: <a href="messageview.cfm?catid=5&threadid=615856">http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=615856</a>
  20. C

    809

    http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=615856
Top