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I'm glad to see some of you also have issues with your ports (thought mine was just very badly done). My dd doesnt have a port anymore as she hasnt needed IV's for years. When they offered me the option of having a port for my Chemotherapy I gladly accepted, knowing how much better it was for...

Mesureinlove - sounds like you're lucky enough to have an attentive dr. Don't you hate it when you want answers and all they say is.... "its a CF thing" I wish the Dr's would liten more. When you're asking for answers it's usually because you know the symptoms are unusual for you, or you feel...

Mesureinlove - sounds like you're lucky enough to have an attentive dr. Don't you hate it when you want answers and all they say is.... "its a CF thing" I wish the Dr's would liten more. When you're asking for answers it's usually because you know the symptoms are unusual for you, or you feel...

Mesureinlove - sounds like you're lucky enough to have an attentive dr. <br /> <br />Don't you hate it when you want answers and all they say is.... "its a CF thing" <br /> <br />I wish the Dr's would liten more. When you're asking for answers it's usually because you know the symptoms are...

When M was about 14, a sonar was done to check an irregular heart beat (it sort of skipped a beat now and then). They found that one of her heart valves was not closing properly and said that her heart was functioning at 29%. The doc started her on heart meds & said that she would have to...

When M was about 14, a sonar was done to check an irregular heart beat (it sort of skipped a beat now and then). They found that one of her heart valves was not closing properly and said that her heart was functioning at 29%. The doc started her on heart meds & said that she would have to...

When M was about 14, a sonar was done to check an irregular heart beat (it sort of skipped a beat now and then). They found that one of her heart valves was not closing properly and said that her heart was functioning at 29%. The doc started her on heart meds & said that she would have to...

M uses Creon 25000, and I've just checked there's definately no smell. Maybe it's something to do with the packaging that yours comes in. Ours are in plastic bottles.

M uses Creon 25000, and I've just checked there's definately no smell. Maybe it's something to do with the packaging that yours comes in. Ours are in plastic bottles.

M uses Creon 25000, and I've just checked there's definately no smell. Maybe it's something to do with the packaging that yours comes in. Ours are in plastic bottles.

Hi not sure if this will help - in our church we "pass the peace" which means we sort of grip or shake hands with the people near us (and being touchy feely people) some like to hug. M automatically sticks out her hands to avoid the hug, and after all this is all over she quickly rubs her...

Hi not sure if this will help - in our church we "pass the peace" which means we sort of grip or shake hands with the people near us (and being touchy feely people) some like to hug. M automatically sticks out her hands to avoid the hug, and after all this is all over she quickly rubs her...

Hi not sure if this will help - in our church we "pass the peace" which means we sort of grip or shake hands with the people near us (and being touchy feely people) some like to hug. M automatically sticks out her hands to avoid the hug, and after all this is all over she quickly rubs her...

A very happy birthday to you!!! Every birthday is special when you have CF. Monique turned 25 last week I just cant believe how the time has flown. We celebrate in style as usual with a family barbecue. One good thing about CF - most people with CF look many years younger than they really...

A very happy birthday to you!!! Every birthday is special when you have CF. Monique turned 25 last week I just cant believe how the time has flown. We celebrate in style as usual with a family barbecue. One good thing about CF - most people with CF look many years younger than they really...

A very happy birthday to you!!! Every birthday is special when you have CF. <br />Monique turned 25 last week I just cant believe how the time has flown. We celebrate in style as usual with a family barbecue. <br />One good thing about CF - most people with CF look many years younger than...

Hi Rachel, I'm so sorry you're feeling so low. You will find lots of caring friends on this site. Has your doctor done genetic testing for CF? If so are you attending a CF clinic. This is very important in order to get the correct treatment. Where are you from? Maybe someone online can put...

Hi Rachel, I'm so sorry you're feeling so low. You will find lots of caring friends on this site. Has your doctor done genetic testing for CF? If so are you attending a CF clinic. This is very important in order to get the correct treatment. Where are you from? Maybe someone online can put...

Hi Rachel, I'm so sorry you're feeling so low. You will find lots of caring friends on this site. Has your doctor done genetic testing for CF? If so are you attending a CF clinic. This is very important in order to get the correct treatment. Where are you from? Maybe someone online can put...

It's so exiting having all the tourists and players right here in our back-yard. My money's on Germany (literaly! I backed them in our office draw) so they'd better win. Though Netherlands has played very well too.