Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. M

    (What's The) Amount of Salt lost in sweat

    Our docs tell us that although CFrs don't perspire more they lose about 5 x the amount of salt. They also say a CFr can never have too much salt. Monique finds that when the temp gets to around 35 C and above that she needs extra salt + water otherwise she becomes dizzy. Though with her salt...
  2. M

    tingly feeling

    The tingly feeling could be nothing or it could be a warning sign. If you have developed diabetes and it is not treated, you could lose a lot of weight and jeopardise your good health. I say listen to your body. Just my two cents worth.
  3. M

    Any African-Americans with CF?

    Hi My best friend is a black South African and her 12 year old daughter has CF. Our genetics experts here rekon that 1 in 75 black South African's are carriers but those with CF are not diagnosed unless they are referred to one of the main teaching hospitals.
  4. M

    africa

    Thats great Maggie, hope you have a fantastic time. I'm sure all the sunshine will do your health a lot of good too.
  5. M

    Question about when to take meds...

    We don't have Pulmozyme or Dnase here but have been using 5% saline for a number of years. Our doctor reccomend that you use the boncholdialators before using the HS because this help prevent irritation. It's also good to take these before your Physio.
  6. M

    UGGGGGGGGGGGGGGGGGGGGGGG

    Jennifer I'm so sorry you're having a bad time. I am also supporting my daughter, and because there is not much that she can do in the way of employment, I will always have to do so. God gave her to me and I just pray that I will be aroung as long as she needs me. It's a parent's duty to...
  7. M

    Factor V Leiden

    Hi Snow I have been treated for suspected V Leiden. My brother has it. This is also a hereditory thing. I'm sorry your daughter has this (as if CF isnt enough!). What I do know is you must never use a birth control pill as this can cause the clotting to get worse. I hope things go better...
  8. M

    Africa

    Hi there I'm so glad for you! I hope you'll have a wonderful time. Tanzania is really beautiful and I hear the people there are very friendly.
  9. M

    trouble keeping house with cf

    That's terrible! Here they would only come and check if there was like really wild parties or strange smell's or water overflowing somewhere. Then they would still have to put a letter under the door or call you first to arrange it. If for some reason the lessee needs to gian access without...
  10. M

    trouble keeping house with cf

    That's terrible! Here they would only come and check if there was like really wild parties or strange smell's or water overflowing somewhere. Then they would still have to put a letter under the door or call you first to arrange it. If for some reason the lessee needs to gian access without...
  11. M

    The super duper supplement thread!

    Yow!! you guys sure take lots of supliments. How do you afford it? Monique only takes a multivitamin and sometimes Omega 3 and 6 oils. She used to use hypertonic Saline but doesn't need any nebs now. I buy immune boosters, vitamins and Thyme oil for my African friend's daughter because she...
  12. M

    The super duper supplement thread!

    Yow!! you guys sure take lots of supliments. How do you afford it? Monique only takes a multivitamin and sometimes Omega 3 and 6 oils. She used to use hypertonic Saline but doesn't need any nebs now. I buy immune boosters, vitamins and Thyme oil for my African friend's daughter because she...
  13. M

    Clinic visits?

    My daughter has to go every 3 months when she's well, if not every months, but we're lucky our clinic is just 20 mins away.
  14. M

    Clinic visits?

    My daughter has to go every 3 months when she's well, if not every months, but we're lucky our clinic is just 20 mins away.
  15. M

    Worried Mom

    Hi Kaitsmom I would say take her to the doctor. There's nothing like a mother's instinct to tell you when you child is not well. Don't worry about her having just been to the doctor. Monique also used to always get sick after we had been to the clinic. Or otherwise she would get sick before...
  16. M

    Worried Mom

    Hi Kaitsmom I would say take her to the doctor. There's nothing like a mother's instinct to tell you when you child is not well. Don't worry about her having just been to the doctor. Monique also used to always get sick after we had been to the clinic. Or otherwise she would get sick before...
  17. M

    Why Are Cough Suppressants Bad For CF?

    Our Doc's here have told us that CF'rs are not to touch any kind of cough suppressant and codene based pain killers.
  18. M

    Why Are Cough Suppressants Bad For CF?

    Our Doc's here have told us that CF'rs are not to touch any kind of cough suppressant and codene based pain killers.
  19. M

    bacteria in ice machines

    Have you ever been to a public toilet and put your bag on the floor? Apparently the bacteria and feacial matter can get picked up that way - gross!!
  20. M

    bacteria in ice machines

    Have you ever been to a public toilet and put your bag on the floor? Apparently the bacteria and feacial matter can get picked up that way - gross!!
Top