Cystic Fibrosis Forum (EXP)

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  1. S

    Too all cfers! Possible theme song to the cystic fibrosis community!

    Thanks! This video hit me hard as well. It does a great job bring awareness for cf. LETS LET CF STAND FOR CURE FOUND!!!
  2. S

    Too all cfers! Possible theme song to the cystic fibrosis community!

    Thanks! This video hit me hard as well. It does a great job bring awareness for cf. LETS LET CF STAND FOR CURE FOUND!!!
  3. S

    Too all cfers! Possible theme song to the cystic fibrosis community!

    Thanks! This video hit me hard as well. It does a great job bring awareness for cf. <br /> <br />LETS LET CF STAND FOR CURE FOUND!!!
  4. S

    Too all cfers! Possible theme song to the cystic fibrosis community!

    Here is a youtube video of the song "Just breathe" by Pearl Jam. This is a graphic video. I dedicate this to the whole cf community! <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=r_2W45Cqh2E ">http://www.youtube.com/watch?v=r_2W45Cqh2E </a> PLEASE WATCH!!!
  5. S

    Too all cfers! Possible theme song to the cystic fibrosis community!

    Here is a youtube video of the song "Just breathe" by Pearl Jam. This is a graphic video. I dedicate this to the whole cf community! <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=r_2W45Cqh2E ">http://www.youtube.com/watch?v=r_2W45Cqh2E </a> PLEASE WATCH!!!
  6. S

    Too all cfers! Possible theme song to the cystic fibrosis community!

    Here is a youtube video of the song "Just breathe" by Pearl Jam. This is a graphic video. <br /> <br />I dedicate this to the whole cf community! <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=r_2W45Cqh2E...
  7. S

    Throwing up with neb. treatments

    Thanks. I am allergic to prilosec, it causes me to have severe stomach cramps. But I can ask about the Reglan. I do have GERD too, so that probably doesn't help. Thank you for the suggestion. I will ask my doctor about it. I also take ranitidine daily too. The acid may be a factor. I will keep...
  8. S

    Throwing up with neb. treatments

    Thanks. I am allergic to prilosec, it causes me to have severe stomach cramps. But I can ask about the Reglan. I do have GERD too, so that probably doesn't help. Thank you for the suggestion. I will ask my doctor about it. I also take ranitidine daily too. The acid may be a factor. I will keep...
  9. S

    Throwing up with neb. treatments

    Thanks. I am allergic to prilosec, it causes me to have severe stomach cramps. But I can ask about the Reglan. I do have GERD too, so that probably doesn't help. Thank you for the suggestion. I will ask my doctor about it. I also take ranitidine daily too. The acid may be a factor. I will keep...
  10. S

    Throwing up with neb. treatments

    I have had to only do neb. treatments in the hospital or at the cf center because each treatment, my body gets so worked up that I throw up and I end up not being able to finish it. I have told my dr.s but they don't have any suggestions. I need to be able to do my pulmazyme, and xopenex, and...
  11. S

    Throwing up with neb. treatments

    I have had to only do neb. treatments in the hospital or at the cf center because each treatment, my body gets so worked up that I throw up and I end up not being able to finish it. I have told my dr.s but they don't have any suggestions. I need to be able to do my pulmazyme, and xopenex, and...
  12. S

    Throwing up with neb. treatments

    I have had to only do neb. treatments in the hospital or at the cf center because each treatment, my body gets so worked up that I throw up and I end up not being able to finish it. I have told my dr.s but they don't have any suggestions. I need to be able to do my pulmazyme, and xopenex, and...
  13. S

    CF?

    I agree. You should get to a cf center as soon as possible. Just because you have some good years doesn't mean you don't have cf. The symptoms you described are that of a cf patient. The accredited cf centers have other resources that help patients who don't have insurance. There are plenty of...
  14. S

    CF?

    I agree. You should get to a cf center as soon as possible. Just because you have some good years doesn't mean you don't have cf. The symptoms you described are that of a cf patient. The accredited cf centers have other resources that help patients who don't have insurance. There are plenty of...
  15. S

    CF?

    I agree. You should get to a cf center as soon as possible. Just because you have some good years doesn't mean you don't have cf. The symptoms you described are that of a cf patient. The accredited cf centers have other resources that help patients who don't have insurance. <br /> <br />There...
  16. S

    New User: My Fiance has CF She is 28. Any similar scenarios?

    CONGRATS!!! Welcome to the cf community. I am a fellow cfer. No your not too old. We have pretty much the same chances as anyone else. Everything is based on individual cases of cf. In General we are just as capable to being parents. We may have some health maintenance we have to do, but so...
  17. S

    New User: My Fiance has CF She is 28. Any similar scenarios?

    CONGRATS!!! Welcome to the cf community. I am a fellow cfer. No your not too old. We have pretty much the same chances as anyone else. Everything is based on individual cases of cf. In General we are just as capable to being parents. We may have some health maintenance we have to do, but so...
  18. S

    New User: My Fiance has CF She is 28. Any similar scenarios?

    CONGRATS!!! <br />Welcome to the cf community. I am a fellow cfer. No your not too old. We have pretty much the same chances as anyone else. Everything is based on individual cases of cf. In General we are just as capable to being parents. We may have some health maintenance we have to do, but...
  19. S

    7 year old Conner Jones cystic fibrosis/prune belly syndrome!

    7 year old Conner had cystic fibrosis/prune belly syndrome! He lost his battle last night. I pray Blessings on his family and friends. BREATHE EASY CONNER!!! God bless you, you'll always be remembered !!! Fly high and spread your wings and play like the little boy you couldn't be here! Hey...
  20. S

    7 year old Conner Jones cystic fibrosis/prune belly syndrome!

    7 year old Conner had cystic fibrosis/prune belly syndrome! He lost his battle last night. I pray Blessings on his family and friends. BREATHE EASY CONNER!!! God bless you, you'll always be remembered !!! Fly high and spread your wings and play like the little boy you couldn't be here! Hey...
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