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I think the main thing is my children. I sometimes worry about leaving them without a dad due to cf. Its hard to not think about the future having children. My wifes dad died at 42 from a heartattack in 1998 and I experienced what I sometimes worry about first hand....

Hey all, just need to post since I havent been here for a while. Im still hanging in there and chugging along. Just turned 35 on thursday, still with my 32% lung function and moving every day like theres no tomorrow. Anyway, recently my wife and I have noticed issues that have been around for a...

Just got a call today about a program where I can start taking the vx770 now. Going for bloodwork, doing paperwork, and I should be on it in too weeks. Cant wait to see what it does to these old lungs. Kevin

Just got a call today about a program where I can start taking the vx770 now. Going for bloodwork, doing paperwork, and I should be on it in too weeks. Cant wait to see what it does to these old lungs. Kevin

Well if I go into the hosp I will see the other Dr. H for my attending. I have an appt with my family dr to see what I can do about this depression. Also I do a duoneb before all my tx's and before I go to the gym. I have noticed that since doing my vest and tx's more my pulse ox is up at...

Well if I go into the hosp I will see the other Dr. H for my attending. I have an appt with my family dr to see what I can do about this depression. Also I do a duoneb before all my tx's and before I go to the gym. I have noticed that since doing my vest and tx's more my pulse ox is up at...

Well if I go into the hosp I will see the other Dr. H for my attending. I have an appt with my family dr to see what I can do about this depression. Also I do a duoneb before all my tx's and before I go to the gym. I have noticed that since doing my vest and tx's more my pulse ox is up at...

If you read my last post, my fev1 is down in the mid 20's. Its weird because I still can do everything I did before. I have started doing the treatments I did before, harder. It now seems that CF is taking over my life, and I keep thinking of what I have read about transplants. I was sick in...

If you read my last post, my fev1 is down in the mid 20's. Its weird because I still can do everything I did before. I have started doing the treatments I did before, harder. It now seems that CF is taking over my life, and I keep thinking of what I have read about transplants. I was sick in...

If you read my last post, my fev1 is down in the mid 20's. Its weird because I still can do everything I did before. I have started doing the treatments I did before, harder. It now seems that CF is taking over my life, and I keep thinking of what I have read about transplants. I was sick in...

I spoke to the Dr today. Said im not falling of a cliff. I'm steady and am staying where I am/have been at since July. Were going to try Cayston since I've never had it. It should help me improve a bit. I have reactive airways too and I was very/have been very tight, so the prednisone...

I spoke to the Dr today. Said im not falling of a cliff. I'm steady and am staying where I am/have been at since July. Were going to try Cayston since I've never had it. It should help me improve a bit. I have reactive airways too and I was very/have been very tight, so the prednisone...

I spoke to the Dr today. Said im not falling of a cliff. I'm steady and am staying where I am/have been at since July. Were going to try Cayston since I've never had it. It should help me improve a bit. I have reactive airways too and I was very/have been very tight, so the prednisone...

OK yes you've managed to accomplish scaring the crap out of me. Thank you. I dont know what to do here. I have been in the 40's and 30's for the last 5 or so years. I am having major anxiety and depression over this whole situation. Shouldn't my Dr have mentioned this to me before?

OK yes you've managed to accomplish scaring the crap out of me. Thank you. I dont know what to do here. I have been in the 40's and 30's for the last 5 or so years. I am having major anxiety and depression over this whole situation. Shouldn't my Dr have mentioned this to me before?

OK yes you've managed to accomplish scaring the crap out of me. Thank you. I dont know what to do here. I have been in the 40's and 30's for the last 5 or so years. I am having major anxiety and depression over this whole situation. Shouldn't my Dr have mentioned this to me before?

I havent been in the hospital since jan of 07. Ive been steady since then but I go up and down in numbers, but i never come back up as high as I was. I dont feel bad at all. Its weird. I did this 2 times where I desat'ed. I dont do it at the gym though. I think it may be anxiety induced...

I havent been in the hospital since jan of 07. Ive been steady since then but I go up and down in numbers, but i never come back up as high as I was. I dont feel bad at all. Its weird. I did this 2 times where I desat'ed. I dont do it at the gym though. I think it may be anxiety induced...

I havent been in the hospital since jan of 07. Ive been steady since then but I go up and down in numbers, but i never come back up as high as I was. I dont feel bad at all. Its weird. I did this 2 times where I desat'ed. I dont do it at the gym though. I think it may be anxiety induced...

My fev 1 is 23%. Lovely huh?