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So my daughter is one week old today. She had bowel surgery to fix complicated meconium ileus on Tuesday last week and now is eating and pooping. My question is what do cf babies poop look like before starting enzymes? My son had multiple surgerys, had an ileostomy, and didn't poop normally for...

So my daughter is one week old today. She had bowel surgery to fix complicated meconium ileus on Tuesday last week and now is eating and pooping. My question is what do cf babies poop look like before starting enzymes? My son had multiple surgerys, had an ileostomy, and didn't poop normally for...

Sorry for the delay. What a week it has been! So Maggie had surgery for complicated meconium ileus on Tuesday and we finally got the okay yesterday (Friday) to start pedialyte feedings. She has been on breast milk almost a full day now. She has been bottling good but started out shakey enough...

Sorry for the delay. What a week it has been! So Maggie had surgery for complicated meconium ileus on Tuesday and we finally got the okay yesterday (Friday) to start pedialyte feedings. She has been on breast milk almost a full day now. She has been bottling good but started out shakey enough...

Update: My daughter was born yesterday morning (Jan 23rd, 4 weeks early) and had surgery today for suspected simple meconium ileus. Well surgery showed complex meconium ileus. She is out of surgery, does not have an ileostomy due to obstruction being to close to the stomach. The surgeon removed...

Update: My daughter was born yesterday morning (Jan 23rd, 4 weeks early) and had surgery today for suspected simple meconium ileus. Well surgery showed complex meconium ileus. She is out of surgery, does not have an ileostomy due to obstruction being to close to the stomach. The surgeon removed...

We don't have to pay it right now since my son has medicare as a secondary insurance, but not sure what we are going after my daughter is born and she starts on pulmozyme. Hopefully the program my CF clinic told me about that helps make copays affordable will help. I am furious about the...

We don't have to pay it right now since my son has medicare as a secondary insurance, but not sure what we are going after my daughter is born and she starts on pulmozyme. Hopefully the program my CF clinic told me about that helps make copays affordable will help. I am furious about the...

Has anyone had a crazy extreme increase for their pulmozyme? Ours went from 60 dollars a month to 1,297.28 a month! Thank goodness we have a secondary insurance for my son that pays our copays, but we might not for our daughter once she is born. I talked the local CF clinic and was told about...

Has anyone had a crazy extreme increase for their pulmozyme? Ours went from 60 dollars a month to 1,297.28 a month! Thank goodness we have a secondary insurance for my son that pays our copays, but we might not for our daughter once she is born. I talked the local CF clinic and was told about...

23 days later we have our results. Baby number three tested positive for cystic fibrosis. It also looks like baby number 3 will be born with meconium ileus like her brother was. :-(<br>

23 days later we have our results. Baby number three tested positive for cystic fibrosis. It also looks like baby number 3 will be born with meconium ileus like her brother was. :-(<br>

I called the genetic councilor yesterday to find out if the results were back and she told me it takes three weeks. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Wish she would have told me that two weeks ago. I'm a little upset that she said two weeks for the results. I wonder if...

I called the genetic councilor yesterday to find out if the results were back and she told me it takes three weeks. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Wish she would have told me that two weeks ago. I'm a little upset that she said two weeks for the results. I wonder if...

I just had an amnio last Tuesday. I was told by my doc 10-14 days and 2 weeks by the genetic councilor. <br>Has anyone had one and can you share the amount of time it took to get results?<br><br>I was able to get my sons genetic screening to the genetic councilor so I was hoping since they know...

I just had an amnio last Tuesday. I was told by my doc 10-14 days and 2 weeks by the genetic councilor. <br>Has anyone had one and can you share the amount of time it took to get results?<br><br>I was able to get my sons genetic screening to the genetic councilor so I was hoping since they know...

My son has liver disease and he is being followed by the docs at the Lied Transplant center at UNMC. I don't know much about the there CF team but their transplant team is awesome!

My son has liver disease and he is being followed by the docs at the Lied Transplant center at UNMC. I don't know much about the there CF team but their transplant team is awesome!

My son has liver disease and he is being followed by the docs at the Lied Transplant center at UNMC. I don't know much about the there CF team but their transplant team is awesome!

My son has liver disease and he is being followed by the docs at the Lied Transplant center at UNMC. I don't know much about the there CF team but their transplant team is awesome!