Cystic Fibrosis Forum (EXP)

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  1. J

    Anyone go to UNMC docs in Omaha?

    My son has liver disease and he is being followed by the docs at the Lied Transplant center at UNMC. I don't know much about the there CF team but their transplant team is awesome!
  2. J

    intestinal antibiodics?

    My son has been on flagyl as well as oral vanco. We use probiotics daily even when he has good stools and I also mix 6-8 oz of plain yogert in with his tube feedings. I don't know if the yogert helps or not but it gives more peace of mind so I continue to use it.
  3. J

    intestinal antibiodics?

    My son has been on flagyl as well as oral vanco. We use probiotics daily even when he has good stools and I also mix 6-8 oz of plain yogert in with his tube feedings. I don't know if the yogert helps or not but it gives more peace of mind so I continue to use it.
  4. J

    intestinal antibiodics?

    My son has been on flagyl as well as oral vanco. We use probiotics daily even when he has good stools and I also mix 6-8 oz of plain yogert in with his tube feedings. I don't know if the yogert helps or not but it gives more peace of mind so I continue to use it.
  5. J

    intestinal antibiodics?

    My son has been on flagyl as well as oral vanco. We use probiotics daily even when he has good stools and I also mix 6-8 oz of plain yogert in with his tube feedings. I don't know if the yogert helps or not but it gives more peace of mind so I continue to use it.
  6. J

    intestinal antibiodics?

    My son has been on flagyl as well as oral vanco. <br /> <br />We use probiotics daily even when he has good stools and I also mix 6-8 oz of plain yogert in with his tube feedings. I don't know if the yogert helps or not but it gives more peace of mind so I continue to use it. <br /> <br />
  7. J

    TPN Question

    My son was born Sept 2006 with MI. He was on TPN for almost three months and now is suffering from liver disease. While my son was still on TPN my husband researched TPN and liver disease and found out about the Omaga 3 just like you did. We were told the same that it was not FDA approved. We...
  8. J

    TPN Question

    My son was born Sept 2006 with MI. He was on TPN for almost three months and now is suffering from liver disease. While my son was still on TPN my husband researched TPN and liver disease and found out about the Omaga 3 just like you did. We were told the same that it was not FDA approved. We...
  9. J

    TPN Question

    My son was born Sept 2006 with MI. He was on TPN for almost three months and now is suffering from liver disease. While my son was still on TPN my husband researched TPN and liver disease and found out about the Omaga 3 just like you did. We were told the same that it was not FDA approved. We...
  10. J

    TPN Question

    My son was born Sept 2006 with MI. He was on TPN for almost three months and now is suffering from liver disease. While my son was still on TPN my husband researched TPN and liver disease and found out about the Omaga 3 just like you did. We were told the same that it was not FDA approved. We...
  11. J

    TPN Question

    My son was born Sept 2006 with MI. He was on TPN for almost three months and now is suffering from liver disease. <br />While my son was still on TPN my husband researched TPN and liver disease and found out about the Omaga 3 just like you did. We were told the same that it was not FDA...
  12. J

    ESBL E. Coli

    My son has cultured it since he got an e-coli blood infection from the hospital in Dec 2006. I too wonder about it and am waiting for the cf coordinator to contact me to discuses my concerns. If she does not get back to me by mid next week I will call her again. They say that since my son has...
  13. J

    ESBL E. Coli

    My son has cultured it since he got an e-coli blood infection from the hospital in Dec 2006. I too wonder about it and am waiting for the cf coordinator to contact me to discuses my concerns. If she does not get back to me by mid next week I will call her again. They say that since my son has...
  14. J

    ESBL E. Coli

    My son has cultured it since he got an e-coli blood infection from the hospital in Dec 2006. I too wonder about it and am waiting for the cf coordinator to contact me to discuses my concerns. If she does not get back to me by mid next week I will call her again. They say that since my son has...
  15. J

    ESBL E. Coli

    My son has cultured it since he got an e-coli blood infection from the hospital in Dec 2006. I too wonder about it and am waiting for the cf coordinator to contact me to discuses my concerns. If she does not get back to me by mid next week I will call her again. They say that since my son has...
  16. J

    ESBL E. Coli

    My son has cultured it since he got an e-coli blood infection from the hospital in Dec 2006. <br />I too wonder about it and am waiting for the cf coordinator to contact me to discuses my concerns. If she does not get back to me by mid next week I will call her again. <br />They say that since...
  17. J

    How much bowel does he have?

    The only test I know of that can measure the length of the small bowel is a Upper GI Small Bowel Series. Basically you (or your child) has to drink Barium and then a special x-ray machine is used to watch the barium go through the digestive system. Before my son had one done we were asked how...
  18. J

    How much bowel does he have?

    The only test I know of that can measure the length of the small bowel is a Upper GI Small Bowel Series. Basically you (or your child) has to drink Barium and then a special x-ray machine is used to watch the barium go through the digestive system. Before my son had one done we were asked how...
  19. J

    How much bowel does he have?

    The only test I know of that can measure the length of the small bowel is a Upper GI Small Bowel Series. Basically you (or your child) has to drink Barium and then a special x-ray machine is used to watch the barium go through the digestive system. Before my son had one done we were asked how...
  20. J

    How much bowel does he have?

    The only test I know of that can measure the length of the small bowel is a Upper GI Small Bowel Series. Basically you (or your child) has to drink Barium and then a special x-ray machine is used to watch the barium go through the digestive system. Before my son had one done we were asked how...
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