Cystic Fibrosis Forum (EXP)

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  1. S

    With an eating disorder.

    You are definitely not alone. When I was 14 I started worrying about my body and the fact that everyone was trying to get me to gain weight. I was very small, but wanted to be smaller still so I wouldn't eat if I could help it. The fact that I have CF actually helped me because it was an easy...
  2. S

    With an eating disorder.

    You are definitely not alone. When I was 14 I started worrying about my body and the fact that everyone was trying to get me to gain weight. I was very small, but wanted to be smaller still so I wouldn't eat if I could help it. The fact that I have CF actually helped me because it was an easy...
  3. S

    With an eating disorder.

    You are definitely not alone. When I was 14 I started worrying about my body and the fact that everyone was trying to get me to gain weight. I was very small, but wanted to be smaller still so I wouldn't eat if I could help it. The fact that I have CF actually helped me because it was an easy...
  4. S

    College Roommate....

    So I'm getting a new college room mate and I'm kinda nervous! I've always had my own room and it will be nice to have company but I don't know how to explain my bathroom habits to her. I have CF so I poop. A lot. And it smells. A LOT. I've never really been embarrassed about it before but I've...
  5. S

    College Roommate....

    So I'm getting a new college room mate and I'm kinda nervous! I've always had my own room and it will be nice to have company but I don't know how to explain my bathroom habits to her. I have CF so I poop. A lot. And it smells. A LOT. I've never really been embarrassed about it before but I've...
  6. S

    College Roommate....

    So I'm getting a new college room mate and I'm kinda nervous! I've always had my own room and it will be nice to have company but I don't know how to explain my bathroom habits to her. I have CF so I poop. A lot. And it smells. A LOT. I've never really been embarrassed about it before but I've...
  7. S

    oxygen at night

    Two Words: HEAD ACHES!!!! I started waking up every morning with crazy bad headaches. I told my dr who did a sleep study straight away and it showed that my sats were dropping a lot while I was sleeping so I started O2 at night. I wake up feeling a tonne better now and much more rested so don't...
  8. S

    oxygen at night

    Two Words: HEAD ACHES!!!! I started waking up every morning with crazy bad headaches. I told my dr who did a sleep study straight away and it showed that my sats were dropping a lot while I was sleeping so I started O2 at night. I wake up feeling a tonne better now and much more rested so don't...
  9. S

    oxygen at night

    Two Words: HEAD ACHES!!!! <br /> <br />I started waking up every morning with crazy bad headaches. I told my dr who did a sleep study straight away and it showed that my sats were dropping a lot while I was sleeping so I started O2 at night. I wake up feeling a tonne better now and much more...
  10. S

    Wheezing

    I get really bad asthma and my RT talk me a huff cough technique (there's possibly a more technical name than that!) I do it when I'm wheezing and it usually helps get something up. I breathe in as deep as I can, then breathe the entire way out and huff. Huff just like you would in normal physio...
  11. S

    Wheezing

    I get really bad asthma and my RT talk me a huff cough technique (there's possibly a more technical name than that!) I do it when I'm wheezing and it usually helps get something up. I breathe in as deep as I can, then breathe the entire way out and huff. Huff just like you would in normal physio...
  12. S

    Wheezing

    I get really bad asthma and my RT talk me a huff cough technique (there's possibly a more technical name than that!) I do it when I'm wheezing and it usually helps get something up. I breathe in as deep as I can, then breathe the entire way out and huff. Huff just like you would in normal physio...
  13. S

    How open are you about CF?

    I've never been open about my CF. No one ever knew except my immediate family and very close friends. When I was younger it was easy to hide because I stayed quite well. Even through high school I would plan to have IV's on the school holidays so that no one would ever have to know. When I...
  14. S

    How open are you about CF?

    I've never been open about my CF. No one ever knew except my immediate family and very close friends. When I was younger it was easy to hide because I stayed quite well. Even through high school I would plan to have IV's on the school holidays so that no one would ever have to know. When I...
  15. S

    How open are you about CF?

    I've never been open about my CF. No one ever knew except my immediate family and very close friends. When I was younger it was easy to hide because I stayed quite well. Even through high school I would plan to have IV's on the school holidays so that no one would ever have to know. <br />When I...
  16. S

    sudden loss of appitite

    I was like this earlier this year. Eating had become a chore for me and I constantly felt nauseous. I started on some appetite enhancers (sorry, I can't remember the name) and they helped a lot. Maybe ask your dr about starting something like that?
  17. S

    sudden loss of appitite

    I was like this earlier this year. Eating had become a chore for me and I constantly felt nauseous. I started on some appetite enhancers (sorry, I can't remember the name) and they helped a lot. Maybe ask your dr about starting something like that?
  18. S

    sudden loss of appitite

    I was like this earlier this year. Eating had become a chore for me and I constantly felt nauseous. I started on some appetite enhancers (sorry, I can't remember the name) and they helped a lot. Maybe ask your dr about starting something like that?
  19. S

    Hunching over?

    As I've been reading this I'm suddenly sitting up nice and straight! I had a real problem with this a few years ago. So bad that I got severe back pain. My doctor sent me to a physical therapist who stretched me, massaged me and did some pilates work with me and it has helped wonders. My...
  20. S

    Hunching over?

    As I've been reading this I'm suddenly sitting up nice and straight! I had a real problem with this a few years ago. So bad that I got severe back pain. My doctor sent me to a physical therapist who stretched me, massaged me and did some pilates work with me and it has helped wonders. My...
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