112

[juliesdreamteam]

112. That's the number of pages in Julie: The Courage to Breathe. Sales of Julie's amazingly courageous story have been great but I find myself thinking how odd it is that, of all of those in the world that want a cure for Cystic Fibrosis...and my willingness to give 100% of all royalties to the CF Foundation....Why aren't those that want the cure the most reading the story?

Maybe the CF Foundation was right. "Those with CF want the cure more than anything in the world but when it comes to asking them to do the simplest of things to help themselves, they won't. We have a hard time getting them to "LIKE" the CF Foundation's FaceBook Page"

If you absolutely disagree with the CF Foundation's assessment of those of us whose life this disease touches....READ A BOOK! It's 112 pages and you just might feel that you can relate to her story. I think you will.

I'm willing to give every single penny to the CF Foundation to end this crap for once and for all. I've done all I can to help realize my wife's dream (and I'm guessing yours) of a cure.

Her story is available in 31 countries. Each time it's purchased, a MINIMUM of $4.85 is sent to the CF Foundation.

I'd like to find a cure in my lifetime and I'd like to think that maybe we're on the same page in that regard. I won't beg you to help yourself or your family but I've put the life-saver in the water. The only thing you have to do is grab it. We can do this! If everyone that wanted a cure picked up a copy, we'd generate $54M. That would go a long way for funding VX-809 studies. If you're going to spend your money, spend it on yourself and help find a cure.

http://www.amazon.com/gp/offer-list...?ie=UTF8&condition=used&qid=1364180044&sr=8-1

http://www.barnesandnoble.com/s/jul...products&keyword=julie+the+courage+to+breathe

http://www.lulu.com/spotlight/curecf

Keep pressing forward. I'm swinging for the fences to end this crap before the end of my time. I would love to have Julie's story end CF for you and/or your family but you'll have to give 2 hours of your life reading a book.

God Bless...CURECF!!!

Roy E. Ice - Founder
Julie's Dream Team
www.juliesdreamteam.com

 

[kmhbeauty]

I think its awesome that you devoted so much time to helping cure CF and your wife! Keep up the good work! Thank you for what you do and spreading the word of CF.

 

[kmhbeauty]

If you want to spread the word of something that had helped me so much with CF, please spread about the Nutribullet. I can not talk enough about this thing. I blend raw garlic, oranges, ginger everyday. Lots of fruits and veggies especially ones high in Vit C. It has cured my tonsil stones and I have not gotten sick in a very long time. I recommend this to every CFer but Im not sure some are willing to take the advice. My theory is because some with CF have been looking and living the doctors medical life for so long, the healthy way seems like its a waste of time. The healthy route is the way for me! I think all CFers should incorporate it in their other daily medicine. Im ddf508, never been on Cf meds, 79% pfts, 27 years old. Just food for thought!