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15 Month Old going for CF test

A

ange75

New member
My 15 month old son has been failure to thrive for months and recently had a stool test that showed excess fat thus malabsorption. They have tested him for Celiac, Thyroid, and metabolism and they all came back fine...so now they are focused on CF. Our sweat test is in 11 days and I can't help but be so worried. My son is adopted so I have no idea what his genetic history is. He has had bronchiolitis once when he was 9 months old and has had to use a nebulizer a couple of times in spring which we assumed it was all allergies. All these things together make me feel like there are good odds he has CF...but I don't know if I'm just panicking. What do you guys think? Is it normal to be so worried and scared? When other moms had their children diagnosed how did you feel? Thanks so much for your feedback!!!!
 
A

ange75

New member
My 15 month old son has been failure to thrive for months and recently had a stool test that showed excess fat thus malabsorption. They have tested him for Celiac, Thyroid, and metabolism and they all came back fine...so now they are focused on CF. Our sweat test is in 11 days and I can't help but be so worried. My son is adopted so I have no idea what his genetic history is. He has had bronchiolitis once when he was 9 months old and has had to use a nebulizer a couple of times in spring which we assumed it was all allergies. All these things together make me feel like there are good odds he has CF...but I don't know if I'm just panicking. What do you guys think? Is it normal to be so worried and scared? When other moms had their children diagnosed how did you feel? Thanks so much for your feedback!!!!
 
A

ange75

New member
My 15 month old son has been failure to thrive for months and recently had a stool test that showed excess fat thus malabsorption. They have tested him for Celiac, Thyroid, and metabolism and they all came back fine...so now they are focused on CF. Our sweat test is in 11 days and I can't help but be so worried. My son is adopted so I have no idea what his genetic history is. He has had bronchiolitis once when he was 9 months old and has had to use a nebulizer a couple of times in spring which we assumed it was all allergies. All these things together make me feel like there are good odds he has CF...but I don't know if I'm just panicking. What do you guys think? Is it normal to be so worried and scared? When other moms had their children diagnosed how did you feel? Thanks so much for your feedback!!!!
 
A

ange75

New member
My 15 month old son has been failure to thrive for months and recently had a stool test that showed excess fat thus malabsorption. They have tested him for Celiac, Thyroid, and metabolism and they all came back fine...so now they are focused on CF. Our sweat test is in 11 days and I can't help but be so worried. My son is adopted so I have no idea what his genetic history is. He has had bronchiolitis once when he was 9 months old and has had to use a nebulizer a couple of times in spring which we assumed it was all allergies. All these things together make me feel like there are good odds he has CF...but I don't know if I'm just panicking. What do you guys think? Is it normal to be so worried and scared? When other moms had their children diagnosed how did you feel? Thanks so much for your feedback!!!!
 
A

ange75

New member
My 15 month old son has been failure to thrive for months and recently had a stool test that showed excess fat thus malabsorption. They have tested him for Celiac, Thyroid, and metabolism and they all came back fine...so now they are focused on CF. Our sweat test is in 11 days and I can't help but be so worried. My son is adopted so I have no idea what his genetic history is. He has had bronchiolitis once when he was 9 months old and has had to use a nebulizer a couple of times in spring which we assumed it was all allergies. All these things together make me feel like there are good odds he has CF...but I don't know if I'm just panicking. What do you guys think? Is it normal to be so worried and scared? When other moms had their children diagnosed how did you feel? Thanks so much for your feedback!!!!
 
L

lilismom

Active member
I was a worried wreck after Lili's dr brought up the idea that she may have CF. I went home and searched on the internet and cried a lot. She was admitted to the hospital later that week because she came down with pneumonia. At that point I knew in my heart she had it and with the actual dx'd later in the week I wasn't surprised.

I'm not a DR and don't know a lot about CF other than what my experience has been with it but from what you say I think the chances of him having CF are high. Lili had similar issues, although she managed to gain pretty well after initially being really small for the first year. By the time she was diagnosed at 3 she was in the 50% for weight.

It is a very scary time, everyone wants their child to be healthy and happy.

Personally, when she was dx'd I felt a bit of relief that now we knew what needed to be done to keep her as healthy as possible. I won't say it's been easy, there have been days when I'm really depressed about it but for the most part after 15 months with living with it, I'm at peace with the dx'd and am doing everything in my power to keep her healthy.
On a bright note - she is doing so well. She is now in the 75% for weight and height, her lungs are doing great and she is just your average 4 1/2 yr old.

I hope this helps. I'll be thinking of you and your son and will pray that you get some answers soon.
 
L

lilismom

Active member
I was a worried wreck after Lili's dr brought up the idea that she may have CF. I went home and searched on the internet and cried a lot. She was admitted to the hospital later that week because she came down with pneumonia. At that point I knew in my heart she had it and with the actual dx'd later in the week I wasn't surprised.

I'm not a DR and don't know a lot about CF other than what my experience has been with it but from what you say I think the chances of him having CF are high. Lili had similar issues, although she managed to gain pretty well after initially being really small for the first year. By the time she was diagnosed at 3 she was in the 50% for weight.

It is a very scary time, everyone wants their child to be healthy and happy.

Personally, when she was dx'd I felt a bit of relief that now we knew what needed to be done to keep her as healthy as possible. I won't say it's been easy, there have been days when I'm really depressed about it but for the most part after 15 months with living with it, I'm at peace with the dx'd and am doing everything in my power to keep her healthy.
On a bright note - she is doing so well. She is now in the 75% for weight and height, her lungs are doing great and she is just your average 4 1/2 yr old.

I hope this helps. I'll be thinking of you and your son and will pray that you get some answers soon.
 
L

lilismom

Active member
I was a worried wreck after Lili's dr brought up the idea that she may have CF. I went home and searched on the internet and cried a lot. She was admitted to the hospital later that week because she came down with pneumonia. At that point I knew in my heart she had it and with the actual dx'd later in the week I wasn't surprised.

I'm not a DR and don't know a lot about CF other than what my experience has been with it but from what you say I think the chances of him having CF are high. Lili had similar issues, although she managed to gain pretty well after initially being really small for the first year. By the time she was diagnosed at 3 she was in the 50% for weight.

It is a very scary time, everyone wants their child to be healthy and happy.

Personally, when she was dx'd I felt a bit of relief that now we knew what needed to be done to keep her as healthy as possible. I won't say it's been easy, there have been days when I'm really depressed about it but for the most part after 15 months with living with it, I'm at peace with the dx'd and am doing everything in my power to keep her healthy.
On a bright note - she is doing so well. She is now in the 75% for weight and height, her lungs are doing great and she is just your average 4 1/2 yr old.

I hope this helps. I'll be thinking of you and your son and will pray that you get some answers soon.
 
L

lilismom

Active member
I was a worried wreck after Lili's dr brought up the idea that she may have CF. I went home and searched on the internet and cried a lot. She was admitted to the hospital later that week because she came down with pneumonia. At that point I knew in my heart she had it and with the actual dx'd later in the week I wasn't surprised.

I'm not a DR and don't know a lot about CF other than what my experience has been with it but from what you say I think the chances of him having CF are high. Lili had similar issues, although she managed to gain pretty well after initially being really small for the first year. By the time she was diagnosed at 3 she was in the 50% for weight.

It is a very scary time, everyone wants their child to be healthy and happy.

Personally, when she was dx'd I felt a bit of relief that now we knew what needed to be done to keep her as healthy as possible. I won't say it's been easy, there have been days when I'm really depressed about it but for the most part after 15 months with living with it, I'm at peace with the dx'd and am doing everything in my power to keep her healthy.
On a bright note - she is doing so well. She is now in the 75% for weight and height, her lungs are doing great and she is just your average 4 1/2 yr old.

I hope this helps. I'll be thinking of you and your son and will pray that you get some answers soon.
 
L

lilismom

Active member
I was a worried wreck after Lili's dr brought up the idea that she may have CF. I went home and searched on the internet and cried a lot. She was admitted to the hospital later that week because she came down with pneumonia. At that point I knew in my heart she had it and with the actual dx'd later in the week I wasn't surprised.

I'm not a DR and don't know a lot about CF other than what my experience has been with it but from what you say I think the chances of him having CF are high. Lili had similar issues, although she managed to gain pretty well after initially being really small for the first year. By the time she was diagnosed at 3 she was in the 50% for weight.

It is a very scary time, everyone wants their child to be healthy and happy.

Personally, when she was dx'd I felt a bit of relief that now we knew what needed to be done to keep her as healthy as possible. I won't say it's been easy, there have been days when I'm really depressed about it but for the most part after 15 months with living with it, I'm at peace with the dx'd and am doing everything in my power to keep her healthy.
On a bright note - she is doing so well. She is now in the 75% for weight and height, her lungs are doing great and she is just your average 4 1/2 yr old.

I hope this helps. I'll be thinking of you and your son and will pray that you get some answers soon.
 
J

JazzysMom

New member
To not be worried or scared I think would be not human. It sounds like there is a good chance of CF, but until you have confirmed results anything is possible.

I would warn you about sticking with just the sweat test tho. IF results come back low or borderline I would push for genetic testing. IF sweat test results are high then that is usually a good dx, but knowing his mutations wouldnt hurt.

Please come back & let us know what happens or if you have more ??. Its best to know & get the proper care if it is CF. No one wants their child to have CF, but it really is better to learn early.

Hugs....
 
J

JazzysMom

New member
To not be worried or scared I think would be not human. It sounds like there is a good chance of CF, but until you have confirmed results anything is possible.

I would warn you about sticking with just the sweat test tho. IF results come back low or borderline I would push for genetic testing. IF sweat test results are high then that is usually a good dx, but knowing his mutations wouldnt hurt.

Please come back & let us know what happens or if you have more ??. Its best to know & get the proper care if it is CF. No one wants their child to have CF, but it really is better to learn early.

Hugs....
 
J

JazzysMom

New member
To not be worried or scared I think would be not human. It sounds like there is a good chance of CF, but until you have confirmed results anything is possible.

I would warn you about sticking with just the sweat test tho. IF results come back low or borderline I would push for genetic testing. IF sweat test results are high then that is usually a good dx, but knowing his mutations wouldnt hurt.

Please come back & let us know what happens or if you have more ??. Its best to know & get the proper care if it is CF. No one wants their child to have CF, but it really is better to learn early.

Hugs....
 
J

JazzysMom

New member
To not be worried or scared I think would be not human. It sounds like there is a good chance of CF, but until you have confirmed results anything is possible.

I would warn you about sticking with just the sweat test tho. IF results come back low or borderline I would push for genetic testing. IF sweat test results are high then that is usually a good dx, but knowing his mutations wouldnt hurt.

Please come back & let us know what happens or if you have more ??. Its best to know & get the proper care if it is CF. No one wants their child to have CF, but it really is better to learn early.

Hugs....
 
J

JazzysMom

New member
To not be worried or scared I think would be not human. It sounds like there is a good chance of CF, but until you have confirmed results anything is possible.

I would warn you about sticking with just the sweat test tho. IF results come back low or borderline I would push for genetic testing. IF sweat test results are high then that is usually a good dx, but knowing his mutations wouldnt hurt.

Please come back & let us know what happens or if you have more ??. Its best to know & get the proper care if it is CF. No one wants their child to have CF, but it really is better to learn early.

Hugs....
 
M

Mommafirst

Guest
I waffled between being manically freaking out with worry, and then brushing it off as ridiculous that I'm so worried because my daughter couldn't possibly have CF. So I'd say what you are feeling is incredibly normal. I'd say if your son is malabsorbing, is failure to thrive, and has had lung issues that CF is a real possibility and its good your doctors are testing. I hope you get clear answers, so that you can move forward quickly from here!! Hang in there!!
 
M

Mommafirst

Guest
I waffled between being manically freaking out with worry, and then brushing it off as ridiculous that I'm so worried because my daughter couldn't possibly have CF. So I'd say what you are feeling is incredibly normal. I'd say if your son is malabsorbing, is failure to thrive, and has had lung issues that CF is a real possibility and its good your doctors are testing. I hope you get clear answers, so that you can move forward quickly from here!! Hang in there!!
 
M

Mommafirst

Guest
I waffled between being manically freaking out with worry, and then brushing it off as ridiculous that I'm so worried because my daughter couldn't possibly have CF. So I'd say what you are feeling is incredibly normal. I'd say if your son is malabsorbing, is failure to thrive, and has had lung issues that CF is a real possibility and its good your doctors are testing. I hope you get clear answers, so that you can move forward quickly from here!! Hang in there!!
 
M

Mommafirst

Guest
I waffled between being manically freaking out with worry, and then brushing it off as ridiculous that I'm so worried because my daughter couldn't possibly have CF. So I'd say what you are feeling is incredibly normal. I'd say if your son is malabsorbing, is failure to thrive, and has had lung issues that CF is a real possibility and its good your doctors are testing. I hope you get clear answers, so that you can move forward quickly from here!! Hang in there!!
 
M

Mommafirst

Guest
I waffled between being manically freaking out with worry, and then brushing it off as ridiculous that I'm so worried because my daughter couldn't possibly have CF. So I'd say what you are feeling is incredibly normal. I'd say if your son is malabsorbing, is failure to thrive, and has had lung issues that CF is a real possibility and its good your doctors are testing. I hope you get clear answers, so that you can move forward quickly from here!! Hang in there!!
 
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