What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

24 hour tube feedings

jshet

New member
Hi, my son almost 16 is getting either a g or gj tube soon. The gi says he will need to be on it 24 hrs a day. I am wondering if this will affect his appetite since he does eat orally also. I was also wondering from parents whose child does this type of feeding, how heavy is the feeding pump that he will wear in a back pack? I am only questioning this because he has autism and I know this will be a big adjustment for him because of his sensory issues. I want this to be as easy of a transition as possible for him. Thanks, Janelle
 

Bella's-mom

New member
My daughter is most likely getting a g tube soon. We see the dr in 2 weeks. Not able to answer any of your question but I'm here with you in spirit. Good luck
 
Top