What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

A LouLou update

MaksNana

New member
Hi Lauren,
I didn't know you have been having a tough couple of years. I am so sorry to hear that. I'm sorry to hear about the culture of MRSA. But, really glad to hear about your Lung Functions,,<img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm so happy you are in , you are a very special person. And thankyou for educated me about Tobi with what your audiologist has said. It scares me some, due to Makailyn is sometimes put on Tobi back to back, but most of the time 28 on and 28 off. It just depends on her CF Bug's.But, I know that girl has Rabbit Ears,LOL.

I am wishing and praying for you to stay well especially with the long road trip you have to face. And you can't be thanked enough for making a difference for all. And you got to stay healthy for your precious little one.I loved seeing the news article you were in.

Please keep us updated as much as you can.
You are full of Grace, My heart is with you always,,,,,, Karla
 

MaksNana

New member
Hi Lauren,
I didn't know you have been having a tough couple of years. I am so sorry to hear that. I'm sorry to hear about the culture of MRSA. But, really glad to hear about your Lung Functions,,<img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm so happy you are in , you are a very special person. And thankyou for educated me about Tobi with what your audiologist has said. It scares me some, due to Makailyn is sometimes put on Tobi back to back, but most of the time 28 on and 28 off. It just depends on her CF Bug's.But, I know that girl has Rabbit Ears,LOL.

I am wishing and praying for you to stay well especially with the long road trip you have to face. And you can't be thanked enough for making a difference for all. And you got to stay healthy for your precious little one.I loved seeing the news article you were in.

Please keep us updated as much as you can.
You are full of Grace, My heart is with you always,,,,,, Karla
 

MaksNana

New member
Hi Lauren,
I didn't know you have been having a tough couple of years. I am so sorry to hear that. I'm sorry to hear about the culture of MRSA. But, really glad to hear about your Lung Functions,,<img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm so happy you are in , you are a very special person. And thankyou for educated me about Tobi with what your audiologist has said. It scares me some, due to Makailyn is sometimes put on Tobi back to back, but most of the time 28 on and 28 off. It just depends on her CF Bug's.But, I know that girl has Rabbit Ears,LOL.

I am wishing and praying for you to stay well especially with the long road trip you have to face. And you can't be thanked enough for making a difference for all. And you got to stay healthy for your precious little one.I loved seeing the news article you were in.

Please keep us updated as much as you can.
You are full of Grace, My heart is with you always,,,,,, Karla
 

MaksNana

New member
Hi Lauren,
I didn't know you have been having a tough couple of years. I am so sorry to hear that. I'm sorry to hear about the culture of MRSA. But, really glad to hear about your Lung Functions,,<img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm so happy you are in , you are a very special person. And thankyou for educated me about Tobi with what your audiologist has said. It scares me some, due to Makailyn is sometimes put on Tobi back to back, but most of the time 28 on and 28 off. It just depends on her CF Bug's.But, I know that girl has Rabbit Ears,LOL.

I am wishing and praying for you to stay well especially with the long road trip you have to face. And you can't be thanked enough for making a difference for all. And you got to stay healthy for your precious little one.I loved seeing the news article you were in.

Please keep us updated as much as you can.
You are full of Grace, My heart is with you always,,,,,, Karla
 

MaksNana

New member
Hi Lauren,
<br />I didn't know you have been having a tough couple of years. I am so sorry to hear that. I'm sorry to hear about the culture of MRSA. But, really glad to hear about your Lung Functions,,<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />I'm so happy you are in , you are a very special person. And thankyou for educated me about Tobi with what your audiologist has said. It scares me some, due to Makailyn is sometimes put on Tobi back to back, but most of the time 28 on and 28 off. It just depends on her CF Bug's.But, I know that girl has Rabbit Ears,LOL.
<br />
<br />I am wishing and praying for you to stay well especially with the long road trip you have to face. And you can't be thanked enough for making a difference for all. And you got to stay healthy for your precious little one.I loved seeing the news article you were in.
<br />
<br />Please keep us updated as much as you can.
<br />You are full of Grace, My heart is with you always,,,,,, Karla
 

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jbenjamin152</b></i>
I find out that I have b-cepecia and now 2 days ago I foung out I have MRSA.

.</end quote></div>



not to derail the thread but i am so sorry to hear about your cepacia and MRSA. how frustrating! <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jbenjamin152</b></i>
I find out that I have b-cepecia and now 2 days ago I foung out I have MRSA.

.</end quote></div>



not to derail the thread but i am so sorry to hear about your cepacia and MRSA. how frustrating! <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jbenjamin152</b></i>
I find out that I have b-cepecia and now 2 days ago I foung out I have MRSA.

.</end quote></div>



not to derail the thread but i am so sorry to hear about your cepacia and MRSA. how frustrating! <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jbenjamin152</b></i>
I find out that I have b-cepecia and now 2 days ago I foung out I have MRSA.

.</end quote>



not to derail the thread but i am so sorry to hear about your cepacia and MRSA. how frustrating! <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jbenjamin152</b></i>
<br />I find out that I have b-cepecia and now 2 days ago I foung out I have MRSA.
<br />
<br />.</end quote>
<br />
<br />
<br />
<br />not to derail the thread but i am so sorry to hear about your cepacia and MRSA. how frustrating! <img src="i/expressions/face-icon-small-sad.gif" border="0">
 

LouLou

New member
Thanks everyone for the encouragement. I love this place!

<b>Josh and Shannon,</b> I'm sorry to hear about your blows lately. Keep your chin up Josh as hard as it may be. Stress and depression feed illness. Do pretty much anything you can while in lock up to stay happy and get better so you can get home.

<b>MaksNana,</b> Tobi isn't such a problem with ototoxicity as IV Tobramycin. Also, it is generally considered common practice for cf women to inhale Tobi while pregnant but I wanted to double check his hearing to see if he had any effects.
 

LouLou

New member
Thanks everyone for the encouragement. I love this place!

<b>Josh and Shannon,</b> I'm sorry to hear about your blows lately. Keep your chin up Josh as hard as it may be. Stress and depression feed illness. Do pretty much anything you can while in lock up to stay happy and get better so you can get home.

<b>MaksNana,</b> Tobi isn't such a problem with ototoxicity as IV Tobramycin. Also, it is generally considered common practice for cf women to inhale Tobi while pregnant but I wanted to double check his hearing to see if he had any effects.
 

LouLou

New member
Thanks everyone for the encouragement. I love this place!

<b>Josh and Shannon,</b> I'm sorry to hear about your blows lately. Keep your chin up Josh as hard as it may be. Stress and depression feed illness. Do pretty much anything you can while in lock up to stay happy and get better so you can get home.

<b>MaksNana,</b> Tobi isn't such a problem with ototoxicity as IV Tobramycin. Also, it is generally considered common practice for cf women to inhale Tobi while pregnant but I wanted to double check his hearing to see if he had any effects.
 

LouLou

New member
Thanks everyone for the encouragement. I love this place!

<b>Josh and Shannon,</b> I'm sorry to hear about your blows lately. Keep your chin up Josh as hard as it may be. Stress and depression feed illness. Do pretty much anything you can while in lock up to stay happy and get better so you can get home.

<b>MaksNana,</b> Tobi isn't such a problem with ototoxicity as IV Tobramycin. Also, it is generally considered common practice for cf women to inhale Tobi while pregnant but I wanted to double check his hearing to see if he had any effects.
 

LouLou

New member
Thanks everyone for the encouragement. I love this place!
<br />
<br /><b>Josh and Shannon,</b> I'm sorry to hear about your blows lately. Keep your chin up Josh as hard as it may be. Stress and depression feed illness. Do pretty much anything you can while in lock up to stay happy and get better so you can get home.
<br />
<br /><b>MaksNana,</b> Tobi isn't such a problem with ototoxicity as IV Tobramycin. Also, it is generally considered common practice for cf women to inhale Tobi while pregnant but I wanted to double check his hearing to see if he had any effects.
 
M

MiddleAgedLady

Guest
LouLou,

We are rooting for you to stay well, get the "real" drug and most of all, get better! Thanks for volunteering.

Josh,

Welcome. I'm fairly new myself. I'm very sorry about your new diagnoses. Hoping you get out soon.

Joan
 
M

MiddleAgedLady

Guest
LouLou,

We are rooting for you to stay well, get the "real" drug and most of all, get better! Thanks for volunteering.

Josh,

Welcome. I'm fairly new myself. I'm very sorry about your new diagnoses. Hoping you get out soon.

Joan
 
M

MiddleAgedLady

Guest
LouLou,

We are rooting for you to stay well, get the "real" drug and most of all, get better! Thanks for volunteering.

Josh,

Welcome. I'm fairly new myself. I'm very sorry about your new diagnoses. Hoping you get out soon.

Joan
 
M

MiddleAgedLady

Guest
LouLou,

We are rooting for you to stay well, get the "real" drug and most of all, get better! Thanks for volunteering.

Josh,

Welcome. I'm fairly new myself. I'm very sorry about your new diagnoses. Hoping you get out soon.

Joan
 
M

MiddleAgedLady

Guest
LouLou,
<br />
<br />We are rooting for you to stay well, get the "real" drug and most of all, get better! Thanks for volunteering.
<br />
<br />Josh,
<br />
<br />Welcome. I'm fairly new myself. I'm very sorry about your new diagnoses. Hoping you get out soon.
<br />
<br />Joan
 
Top