A question on my new treatment.

[Ender]

Ok some of you know I was recently prescribed tobi...but i was wondering...what is it for? Do you inhale it? Is it supposed to make my plegm thinner? Any help would be great, thanks.
Kiel

 

[Faust]

Well some people appear to thrive on it, others not so much. I hear it can be very irritative. Have you had any irritation while on this?

 

[Ender]

A little bit...kinda like this irritation in the back of my throat. Is this normal? Is this a sign that I should stop? Does anyone else get this?

 

[Faust]

Have you tried looking at the back of your throat (with a mirror)?

 

[thelizardqueen]

I sometimes get chest tightness from the Tobra - like spasms. Other then that I tolerate it great, and would be lost without it. Tobra definitly makes a difference in my health!

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>

I sometimes get chest tightness from the Tobra - like spasms. Other then that I tolerate it great, and would be lost without it. Tobra definitly makes a difference in my health!</end quote></div>



Do you really find it works? On a scale of 1-10, how well would you rate it working?

 

[Faust]

BTW Just to clarify, 1 is not working at all, 10 is working really really well (the best possible working level).

 

[Ender]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>

I sometimes get chest tightness from the Tobra - like spasms. Other then that I tolerate it great, and would be lost without it. Tobra definitly makes a difference in my health!</end quote></div>

so by spasms you mean your chest gets twitchy. Does it happen to your throat too?

 

[Faust]

Ender, I just tried to look for Tobi on wikipedia, but it appears to be down. I'd like to be able to find some real data on it, could you direct me somewhere?



Edit: It's back up. Here is what I get when I type in Tobi:


<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Tobi
">http://en.wikipedia.org/wiki/Tobi
</a>

Tobi may refer to:

* An island in Republic of Palau: Tobi (island).
* A month of the Coptic calendar: Month of Tobi.
* A brand name for the antibiotic Tobramycin.
* short form of Tobias
* A fictional villain from Naruto (anime and manga)
* The "Tone and Break Index" system ToBI for transcribing intonation and prosodic structure in spoken language

This is a disambiguation page: a list of articles associated with the same title. If an internal link referred you to this page, you may wish to change the link to point directly to the intended article.


BTW I have no idea what "Disambiguation" means. I'm not sure if it is somehow related to a symptom of Tobi or what. By the process of ellimination, I would assume "An island in Republic of Palau" has nothing to do with what you are taking.

 

[Ender]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

Ender, I just tried to look for Tobi on wikipedia, but it appears to be down. I'd like to be able to find some real data on it, could you direct me somewhere?







Edit: It's back up. Here is what I get when I type in Tobi:





<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Tobi
">http://en.wikipedia.org/wiki/Tobi
</a>




Tobi may refer to:



* An island in Republic of Palau: Tobi (island).

* A month of the Coptic calendar: Month of Tobi.

* A brand name for the antibiotic Tobramycin.

* short form of Tobias

* A fictional villain from Naruto (anime and manga)

* The "Tone and Break Index" system ToBI for transcribing intonation and prosodic structure in spoken language



This is a disambiguation page: a list of articles associated with the same title. If an internal link referred you to this page, you may wish to change the link to point directly to the intended article.





BTW I have no idea what "Disambiguation" means. I'm not sure if it is somehow related to a symptom of Tobi or what. By the process of ellimination, I would assume "An island in Republic of Palau" has nothing to do with what you are taking.</end quote></div>

Ya i doubt it....it does say something about an antibiotic though!

I wish the doctors were more clear on what they are giving you. They prescribe you something and go on there way.

Anyways, i looked at my throat...it seems a little puffy. Should i call my doctor or keep trying it?

 

[Faust]

"Ya i doubt it....it does say something about an antibiotic though!

I wish the doctors were more clear on what they are giving you. They prescribe you something and go on there way.

Anyways, i looked at my throat...it seems a little puffy. Should i call my doctor or keep trying it? "


Keep trying what (you need to be more specific ok?)? And I think you might have used the wrong "Their". It appears you used the form of that word that describes an actual location, as opposed to the modifier form before a noun. Check that then let me know ok? I can't give advice unless you are more clear.

 

[anonymous]

hey ender-
have you never tested positve for pseudomonas before? just wondering. I have been considering the oo and thought you wer on it.
mandy

 

[Ender]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>







Keep trying what (you need to be more specific ok?)? And I think you might have used the wrong "Their". It appears you used the form of that word that describes an actual location, as opposed to the modifier form before a noun. Check that then let me know ok? I can't give advice unless you are more clear.</end quote></div>

Sorry I meant the tobi. I know sometimes i can be a little confusing when it comes to my grammer *slaps face*

hahah I always had that problem with the two there's. grrrrr...

So with that being cleared up, do you think i should keep trying it? How long should i give before i do something about it.

 

[thelizardqueen]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>



I sometimes get chest tightness from the Tobra - like spasms. Other then that I tolerate it great, and would be lost without it. Tobra definitly makes a difference in my health!</end quote></div>







Do you really find it works? On a scale of 1-10, how well would you rate it working?</end quote></div>


I would rate it about an 8 actually. I'm on one month on, one off and by the 2nd week I cough a lot less, my breathing improves.

 

[thelizardqueen]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thelizardqueen</b></i>



I sometimes get chest tightness from the Tobra - like spasms. Other then that I tolerate it great, and would be lost without it. Tobra definitly makes a difference in my health!</end quote></div>



so by spasms you mean your chest gets twitchy. Does it happen to your throat too?</end quote></div>


Nope - not my throat. It just makes me cough a lot, and my chest tightens up while I take it. Everything goes away after I'm finished treatment though.

 

[Faust]

"Sorry I meant the tobi. I know sometimes i can be a little confusing when it comes to my grammer *slaps face*

hahah I always had that problem with the two there's. grrrrr...

So with that being cleared up, do you think i should keep trying it? How long should i give before i do something about it. "


Actually there aren't "two there's". There is: there, their, and they're. There might be another one, but I looked around on yahoo and there wasn't one. I'm not too sure how accurate their search engine is though, so I could be wrong.


I need to go do my vest and nebs Ender, let me weigh your options on what you could do for this problem, and I will get back with you asap. BTW I am keeping you on my mind, and directing positive energy your way (more specifically your throat).

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

Ok some of you know I was recently prescribed tobi...but i was wondering...what is it for? Do you inhale it? Is it supposed to make my plegm thinner? Any help would be great, thanks.

Kiel</end quote></div>

TOBI is a nebulized version of Tobramycin. It is an antibiotic.

It's use in Cystic Fibrosis is to kill pseudo. Pseudo is a bacteria that colonizes the lungs of CF patients. Once it's there, it rarely goes away.

So the goal is to keep the levels of the bacteria low. Low enough to not cause much lung damage, to not cause symptoms, and to not make it difficult for you to breath.

Most CF patients have chronic flare-ups of pseudo which, before TOBI, caused hospitalization after hospitalization. Unlike Cipro, Tobramycin is not in pill form. It's only in IV form - until TOBI came out.

TOBI is a great alternative to Tobramycin because it can be done at home.

There are some differences, however. TOBI goes directly to your lungs - so higher concentrations can be reached at the site of the bateria. This can cause a higher bacteriacidal effect. Side effects are less with TOBI was well - since it doesn't go throughout your body (through your blood stream).

Tobramycin is system - it goes in your body through your veins. Your blood reaches your lungs as well, and Tobra exibits its bacteria killing properties that way. Since Tobramycin goes everywhere in your body, and not just your lungs, there can be many side effects. Kidney problems. Heart problems (decrease potassium in your blood stream which can effect your heart, etc.).

If your lungs are clogged with mucus, the TOBI may not reach the site of the infection. The mucus may lay on top of the area of the bacteria, thereby inhibiting the TOBI to reach the bacteria.

Tobramycin, on the other hand, can reach any area of your lungs - whether it's covered in mucus or not.

I hope this helps. I just learned the differences and pluses/minuses myself.

Drill your doc about any new med he puts you on. The better informed we all are, the better choices we can all make in conjunction with our doctors. <img src="i/expressions/face-icon-small-smile.gif" border="0">

FIGHT ON!

 

[Faust]

How is your throat now Ender?


I used a deep guttural Tibettan Mangorian monk chant while doing my vest, to focus my Chi towards your throat. I seriously think this works, because I have tasted others Chi in the past when they did it for my throat. Did you taste something abnormal not long ago that could have been my Chi Ender?

 

[anonymous]

Is that kinda like that ancient throat singing....where they make two sounds at once kinda thing.....

Could that help??

I'm not sure about the chi....athough I do believe in auras and positive energy.

Just be careful with that stuff. Too much chi is not good chi...

Kiel

 

[thelizardqueen]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>



Ok some of you know I was recently prescribed tobi...but i was wondering...what is it for? Do you inhale it? Is it supposed to make my plegm thinner? Any help would be great, thanks.



Kiel</end quote></div>



Tobramycin is not in pill form. It's only in IV form - until TOBI came out.



TOBI is a great alternative to Tobramycin because it can be done at home.



There are some differences, however. TOBI goes directly to your lungs - so higher concentrations can be reached at the site of the bateria. This can cause a higher bacteriacidal effect. Side effects are less with TOBI was well - since it doesn't go throughout your body (through your blood stream).



Tobramycin is system - it goes in your body through your veins. Your blood reaches your lungs as well, and Tobra exibits its bacteria killing properties that way. Since Tobramycin goes everywhere in your body, and not just your lungs, there can be many side effects. Kidney problems. Heart problems (decrease potassium in your blood stream which can effect your heart, etc.).



Tobramycin, on the other hand, can reach any area of your lungs - whether it's covered in mucus or not.



I hope this helps. I just learned the differences and pluses/minuses myself.



Drill your doc about any new med he puts you on. The better informed we all are, the better choices we can all make in conjunction with our doctors. <img src="">



FIGHT ON!</end quote></div>

Question here: Tobra can also be inhaled (inhaling the IV form.). Does the inhaled Tobra go only to your lungs as well, or does it go through the blood stream, etc?