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A Young Cyster Scared and losing hope...

M

missT

Member
Hi Haley, I just want you to know that I have spent so many mornings over the toilet coughing and vomiting with my eyes tearing up from the violence and stress from the coughing...I know how you feel. I have been questioning everything lately...like why me? and what is after this life? Right now I am questioning faith itself. When I was your age I was just angry that I was not "normal" and did a lot of things to my body I should not have. HOLD-ON! Your second chance may be right around the corner. Please keep positive people around you (people who can make you forget about CF for a minute) and also people who you can complain to...Sending many hugs and support your way.....
 
M

missT

Member
Hi Haley, I just want you to know that I have spent so many mornings over the toilet coughing and vomiting with my eyes tearing up from the violence and stress from the coughing...I know how you feel. I have been questioning everything lately...like why me? and what is after this life? Right now I am questioning faith itself. When I was your age I was just angry that I was not "normal" and did a lot of things to my body I should not have. HOLD-ON! Your second chance may be right around the corner. Please keep positive people around you (people who can make you forget about CF for a minute) and also people who you can complain to...Sending many hugs and support your way.....
 
M

missT

Member
Hi Haley, I just want you to know that I have spent so many mornings over the toilet coughing and vomiting with my eyes tearing up from the violence and stress from the coughing...I know how you feel. I have been questioning everything lately...like why me? and what is after this life? Right now I am questioning faith itself. When I was your age I was just angry that I was not "normal" and did a lot of things to my body I should not have. HOLD-ON! Your second chance may be right around the corner. Please keep positive people around you (people who can make you forget about CF for a minute) and also people who you can complain to...Sending many hugs and support your way.....
 
M

missT

Member
Hi Haley, I just want you to know that I have spent so many mornings over the toilet coughing and vomiting with my eyes tearing up from the violence and stress from the coughing...I know how you feel. I have been questioning everything lately...like why me? and what is after this life? Right now I am questioning faith itself. When I was your age I was just angry that I was not "normal" and did a lot of things to my body I should not have. HOLD-ON! Your second chance may be right around the corner. Please keep positive people around you (people who can make you forget about CF for a minute) and also people who you can complain to...Sending many hugs and support your way.....
 
M

missT

Member
Hi Haley, I just want you to know that I have spent so many mornings over the toilet coughing and vomiting with my eyes tearing up from the violence and stress from the coughing...I know how you feel. I have been questioning everything lately...like why me? and what is after this life? Right now I am questioning faith itself. When I was your age I was just angry that I was not "normal" and did a lot of things to my body I should not have. HOLD-ON! Your second chance may be right around the corner. Please keep positive people around you (people who can make you forget about CF for a minute) and also people who you can complain to...Sending many hugs and support your way.....
 
B

beleache

New member
Hi Haley,

I am with everyone else, seek counseling, take meds to help you through , get help !! You are reaching out so that is a good thing..

Have you talked to ppl that have had tx ? There are so many up-lifting stories.. For many it is truly a second chance at life..

You say you wont do anything to hurt your family which leads me to believe you love them as I am sure they love you & would be willing to help you in whatever way they could..

My advice like i said is to get help, info , support , whatever.. {{{{hugs}}}} to you.. PM me if you want to talk ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hi Haley,

I am with everyone else, seek counseling, take meds to help you through , get help !! You are reaching out so that is a good thing..

Have you talked to ppl that have had tx ? There are so many up-lifting stories.. For many it is truly a second chance at life..

You say you wont do anything to hurt your family which leads me to believe you love them as I am sure they love you & would be willing to help you in whatever way they could..

My advice like i said is to get help, info , support , whatever.. {{{{hugs}}}} to you.. PM me if you want to talk ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hi Haley,

I am with everyone else, seek counseling, take meds to help you through , get help !! You are reaching out so that is a good thing..

Have you talked to ppl that have had tx ? There are so many up-lifting stories.. For many it is truly a second chance at life..

You say you wont do anything to hurt your family which leads me to believe you love them as I am sure they love you & would be willing to help you in whatever way they could..

My advice like i said is to get help, info , support , whatever.. {{{{hugs}}}} to you.. PM me if you want to talk ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hi Haley,

I am with everyone else, seek counseling, take meds to help you through , get help !! You are reaching out so that is a good thing..

Have you talked to ppl that have had tx ? There are so many up-lifting stories.. For many it is truly a second chance at life..

You say you wont do anything to hurt your family which leads me to believe you love them as I am sure they love you & would be willing to help you in whatever way they could..

My advice like i said is to get help, info , support , whatever.. {{{{hugs}}}} to you.. PM me if you want to talk ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hi Haley,
<br />
<br /> I am with everyone else, seek counseling, take meds to help you through , get help !! You are reaching out so that is a good thing..
<br />
<br />Have you talked to ppl that have had tx ? There are so many up-lifting stories.. For many it is truly a second chance at life..
<br />
<br />You say you wont do anything to hurt your family which leads me to believe you love them as I am sure they love you & would be willing to help you in whatever way they could..
<br />
<br />My advice like i said is to get help, info , support , whatever.. {{{{hugs}}}} to you.. PM me if you want to talk ..
<br />
<br /> <img src="i/expressions/heart.gif" border="0"> joni
 
T

TemptressOfTheSea

New member
Hey Everyone,
Thank you all so much for your replies. Looking back on my original post, I definitely had a bout of emotional diarrhea, LOL. I'd like to think I'm doing all the right things...I'm on antidepressants, see a therapist at least once a month, and have great support from my family and friends. I have ALWAYS been a strong person and THOUGHT I had control over my feelings and emotions regarding CF. As I'm sure many of you know, when you start struggling so hard to breathe, and death, although not imminent, is a real possibility, you start freaking out.

I'm 90% through the evaluation process and am PRAYING I will be listed. In terms of the pain meds, I have legitimate pain issues and have been prescribed such meds by my CF doc. I think I took what the transplant team said about such meds (they want you as "narcotic naive" as possible) out of context and freaked out because I thought I'd have to make the choice. You're on the list but you have to grin and bare it if/until you get the tx. That sort of thing.

Phew, everything will be ok in the end I hope. Thanks again for listening and advising!!
 
T

TemptressOfTheSea

New member
Hey Everyone,
Thank you all so much for your replies. Looking back on my original post, I definitely had a bout of emotional diarrhea, LOL. I'd like to think I'm doing all the right things...I'm on antidepressants, see a therapist at least once a month, and have great support from my family and friends. I have ALWAYS been a strong person and THOUGHT I had control over my feelings and emotions regarding CF. As I'm sure many of you know, when you start struggling so hard to breathe, and death, although not imminent, is a real possibility, you start freaking out.

I'm 90% through the evaluation process and am PRAYING I will be listed. In terms of the pain meds, I have legitimate pain issues and have been prescribed such meds by my CF doc. I think I took what the transplant team said about such meds (they want you as "narcotic naive" as possible) out of context and freaked out because I thought I'd have to make the choice. You're on the list but you have to grin and bare it if/until you get the tx. That sort of thing.

Phew, everything will be ok in the end I hope. Thanks again for listening and advising!!
 
T

TemptressOfTheSea

New member
Hey Everyone,
Thank you all so much for your replies. Looking back on my original post, I definitely had a bout of emotional diarrhea, LOL. I'd like to think I'm doing all the right things...I'm on antidepressants, see a therapist at least once a month, and have great support from my family and friends. I have ALWAYS been a strong person and THOUGHT I had control over my feelings and emotions regarding CF. As I'm sure many of you know, when you start struggling so hard to breathe, and death, although not imminent, is a real possibility, you start freaking out.

I'm 90% through the evaluation process and am PRAYING I will be listed. In terms of the pain meds, I have legitimate pain issues and have been prescribed such meds by my CF doc. I think I took what the transplant team said about such meds (they want you as "narcotic naive" as possible) out of context and freaked out because I thought I'd have to make the choice. You're on the list but you have to grin and bare it if/until you get the tx. That sort of thing.

Phew, everything will be ok in the end I hope. Thanks again for listening and advising!!
 
T

TemptressOfTheSea

New member
Hey Everyone,
Thank you all so much for your replies. Looking back on my original post, I definitely had a bout of emotional diarrhea, LOL. I'd like to think I'm doing all the right things...I'm on antidepressants, see a therapist at least once a month, and have great support from my family and friends. I have ALWAYS been a strong person and THOUGHT I had control over my feelings and emotions regarding CF. As I'm sure many of you know, when you start struggling so hard to breathe, and death, although not imminent, is a real possibility, you start freaking out.

I'm 90% through the evaluation process and am PRAYING I will be listed. In terms of the pain meds, I have legitimate pain issues and have been prescribed such meds by my CF doc. I think I took what the transplant team said about such meds (they want you as "narcotic naive" as possible) out of context and freaked out because I thought I'd have to make the choice. You're on the list but you have to grin and bare it if/until you get the tx. That sort of thing.

Phew, everything will be ok in the end I hope. Thanks again for listening and advising!!
 
T

TemptressOfTheSea

New member
Hey Everyone,
<br />Thank you all so much for your replies. Looking back on my original post, I definitely had a bout of emotional diarrhea, LOL. I'd like to think I'm doing all the right things...I'm on antidepressants, see a therapist at least once a month, and have great support from my family and friends. I have ALWAYS been a strong person and THOUGHT I had control over my feelings and emotions regarding CF. As I'm sure many of you know, when you start struggling so hard to breathe, and death, although not imminent, is a real possibility, you start freaking out.
<br />
<br />I'm 90% through the evaluation process and am PRAYING I will be listed. In terms of the pain meds, I have legitimate pain issues and have been prescribed such meds by my CF doc. I think I took what the transplant team said about such meds (they want you as "narcotic naive" as possible) out of context and freaked out because I thought I'd have to make the choice. You're on the list but you have to grin and bare it if/until you get the tx. That sort of thing.
<br />
<br />Phew, everything will be ok in the end I hope. Thanks again for listening and advising!!
 
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