?? about lung damage

[Wheezie]

Thanks for asking this question Melissa, and thanks to Amy for answering it. Put so simply it DOES seem obvious, but I couldn't seem to wrap my brain around it either!

As the cliche goes, there are no stupid questions....<img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[Wheezie]

Thanks for asking this question Melissa, and thanks to Amy for answering it. Put so simply it DOES seem obvious, but I couldn't seem to wrap my brain around it either!

As the cliche goes, there are no stupid questions....<img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[Diane]

I 've been on one or the other antibiotic prettty much my whole life for prophilatic reasons . When i got cepacia 10 years ago i was introduced to iv's every so many months, and oral antibiotics 24/7 . I am usually on 3 or 4 orals at a time prophilatically. Resistance isnt something i can get hung up on because without the antibiotics i get sick very rapidly. One of the reasons for taking 2 or 3 or more at a time is to help with avoiding resistance. The bonus is, the combos of antibiotics work synergistically. I can understand why someone who doesnt have to use them all the time would be afraid to use them for fear of resistance, but sometimes the fear of resistance has to take a back seat, when you're feeling rundown and need them. There are a lot of cf'rs who take them all the time ,and are resistant and they still work. I am resistant to pretty much all of them on paper, but in combos they do their job. Whats interesting is i am even resistant to ones i have never taken, and on occasion susceptible to ones i was resistant to before.

 

[Diane]

I 've been on one or the other antibiotic prettty much my whole life for prophilatic reasons . When i got cepacia 10 years ago i was introduced to iv's every so many months, and oral antibiotics 24/7 . I am usually on 3 or 4 orals at a time prophilatically. Resistance isnt something i can get hung up on because without the antibiotics i get sick very rapidly. One of the reasons for taking 2 or 3 or more at a time is to help with avoiding resistance. The bonus is, the combos of antibiotics work synergistically. I can understand why someone who doesnt have to use them all the time would be afraid to use them for fear of resistance, but sometimes the fear of resistance has to take a back seat, when you're feeling rundown and need them. There are a lot of cf'rs who take them all the time ,and are resistant and they still work. I am resistant to pretty much all of them on paper, but in combos they do their job. Whats interesting is i am even resistant to ones i have never taken, and on occasion susceptible to ones i was resistant to before.

 

[Diane]

I 've been on one or the other antibiotic prettty much my whole life for prophilatic reasons . When i got cepacia 10 years ago i was introduced to iv's every so many months, and oral antibiotics 24/7 . I am usually on 3 or 4 orals at a time prophilatically. Resistance isnt something i can get hung up on because without the antibiotics i get sick very rapidly. One of the reasons for taking 2 or 3 or more at a time is to help with avoiding resistance. The bonus is, the combos of antibiotics work synergistically. I can understand why someone who doesnt have to use them all the time would be afraid to use them for fear of resistance, but sometimes the fear of resistance has to take a back seat, when you're feeling rundown and need them. There are a lot of cf'rs who take them all the time ,and are resistant and they still work. I am resistant to pretty much all of them on paper, but in combos they do their job. Whats interesting is i am even resistant to ones i have never taken, and on occasion susceptible to ones i was resistant to before.

 

[Diane]

I 've been on one or the other antibiotic prettty much my whole life for prophilatic reasons . When i got cepacia 10 years ago i was introduced to iv's every so many months, and oral antibiotics 24/7 . I am usually on 3 or 4 orals at a time prophilatically. Resistance isnt something i can get hung up on because without the antibiotics i get sick very rapidly. One of the reasons for taking 2 or 3 or more at a time is to help with avoiding resistance. The bonus is, the combos of antibiotics work synergistically. I can understand why someone who doesnt have to use them all the time would be afraid to use them for fear of resistance, but sometimes the fear of resistance has to take a back seat, when you're feeling rundown and need them. There are a lot of cf'rs who take them all the time ,and are resistant and they still work. I am resistant to pretty much all of them on paper, but in combos they do their job. Whats interesting is i am even resistant to ones i have never taken, and on occasion susceptible to ones i was resistant to before.

 

[Diane]

I 've been on one or the other antibiotic prettty much my whole life for prophilatic reasons . When i got cepacia 10 years ago i was introduced to iv's every so many months, and oral antibiotics 24/7 . I am usually on 3 or 4 orals at a time prophilatically. Resistance isnt something i can get hung up on because without the antibiotics i get sick very rapidly. One of the reasons for taking 2 or 3 or more at a time is to help with avoiding resistance. The bonus is, the combos of antibiotics work synergistically. I can understand why someone who doesnt have to use them all the time would be afraid to use them for fear of resistance, but sometimes the fear of resistance has to take a back seat, when you're feeling rundown and need them. There are a lot of cf'rs who take them all the time ,and are resistant and they still work. I am resistant to pretty much all of them on paper, but in combos they do their job. Whats interesting is i am even resistant to ones i have never taken, and on occasion susceptible to ones i was resistant to before.

 

[Diane]

I 've been on one or the other antibiotic prettty much my whole life for prophilatic reasons . When i got cepacia 10 years ago i was introduced to iv's every so many months, and oral antibiotics 24/7 . I am usually on 3 or 4 orals at a time prophilatically. Resistance isnt something i can get hung up on because without the antibiotics i get sick very rapidly. One of the reasons for taking 2 or 3 or more at a time is to help with avoiding resistance. The bonus is, the combos of antibiotics work synergistically. I can understand why someone who doesnt have to use them all the time would be afraid to use them for fear of resistance, but sometimes the fear of resistance has to take a back seat, when you're feeling rundown and need them. There are a lot of cf'rs who take them all the time ,and are resistant and they still work. I am resistant to pretty much all of them on paper, but in combos they do their job. Whats interesting is i am even resistant to ones i have never taken, and on occasion susceptible to ones i was resistant to before.

 

[Faust]

I only use abx as a must use situation, and prefer to keep my resistances in my strains really low due to my general lack of reliance on abx's. I prefer to keep my health up with strong vest useage, diet, exercise, and strong supplementation. Of course we are all different and in different situations. If someone already has 30% lung function, debating on frequent abx use is a null point. Personally I recommend (when asked) to people who are in their late 20's or mid 30's that if they have relative strong lung function, and their strains are fairly weak (like mine), try to stay out of the abx nuke cycle as long as possible. I have 3 bugs, all very weak and still no strong resistances: Serratia, pseudo, and non mrsa staph. I usually can go over a year without bleeding becoming an issue that I need to address with some form of oral abx. Granted there are many variables that go into what % lung function a patient will have, but opting out of constant abx use has gotten me to 36 with lung function in the 99% range, with very weak bugs. I just recently got on zithromax, I was hesitant at first (only other abx im on prophac wise is collistin), and i only agreed to it after doing research on it and realizing the risks were very minimal and the rewards were high. I used to be on Tobi for several years, and one of my cultures showed a resistance to it so we discontinued. Later down the road, my culture didn't show a resistance to it, so go figure.


Bottom line is, the decision should be based on your age, current lung function, and strain resistance. So far I guess i'm doing ok. You can keep your inflamation levels down by quite a bit via supplements.

 

[Faust]

I only use abx as a must use situation, and prefer to keep my resistances in my strains really low due to my general lack of reliance on abx's. I prefer to keep my health up with strong vest useage, diet, exercise, and strong supplementation. Of course we are all different and in different situations. If someone already has 30% lung function, debating on frequent abx use is a null point. Personally I recommend (when asked) to people who are in their late 20's or mid 30's that if they have relative strong lung function, and their strains are fairly weak (like mine), try to stay out of the abx nuke cycle as long as possible. I have 3 bugs, all very weak and still no strong resistances: Serratia, pseudo, and non mrsa staph. I usually can go over a year without bleeding becoming an issue that I need to address with some form of oral abx. Granted there are many variables that go into what % lung function a patient will have, but opting out of constant abx use has gotten me to 36 with lung function in the 99% range, with very weak bugs. I just recently got on zithromax, I was hesitant at first (only other abx im on prophac wise is collistin), and i only agreed to it after doing research on it and realizing the risks were very minimal and the rewards were high. I used to be on Tobi for several years, and one of my cultures showed a resistance to it so we discontinued. Later down the road, my culture didn't show a resistance to it, so go figure.


Bottom line is, the decision should be based on your age, current lung function, and strain resistance. So far I guess i'm doing ok. You can keep your inflamation levels down by quite a bit via supplements.

 

[Faust]

I only use abx as a must use situation, and prefer to keep my resistances in my strains really low due to my general lack of reliance on abx's. I prefer to keep my health up with strong vest useage, diet, exercise, and strong supplementation. Of course we are all different and in different situations. If someone already has 30% lung function, debating on frequent abx use is a null point. Personally I recommend (when asked) to people who are in their late 20's or mid 30's that if they have relative strong lung function, and their strains are fairly weak (like mine), try to stay out of the abx nuke cycle as long as possible. I have 3 bugs, all very weak and still no strong resistances: Serratia, pseudo, and non mrsa staph. I usually can go over a year without bleeding becoming an issue that I need to address with some form of oral abx. Granted there are many variables that go into what % lung function a patient will have, but opting out of constant abx use has gotten me to 36 with lung function in the 99% range, with very weak bugs. I just recently got on zithromax, I was hesitant at first (only other abx im on prophac wise is collistin), and i only agreed to it after doing research on it and realizing the risks were very minimal and the rewards were high. I used to be on Tobi for several years, and one of my cultures showed a resistance to it so we discontinued. Later down the road, my culture didn't show a resistance to it, so go figure.


Bottom line is, the decision should be based on your age, current lung function, and strain resistance. So far I guess i'm doing ok. You can keep your inflamation levels down by quite a bit via supplements.

 

[Faust]

I only use abx as a must use situation, and prefer to keep my resistances in my strains really low due to my general lack of reliance on abx's. I prefer to keep my health up with strong vest useage, diet, exercise, and strong supplementation. Of course we are all different and in different situations. If someone already has 30% lung function, debating on frequent abx use is a null point. Personally I recommend (when asked) to people who are in their late 20's or mid 30's that if they have relative strong lung function, and their strains are fairly weak (like mine), try to stay out of the abx nuke cycle as long as possible. I have 3 bugs, all very weak and still no strong resistances: Serratia, pseudo, and non mrsa staph. I usually can go over a year without bleeding becoming an issue that I need to address with some form of oral abx. Granted there are many variables that go into what % lung function a patient will have, but opting out of constant abx use has gotten me to 36 with lung function in the 99% range, with very weak bugs. I just recently got on zithromax, I was hesitant at first (only other abx im on prophac wise is collistin), and i only agreed to it after doing research on it and realizing the risks were very minimal and the rewards were high. I used to be on Tobi for several years, and one of my cultures showed a resistance to it so we discontinued. Later down the road, my culture didn't show a resistance to it, so go figure.


Bottom line is, the decision should be based on your age, current lung function, and strain resistance. So far I guess i'm doing ok. You can keep your inflamation levels down by quite a bit via supplements.

 

[Faust]

I only use abx as a must use situation, and prefer to keep my resistances in my strains really low due to my general lack of reliance on abx's. I prefer to keep my health up with strong vest useage, diet, exercise, and strong supplementation. Of course we are all different and in different situations. If someone already has 30% lung function, debating on frequent abx use is a null point. Personally I recommend (when asked) to people who are in their late 20's or mid 30's that if they have relative strong lung function, and their strains are fairly weak (like mine), try to stay out of the abx nuke cycle as long as possible. I have 3 bugs, all very weak and still no strong resistances: Serratia, pseudo, and non mrsa staph. I usually can go over a year without bleeding becoming an issue that I need to address with some form of oral abx. Granted there are many variables that go into what % lung function a patient will have, but opting out of constant abx use has gotten me to 36 with lung function in the 99% range, with very weak bugs. I just recently got on zithromax, I was hesitant at first (only other abx im on prophac wise is collistin), and i only agreed to it after doing research on it and realizing the risks were very minimal and the rewards were high. I used to be on Tobi for several years, and one of my cultures showed a resistance to it so we discontinued. Later down the road, my culture didn't show a resistance to it, so go figure.


Bottom line is, the decision should be based on your age, current lung function, and strain resistance. So far I guess i'm doing ok. You can keep your inflamation levels down by quite a bit via supplements.

 

[Faust]

I only use abx as a must use situation, and prefer to keep my resistances in my strains really low due to my general lack of reliance on abx's. I prefer to keep my health up with strong vest useage, diet, exercise, and strong supplementation. Of course we are all different and in different situations. If someone already has 30% lung function, debating on frequent abx use is a null point. Personally I recommend (when asked) to people who are in their late 20's or mid 30's that if they have relative strong lung function, and their strains are fairly weak (like mine), try to stay out of the abx nuke cycle as long as possible. I have 3 bugs, all very weak and still no strong resistances: Serratia, pseudo, and non mrsa staph. I usually can go over a year without bleeding becoming an issue that I need to address with some form of oral abx. Granted there are many variables that go into what % lung function a patient will have, but opting out of constant abx use has gotten me to 36 with lung function in the 99% range, with very weak bugs. I just recently got on zithromax, I was hesitant at first (only other abx im on prophac wise is collistin), and i only agreed to it after doing research on it and realizing the risks were very minimal and the rewards were high. I used to be on Tobi for several years, and one of my cultures showed a resistance to it so we discontinued. Later down the road, my culture didn't show a resistance to it, so go figure.


Bottom line is, the decision should be based on your age, current lung function, and strain resistance. So far I guess i'm doing ok. You can keep your inflamation levels down by quite a bit via supplements.