ABPA

[Zara]

You know i honestly think thats the reason i got ABPA

because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc

and seeing that this is the FIRST TIME EVER that i have gotten ABPA

maybe the house renovating is the reason..argh how annoying!

 

[Zara]

You know i honestly think thats the reason i got ABPA

because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc

and seeing that this is the FIRST TIME EVER that i have gotten ABPA

maybe the house renovating is the reason..argh how annoying!

 

[Zara]

You know i honestly think thats the reason i got ABPA

because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc

and seeing that this is the FIRST TIME EVER that i have gotten ABPA

maybe the house renovating is the reason..argh how annoying!

 

[Zara]

You know i honestly think thats the reason i got ABPA

because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc

and seeing that this is the FIRST TIME EVER that i have gotten ABPA

maybe the house renovating is the reason..argh how annoying!

 

[Zara]

You know i honestly think thats the reason i got ABPA
<br />
<br />because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc
<br />
<br />and seeing that this is the FIRST TIME EVER that i have gotten ABPA
<br />
<br />maybe the house renovating is the reason..argh how annoying!

 

[Havoc]

Nicole,

To say that once you have ABPA, you always have it is a bit presumptuous. ABPA is not well understood since it is not easily studied. ABPA is dependent on 2 things, your being exposed to aspergillus (or culturing it even) and also having an allergic reaction to it. While it's true that those of us with ABPA will likely always be hypersensitive to aspergillus, we may not always be culturing it or exposed to it. Therefore a Dx of ABPA does not mean that it's going to be a constant problem for you. Also, there are quite a few people who culture aspergillus and do not have a hypersensitivity to it.

Until more is learned about ABPA high dose steroids will probably remain the standard of care. If you reference the questions asked by Zara and Lilywing they were inquiring about prevention and alternatives to treatment with steroids, which i think is a very valid question given the problems associated with high dose or long term corticosteroid use.

As most of us mentioned removing sources of aspergillus from your environment is the best method of prevention. As far as alternatives to steroids Xolair is the only one I am familiar with. Xolair is, in fact, for SC injection. However it's dosing schedule is based on total serum IgE and weight. Your dose was likely over 150mg, which left your physician with 2 choices, use multiple sites (up to 3), which would have resulted in multiple injections, or give then entire dose IM, which can accommodate larger volumes. It seems in your case that they went the IM route, although I was unable to locate any literature that advocated IM injection. Usually IM v. SC isn't an issue unless rate of absorption is a factor. Xolair was associated with some cases of anaphylaxis in clinical trials which is probably why they chose the slower absorption of the SC route. Since you were being treated by an allergist they may have been more comfortable giving it IM and treating any reaction should it on the off chance occur. Saying that it is not a SC injection is very misleading, as for some people it very well may be a SC injection if their dose is 150mg, or multiple SC injections if their dose is higher than 150mg and their physician decides to play by the books.

 

[Havoc]

Nicole,

To say that once you have ABPA, you always have it is a bit presumptuous. ABPA is not well understood since it is not easily studied. ABPA is dependent on 2 things, your being exposed to aspergillus (or culturing it even) and also having an allergic reaction to it. While it's true that those of us with ABPA will likely always be hypersensitive to aspergillus, we may not always be culturing it or exposed to it. Therefore a Dx of ABPA does not mean that it's going to be a constant problem for you. Also, there are quite a few people who culture aspergillus and do not have a hypersensitivity to it.

Until more is learned about ABPA high dose steroids will probably remain the standard of care. If you reference the questions asked by Zara and Lilywing they were inquiring about prevention and alternatives to treatment with steroids, which i think is a very valid question given the problems associated with high dose or long term corticosteroid use.

As most of us mentioned removing sources of aspergillus from your environment is the best method of prevention. As far as alternatives to steroids Xolair is the only one I am familiar with. Xolair is, in fact, for SC injection. However it's dosing schedule is based on total serum IgE and weight. Your dose was likely over 150mg, which left your physician with 2 choices, use multiple sites (up to 3), which would have resulted in multiple injections, or give then entire dose IM, which can accommodate larger volumes. It seems in your case that they went the IM route, although I was unable to locate any literature that advocated IM injection. Usually IM v. SC isn't an issue unless rate of absorption is a factor. Xolair was associated with some cases of anaphylaxis in clinical trials which is probably why they chose the slower absorption of the SC route. Since you were being treated by an allergist they may have been more comfortable giving it IM and treating any reaction should it on the off chance occur. Saying that it is not a SC injection is very misleading, as for some people it very well may be a SC injection if their dose is 150mg, or multiple SC injections if their dose is higher than 150mg and their physician decides to play by the books.

 

[Havoc]

Nicole,

To say that once you have ABPA, you always have it is a bit presumptuous. ABPA is not well understood since it is not easily studied. ABPA is dependent on 2 things, your being exposed to aspergillus (or culturing it even) and also having an allergic reaction to it. While it's true that those of us with ABPA will likely always be hypersensitive to aspergillus, we may not always be culturing it or exposed to it. Therefore a Dx of ABPA does not mean that it's going to be a constant problem for you. Also, there are quite a few people who culture aspergillus and do not have a hypersensitivity to it.

Until more is learned about ABPA high dose steroids will probably remain the standard of care. If you reference the questions asked by Zara and Lilywing they were inquiring about prevention and alternatives to treatment with steroids, which i think is a very valid question given the problems associated with high dose or long term corticosteroid use.

As most of us mentioned removing sources of aspergillus from your environment is the best method of prevention. As far as alternatives to steroids Xolair is the only one I am familiar with. Xolair is, in fact, for SC injection. However it's dosing schedule is based on total serum IgE and weight. Your dose was likely over 150mg, which left your physician with 2 choices, use multiple sites (up to 3), which would have resulted in multiple injections, or give then entire dose IM, which can accommodate larger volumes. It seems in your case that they went the IM route, although I was unable to locate any literature that advocated IM injection. Usually IM v. SC isn't an issue unless rate of absorption is a factor. Xolair was associated with some cases of anaphylaxis in clinical trials which is probably why they chose the slower absorption of the SC route. Since you were being treated by an allergist they may have been more comfortable giving it IM and treating any reaction should it on the off chance occur. Saying that it is not a SC injection is very misleading, as for some people it very well may be a SC injection if their dose is 150mg, or multiple SC injections if their dose is higher than 150mg and their physician decides to play by the books.

 

[Havoc]

Nicole,

To say that once you have ABPA, you always have it is a bit presumptuous. ABPA is not well understood since it is not easily studied. ABPA is dependent on 2 things, your being exposed to aspergillus (or culturing it even) and also having an allergic reaction to it. While it's true that those of us with ABPA will likely always be hypersensitive to aspergillus, we may not always be culturing it or exposed to it. Therefore a Dx of ABPA does not mean that it's going to be a constant problem for you. Also, there are quite a few people who culture aspergillus and do not have a hypersensitivity to it.

Until more is learned about ABPA high dose steroids will probably remain the standard of care. If you reference the questions asked by Zara and Lilywing they were inquiring about prevention and alternatives to treatment with steroids, which i think is a very valid question given the problems associated with high dose or long term corticosteroid use.

As most of us mentioned removing sources of aspergillus from your environment is the best method of prevention. As far as alternatives to steroids Xolair is the only one I am familiar with. Xolair is, in fact, for SC injection. However it's dosing schedule is based on total serum IgE and weight. Your dose was likely over 150mg, which left your physician with 2 choices, use multiple sites (up to 3), which would have resulted in multiple injections, or give then entire dose IM, which can accommodate larger volumes. It seems in your case that they went the IM route, although I was unable to locate any literature that advocated IM injection. Usually IM v. SC isn't an issue unless rate of absorption is a factor. Xolair was associated with some cases of anaphylaxis in clinical trials which is probably why they chose the slower absorption of the SC route. Since you were being treated by an allergist they may have been more comfortable giving it IM and treating any reaction should it on the off chance occur. Saying that it is not a SC injection is very misleading, as for some people it very well may be a SC injection if their dose is 150mg, or multiple SC injections if their dose is higher than 150mg and their physician decides to play by the books.

 

[Havoc]

Nicole,
<br />
<br />To say that once you have ABPA, you always have it is a bit presumptuous. ABPA is not well understood since it is not easily studied. ABPA is dependent on 2 things, your being exposed to aspergillus (or culturing it even) and also having an allergic reaction to it. While it's true that those of us with ABPA will likely always be hypersensitive to aspergillus, we may not always be culturing it or exposed to it. Therefore a Dx of ABPA does not mean that it's going to be a constant problem for you. Also, there are quite a few people who culture aspergillus and do not have a hypersensitivity to it.
<br />
<br />Until more is learned about ABPA high dose steroids will probably remain the standard of care. If you reference the questions asked by Zara and Lilywing they were inquiring about prevention and alternatives to treatment with steroids, which i think is a very valid question given the problems associated with high dose or long term corticosteroid use.
<br />
<br />As most of us mentioned removing sources of aspergillus from your environment is the best method of prevention. As far as alternatives to steroids Xolair is the only one I am familiar with. Xolair is, in fact, for SC injection. However it's dosing schedule is based on total serum IgE and weight. Your dose was likely over 150mg, which left your physician with 2 choices, use multiple sites (up to 3), which would have resulted in multiple injections, or give then entire dose IM, which can accommodate larger volumes. It seems in your case that they went the IM route, although I was unable to locate any literature that advocated IM injection. Usually IM v. SC isn't an issue unless rate of absorption is a factor. Xolair was associated with some cases of anaphylaxis in clinical trials which is probably why they chose the slower absorption of the SC route. Since you were being treated by an allergist they may have been more comfortable giving it IM and treating any reaction should it on the off chance occur. Saying that it is not a SC injection is very misleading, as for some people it very well may be a SC injection if their dose is 150mg, or multiple SC injections if their dose is higher than 150mg and their physician decides to play by the books.
<br />
<br />

 

[Havoc]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Zara</b></i>

You know i honestly think thats the reason i got ABPA



because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc



and seeing that this is the FIRST TIME EVER that i have gotten ABPA



maybe the house renovating is the reason..argh how annoying!</end quote></div>

I believe that's how I acquired mine as well. The house I was renting was around 80 years old. They started tearing up the walls to re-wire and install new windows. Then I started having wheezes every day (I never have had wheezing unless I had an active pneumonia). I have since broken my lease and moved out of that house, but not before having to do 6 months of steroids which eventually rendered me insulin resistant. I also gained 20some pounds and had almost every adverse effect one can have with corticosteroids.

 

[Havoc]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Zara</b></i>

You know i honestly think thats the reason i got ABPA



because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc



and seeing that this is the FIRST TIME EVER that i have gotten ABPA



maybe the house renovating is the reason..argh how annoying!</end quote></div>

I believe that's how I acquired mine as well. The house I was renting was around 80 years old. They started tearing up the walls to re-wire and install new windows. Then I started having wheezes every day (I never have had wheezing unless I had an active pneumonia). I have since broken my lease and moved out of that house, but not before having to do 6 months of steroids which eventually rendered me insulin resistant. I also gained 20some pounds and had almost every adverse effect one can have with corticosteroids.

 

[Havoc]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Zara</b></i>

You know i honestly think thats the reason i got ABPA



because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc



and seeing that this is the FIRST TIME EVER that i have gotten ABPA



maybe the house renovating is the reason..argh how annoying!</end quote></div>

I believe that's how I acquired mine as well. The house I was renting was around 80 years old. They started tearing up the walls to re-wire and install new windows. Then I started having wheezes every day (I never have had wheezing unless I had an active pneumonia). I have since broken my lease and moved out of that house, but not before having to do 6 months of steroids which eventually rendered me insulin resistant. I also gained 20some pounds and had almost every adverse effect one can have with corticosteroids.

 

[Havoc]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Zara</b></i>

You know i honestly think thats the reason i got ABPA



because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc



and seeing that this is the FIRST TIME EVER that i have gotten ABPA



maybe the house renovating is the reason..argh how annoying!</end quote>

I believe that's how I acquired mine as well. The house I was renting was around 80 years old. They started tearing up the walls to re-wire and install new windows. Then I started having wheezes every day (I never have had wheezing unless I had an active pneumonia). I have since broken my lease and moved out of that house, but not before having to do 6 months of steroids which eventually rendered me insulin resistant. I also gained 20some pounds and had almost every adverse effect one can have with corticosteroids.

 

[Havoc]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Zara</b></i>
<br />
<br />You know i honestly think thats the reason i got ABPA
<br />
<br />
<br />
<br />because right now we are like building another room in our house so there is like dust everywhere, builders painting etc etc
<br />
<br />
<br />
<br />and seeing that this is the FIRST TIME EVER that i have gotten ABPA
<br />
<br />
<br />
<br />maybe the house renovating is the reason..argh how annoying!</end quote>
<br />
<br />I believe that's how I acquired mine as well. The house I was renting was around 80 years old. They started tearing up the walls to re-wire and install new windows. Then I started having wheezes every day (I never have had wheezing unless I had an active pneumonia). I have since broken my lease and moved out of that house, but not before having to do 6 months of steroids which eventually rendered me insulin resistant. I also gained 20some pounds and had almost every adverse effect one can have with corticosteroids.

 

[lilywing]

Last year, my parents and I moved to a house with a central indoor pool, and began extensive renovations to the basement. AAAH! In retrospect, that was not a good idea! However, I only learned about aspergillus after I began colonizing it. Then it was determined that I had ABPA.
Interestingly (and most frustratingly), I asked my CF doc repeatedly if the change in lung function I had been experiencing might be related to the renovations, or maybe the pool. I told him I was feeling more asthmatic than normal, I felt sick in different sorta way...He said "Oh, no, it's not that."

I was later admitted by another CF doc who confirmed the diagnoses. My parents were (thankfully) able to sell the house immediately. The new doc said that this was the best thing we could have done.

I can NOT understand why my other doctor did not make this connection. It now seems perfectly clear to me. Then again, in my experience with him, nothing is right unless it's his idea! Anyone else have that problem!?

Anyhow, treatment is pending. I was put on a course of itraconozole for a short time, but was not feeling well with it. I am absolutely AFRAID of prednisone, so I was just wanting to know more about alternate ways to bring down the IgE. Is 500 considered high? I have seen little advertisements for drugs that claim to do so. I was just a little wary of their claims.

I feel so grateful to have this site. People here seem to know more than my own clinic sometimes!

Thank you for all your input!!

 

[lilywing]

Last year, my parents and I moved to a house with a central indoor pool, and began extensive renovations to the basement. AAAH! In retrospect, that was not a good idea! However, I only learned about aspergillus after I began colonizing it. Then it was determined that I had ABPA.
Interestingly (and most frustratingly), I asked my CF doc repeatedly if the change in lung function I had been experiencing might be related to the renovations, or maybe the pool. I told him I was feeling more asthmatic than normal, I felt sick in different sorta way...He said "Oh, no, it's not that."

I was later admitted by another CF doc who confirmed the diagnoses. My parents were (thankfully) able to sell the house immediately. The new doc said that this was the best thing we could have done.

I can NOT understand why my other doctor did not make this connection. It now seems perfectly clear to me. Then again, in my experience with him, nothing is right unless it's his idea! Anyone else have that problem!?

Anyhow, treatment is pending. I was put on a course of itraconozole for a short time, but was not feeling well with it. I am absolutely AFRAID of prednisone, so I was just wanting to know more about alternate ways to bring down the IgE. Is 500 considered high? I have seen little advertisements for drugs that claim to do so. I was just a little wary of their claims.

I feel so grateful to have this site. People here seem to know more than my own clinic sometimes!

Thank you for all your input!!

 

[lilywing]

Last year, my parents and I moved to a house with a central indoor pool, and began extensive renovations to the basement. AAAH! In retrospect, that was not a good idea! However, I only learned about aspergillus after I began colonizing it. Then it was determined that I had ABPA.
Interestingly (and most frustratingly), I asked my CF doc repeatedly if the change in lung function I had been experiencing might be related to the renovations, or maybe the pool. I told him I was feeling more asthmatic than normal, I felt sick in different sorta way...He said "Oh, no, it's not that."

I was later admitted by another CF doc who confirmed the diagnoses. My parents were (thankfully) able to sell the house immediately. The new doc said that this was the best thing we could have done.

I can NOT understand why my other doctor did not make this connection. It now seems perfectly clear to me. Then again, in my experience with him, nothing is right unless it's his idea! Anyone else have that problem!?

Anyhow, treatment is pending. I was put on a course of itraconozole for a short time, but was not feeling well with it. I am absolutely AFRAID of prednisone, so I was just wanting to know more about alternate ways to bring down the IgE. Is 500 considered high? I have seen little advertisements for drugs that claim to do so. I was just a little wary of their claims.

I feel so grateful to have this site. People here seem to know more than my own clinic sometimes!

Thank you for all your input!!

 

[lilywing]

Last year, my parents and I moved to a house with a central indoor pool, and began extensive renovations to the basement. AAAH! In retrospect, that was not a good idea! However, I only learned about aspergillus after I began colonizing it. Then it was determined that I had ABPA.
Interestingly (and most frustratingly), I asked my CF doc repeatedly if the change in lung function I had been experiencing might be related to the renovations, or maybe the pool. I told him I was feeling more asthmatic than normal, I felt sick in different sorta way...He said "Oh, no, it's not that."

I was later admitted by another CF doc who confirmed the diagnoses. My parents were (thankfully) able to sell the house immediately. The new doc said that this was the best thing we could have done.

I can NOT understand why my other doctor did not make this connection. It now seems perfectly clear to me. Then again, in my experience with him, nothing is right unless it's his idea! Anyone else have that problem!?

Anyhow, treatment is pending. I was put on a course of itraconozole for a short time, but was not feeling well with it. I am absolutely AFRAID of prednisone, so I was just wanting to know more about alternate ways to bring down the IgE. Is 500 considered high? I have seen little advertisements for drugs that claim to do so. I was just a little wary of their claims.

I feel so grateful to have this site. People here seem to know more than my own clinic sometimes!

Thank you for all your input!!

 

[lilywing]

Last year, my parents and I moved to a house with a central indoor pool, and began extensive renovations to the basement. AAAH! In retrospect, that was not a good idea! However, I only learned about aspergillus after I began colonizing it. Then it was determined that I had ABPA.
<br />Interestingly (and most frustratingly), I asked my CF doc repeatedly if the change in lung function I had been experiencing might be related to the renovations, or maybe the pool. I told him I was feeling more asthmatic than normal, I felt sick in different sorta way...He said "Oh, no, it's not that."
<br />
<br />I was later admitted by another CF doc who confirmed the diagnoses. My parents were (thankfully) able to sell the house immediately. The new doc said that this was the best thing we could have done.
<br />
<br />I can NOT understand why my other doctor did not make this connection. It now seems perfectly clear to me. Then again, in my experience with him, nothing is right unless it's his idea! Anyone else have that problem!?
<br />
<br />Anyhow, treatment is pending. I was put on a course of itraconozole for a short time, but was not feeling well with it. I am absolutely AFRAID of prednisone, so I was just wanting to know more about alternate ways to bring down the IgE. Is 500 considered high? I have seen little advertisements for drugs that claim to do so. I was just a little wary of their claims.
<br />
<br />I feel so grateful to have this site. People here seem to know more than my own clinic sometimes!
<br />
<br />Thank you for all your input!!