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adult diagnosis

DarbSkull

New member
Welcome mmac. <br>

I was diagnosed at 29 and my twin sis was diagnosed at 30. It seems to me that if you are not diagnosed by your pediatrician you are going to have a hard time being diagnosed. I was told by two different docs that they didn't even consider CF because surely I would have been tested for that when I was a kid...<br>

Details in <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?forumid=859">my blog.</a>
 

DarbSkull

New member
Welcome mmac. <br>

I was diagnosed at 29 and my twin sis was diagnosed at 30. It seems to me that if you are not diagnosed by your pediatrician you are going to have a hard time being diagnosed. I was told by two different docs that they didn't even consider CF because surely I would have been tested for that when I was a kid...<br>

Details in <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?forumid=859">my blog.</a>
 

DarbSkull

New member
Welcome mmac. <br>

I was diagnosed at 29 and my twin sis was diagnosed at 30. It seems to me that if you are not diagnosed by your pediatrician you are going to have a hard time being diagnosed. I was told by two different docs that they didn't even consider CF because surely I would have been tested for that when I was a kid...<br>

Details in <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?forumid=859">my blog.</a>
 

DarbSkull

New member
Welcome mmac. <br>

I was diagnosed at 29 and my twin sis was diagnosed at 30. It seems to me that if you are not diagnosed by your pediatrician you are going to have a hard time being diagnosed. I was told by two different docs that they didn't even consider CF because surely I would have been tested for that when I was a kid...<br>

Details in <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?forumid=859">my blog.</a>
 

DarbSkull

New member
Welcome mmac. <br>

I was diagnosed at 29 and my twin sis was diagnosed at 30. It seems to me that if you are not diagnosed by your pediatrician you are going to have a hard time being diagnosed. I was told by two different docs that they didn't even consider CF because surely I would have been tested for that when I was a kid...<br>

Details in <a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/index.cfm?forumid=859">my blog.</a>
 

lightNlife

New member
Well, where do I start? First, I'm glad you found this site. You will be wonderfully pleased at the wealth of information all the members here have to share. You've already gotten a good sampling of that with some of the diagnosis stories that have been posted. Congratulations on being so physically fit. Although there really isn't such a thing as "mild" CF, there are mild stages of it. You are indeed blessed to have gone so long with what was, for all intents and purposes, a "normal" life.

I'm 27, diagnosed at birth. I'm an environmental scientist and a professional freelance writer. I do a lot of writing on the subject of CF. If you visit any of my blogs, you'll find links to things I've written. Being an adult with CF is a challenge, and in many ways, we have to educate a whole new generation of doctors about how to deal with us. We're all learning together.

I hope you'll avail yourself of the resources here. Also, here are links to my blogs:

<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com
">http://livingwellwithCF.blogspot.com
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com
">http://understandingcysticfibrosis.blogspot.com
</a>
I'm also on MySpace <a target=_blank class=ftalternatingbarlinklarge href="http://myspace.com/educatedguesser
">http://myspace.com/educatedguesser
</a>
You may also enjoy seeing my husband and me in a video that was recently launched on the site cfvoice.com. I have a link available in my blog on this site.

All the best,
Lauren
 

lightNlife

New member
Well, where do I start? First, I'm glad you found this site. You will be wonderfully pleased at the wealth of information all the members here have to share. You've already gotten a good sampling of that with some of the diagnosis stories that have been posted. Congratulations on being so physically fit. Although there really isn't such a thing as "mild" CF, there are mild stages of it. You are indeed blessed to have gone so long with what was, for all intents and purposes, a "normal" life.

I'm 27, diagnosed at birth. I'm an environmental scientist and a professional freelance writer. I do a lot of writing on the subject of CF. If you visit any of my blogs, you'll find links to things I've written. Being an adult with CF is a challenge, and in many ways, we have to educate a whole new generation of doctors about how to deal with us. We're all learning together.

I hope you'll avail yourself of the resources here. Also, here are links to my blogs:

<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com
">http://livingwellwithCF.blogspot.com
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com
">http://understandingcysticfibrosis.blogspot.com
</a>
I'm also on MySpace <a target=_blank class=ftalternatingbarlinklarge href="http://myspace.com/educatedguesser
">http://myspace.com/educatedguesser
</a>
You may also enjoy seeing my husband and me in a video that was recently launched on the site cfvoice.com. I have a link available in my blog on this site.

All the best,
Lauren
 

lightNlife

New member
Well, where do I start? First, I'm glad you found this site. You will be wonderfully pleased at the wealth of information all the members here have to share. You've already gotten a good sampling of that with some of the diagnosis stories that have been posted. Congratulations on being so physically fit. Although there really isn't such a thing as "mild" CF, there are mild stages of it. You are indeed blessed to have gone so long with what was, for all intents and purposes, a "normal" life.

I'm 27, diagnosed at birth. I'm an environmental scientist and a professional freelance writer. I do a lot of writing on the subject of CF. If you visit any of my blogs, you'll find links to things I've written. Being an adult with CF is a challenge, and in many ways, we have to educate a whole new generation of doctors about how to deal with us. We're all learning together.

I hope you'll avail yourself of the resources here. Also, here are links to my blogs:

<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com
">http://livingwellwithCF.blogspot.com
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com
">http://understandingcysticfibrosis.blogspot.com
</a>
I'm also on MySpace <a target=_blank class=ftalternatingbarlinklarge href="http://myspace.com/educatedguesser
">http://myspace.com/educatedguesser
</a>
You may also enjoy seeing my husband and me in a video that was recently launched on the site cfvoice.com. I have a link available in my blog on this site.

All the best,
Lauren
 

lightNlife

New member
Well, where do I start? First, I'm glad you found this site. You will be wonderfully pleased at the wealth of information all the members here have to share. You've already gotten a good sampling of that with some of the diagnosis stories that have been posted. Congratulations on being so physically fit. Although there really isn't such a thing as "mild" CF, there are mild stages of it. You are indeed blessed to have gone so long with what was, for all intents and purposes, a "normal" life.

I'm 27, diagnosed at birth. I'm an environmental scientist and a professional freelance writer. I do a lot of writing on the subject of CF. If you visit any of my blogs, you'll find links to things I've written. Being an adult with CF is a challenge, and in many ways, we have to educate a whole new generation of doctors about how to deal with us. We're all learning together.

I hope you'll avail yourself of the resources here. Also, here are links to my blogs:

<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com
">http://livingwellwithCF.blogspot.com
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com
">http://understandingcysticfibrosis.blogspot.com
</a>
I'm also on MySpace <a target=_blank class=ftalternatingbarlinklarge href="http://myspace.com/educatedguesser
">http://myspace.com/educatedguesser
</a>
You may also enjoy seeing my husband and me in a video that was recently launched on the site cfvoice.com. I have a link available in my blog on this site.

All the best,
Lauren
 

lightNlife

New member
Well, where do I start? First, I'm glad you found this site. You will be wonderfully pleased at the wealth of information all the members here have to share. You've already gotten a good sampling of that with some of the diagnosis stories that have been posted. Congratulations on being so physically fit. Although there really isn't such a thing as "mild" CF, there are mild stages of it. You are indeed blessed to have gone so long with what was, for all intents and purposes, a "normal" life.

I'm 27, diagnosed at birth. I'm an environmental scientist and a professional freelance writer. I do a lot of writing on the subject of CF. If you visit any of my blogs, you'll find links to things I've written. Being an adult with CF is a challenge, and in many ways, we have to educate a whole new generation of doctors about how to deal with us. We're all learning together.

I hope you'll avail yourself of the resources here. Also, here are links to my blogs:

<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com
">http://livingwellwithCF.blogspot.com
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com
">http://understandingcysticfibrosis.blogspot.com
</a>
I'm also on MySpace <a target=_blank class=ftalternatingbarlinklarge href="http://myspace.com/educatedguesser
">http://myspace.com/educatedguesser
</a>
You may also enjoy seeing my husband and me in a video that was recently launched on the site cfvoice.com. I have a link available in my blog on this site.

All the best,
Lauren
 

beleache

New member
Hi & Welcome to the site... I was dx at 44 y/o , i am now 55, my sister was 50 the year we were dxd.. ( sadly she died that year from breast cancer) We both had many health problems throughout the years...So in answer to your question, no it is not that uncommon to get a late dx... If you have a questions for me, you can pm me... Take care and God Bless...joni
 

beleache

New member
Hi & Welcome to the site... I was dx at 44 y/o , i am now 55, my sister was 50 the year we were dxd.. ( sadly she died that year from breast cancer) We both had many health problems throughout the years...So in answer to your question, no it is not that uncommon to get a late dx... If you have a questions for me, you can pm me... Take care and God Bless...joni
 

beleache

New member
Hi & Welcome to the site... I was dx at 44 y/o , i am now 55, my sister was 50 the year we were dxd.. ( sadly she died that year from breast cancer) We both had many health problems throughout the years...So in answer to your question, no it is not that uncommon to get a late dx... If you have a questions for me, you can pm me... Take care and God Bless...joni
 

beleache

New member
Hi & Welcome to the site... I was dx at 44 y/o , i am now 55, my sister was 50 the year we were dxd.. ( sadly she died that year from breast cancer) We both had many health problems throughout the years...So in answer to your question, no it is not that uncommon to get a late dx... If you have a questions for me, you can pm me... Take care and God Bless...joni
 

beleache

New member
Hi & Welcome to the site... I was dx at 44 y/o , i am now 55, my sister was 50 the year we were dxd.. ( sadly she died that year from breast cancer) We both had many health problems throughout the years...So in answer to your question, no it is not that uncommon to get a late dx... If you have a questions for me, you can pm me... Take care and God Bless...joni
 
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