adult diagnosis

[mmac]

Hello,
I am a 34.5 year old female that has been a medical marvel for over a year or more and at my insistance of some serious issue not addressed i have been referred to an endor. Well after a three hour appointment, i waqs told that it seems to be CF!! OK! after going home and scheduleing the CFTR and the like to confirm or deny I did a little research. I am wondering why the only information I have seem thus far about diagnosis is for the very young. Is it hat uncommon to go through life as an athlete and not be diagnosed until know if indeed thats what ails me (and believe me I have 80% of the symptoms some of which have ailed me my entire existance)? I am very confused and in a state of bewilderment at this point. I am a scientist and do have a pretty good understanding on human A&P, so nothing is too far reached, but I wanted to reach out and find out if this was really uncommon at this point in life.

Thanks for any and all feed back

mmac

 

[mmac]

Hello,
I am a 34.5 year old female that has been a medical marvel for over a year or more and at my insistance of some serious issue not addressed i have been referred to an endor. Well after a three hour appointment, i waqs told that it seems to be CF!! OK! after going home and scheduleing the CFTR and the like to confirm or deny I did a little research. I am wondering why the only information I have seem thus far about diagnosis is for the very young. Is it hat uncommon to go through life as an athlete and not be diagnosed until know if indeed thats what ails me (and believe me I have 80% of the symptoms some of which have ailed me my entire existance)? I am very confused and in a state of bewilderment at this point. I am a scientist and do have a pretty good understanding on human A&P, so nothing is too far reached, but I wanted to reach out and find out if this was really uncommon at this point in life.

Thanks for any and all feed back

mmac

 

[mmac]

Hello,
I am a 34.5 year old female that has been a medical marvel for over a year or more and at my insistance of some serious issue not addressed i have been referred to an endor. Well after a three hour appointment, i waqs told that it seems to be CF!! OK! after going home and scheduleing the CFTR and the like to confirm or deny I did a little research. I am wondering why the only information I have seem thus far about diagnosis is for the very young. Is it hat uncommon to go through life as an athlete and not be diagnosed until know if indeed thats what ails me (and believe me I have 80% of the symptoms some of which have ailed me my entire existance)? I am very confused and in a state of bewilderment at this point. I am a scientist and do have a pretty good understanding on human A&P, so nothing is too far reached, but I wanted to reach out and find out if this was really uncommon at this point in life.

Thanks for any and all feed back

mmac

 

[mmac]

Hello,
I am a 34.5 year old female that has been a medical marvel for over a year or more and at my insistance of some serious issue not addressed i have been referred to an endor. Well after a three hour appointment, i waqs told that it seems to be CF!! OK! after going home and scheduleing the CFTR and the like to confirm or deny I did a little research. I am wondering why the only information I have seem thus far about diagnosis is for the very young. Is it hat uncommon to go through life as an athlete and not be diagnosed until know if indeed thats what ails me (and believe me I have 80% of the symptoms some of which have ailed me my entire existance)? I am very confused and in a state of bewilderment at this point. I am a scientist and do have a pretty good understanding on human A&P, so nothing is too far reached, but I wanted to reach out and find out if this was really uncommon at this point in life.

Thanks for any and all feed back

mmac

 

[mmac]

Hello,
I am a 34.5 year old female that has been a medical marvel for over a year or more and at my insistance of some serious issue not addressed i have been referred to an endor. Well after a three hour appointment, i waqs told that it seems to be CF!! OK! after going home and scheduleing the CFTR and the like to confirm or deny I did a little research. I am wondering why the only information I have seem thus far about diagnosis is for the very young. Is it hat uncommon to go through life as an athlete and not be diagnosed until know if indeed thats what ails me (and believe me I have 80% of the symptoms some of which have ailed me my entire existance)? I am very confused and in a state of bewilderment at this point. I am a scientist and do have a pretty good understanding on human A&P, so nothing is too far reached, but I wanted to reach out and find out if this was really uncommon at this point in life.

Thanks for any and all feed back

mmac

 

[JORDYSMOM]

Hi nmac. Welcome to the site. My son was diagnosed at age 15. He wouldn't have been dx then if it weren't for the fact that we were sent to a pulmo by his spine surgeon. You see he had been dx with asthma at the age of 5, and the surgeon wanted to make sure his lungs could handle the 8 hour surgery. It was at first a big shock, but then a lot of questions I've had over the years seemed to be answered by this diagnosis.

There are adults on this site who weren't dx until in their 30's and 40's. I'm sure some of those people will see your post and share their stories too. I'm sorry you are facing this, but at least if you do have a dx, you can start treating yourself properly and hopefully improve your quality of life. Good luck.

Stacey

 

[JORDYSMOM]

Hi nmac. Welcome to the site. My son was diagnosed at age 15. He wouldn't have been dx then if it weren't for the fact that we were sent to a pulmo by his spine surgeon. You see he had been dx with asthma at the age of 5, and the surgeon wanted to make sure his lungs could handle the 8 hour surgery. It was at first a big shock, but then a lot of questions I've had over the years seemed to be answered by this diagnosis.

There are adults on this site who weren't dx until in their 30's and 40's. I'm sure some of those people will see your post and share their stories too. I'm sorry you are facing this, but at least if you do have a dx, you can start treating yourself properly and hopefully improve your quality of life. Good luck.

Stacey

 

[JORDYSMOM]

Hi nmac. Welcome to the site. My son was diagnosed at age 15. He wouldn't have been dx then if it weren't for the fact that we were sent to a pulmo by his spine surgeon. You see he had been dx with asthma at the age of 5, and the surgeon wanted to make sure his lungs could handle the 8 hour surgery. It was at first a big shock, but then a lot of questions I've had over the years seemed to be answered by this diagnosis.

There are adults on this site who weren't dx until in their 30's and 40's. I'm sure some of those people will see your post and share their stories too. I'm sorry you are facing this, but at least if you do have a dx, you can start treating yourself properly and hopefully improve your quality of life. Good luck.

Stacey

 

[JORDYSMOM]

Hi nmac. Welcome to the site. My son was diagnosed at age 15. He wouldn't have been dx then if it weren't for the fact that we were sent to a pulmo by his spine surgeon. You see he had been dx with asthma at the age of 5, and the surgeon wanted to make sure his lungs could handle the 8 hour surgery. It was at first a big shock, but then a lot of questions I've had over the years seemed to be answered by this diagnosis.

There are adults on this site who weren't dx until in their 30's and 40's. I'm sure some of those people will see your post and share their stories too. I'm sorry you are facing this, but at least if you do have a dx, you can start treating yourself properly and hopefully improve your quality of life. Good luck.

Stacey

 

[JORDYSMOM]

Hi nmac. Welcome to the site. My son was diagnosed at age 15. He wouldn't have been dx then if it weren't for the fact that we were sent to a pulmo by his spine surgeon. You see he had been dx with asthma at the age of 5, and the surgeon wanted to make sure his lungs could handle the 8 hour surgery. It was at first a big shock, but then a lot of questions I've had over the years seemed to be answered by this diagnosis.

There are adults on this site who weren't dx until in their 30's and 40's. I'm sure some of those people will see your post and share their stories too. I'm sorry you are facing this, but at least if you do have a dx, you can start treating yourself properly and hopefully improve your quality of life. Good luck.

Stacey

 

[JORDYSMOM]

sorry

 

[JORDYSMOM]

sorry

 

[JORDYSMOM]

sorry

 

[JORDYSMOM]

sorry

 

[JORDYSMOM]

sorry

 

[JazzysMom]

CF is still considered a "childhood" disease & most diagnoses are when young. BUT as time goes on & CF is talked about more, it is becoming apparent of how many adults have gone misdiagnosed or undiagnosed.

We have quite a few "old timers" who were diagnosed late. Some didnt present classic symptoms & some just had crappy doctors who never thought of the idea.

I know my clinic has had many asmthatics who ended up being diagnosed with CF.

Also some of the info on the internet is outdated so its important that when you are researching things you stick with organizations that keep up to date info. The Cystic Fibrosis Foundation & Boomer Foundation are two that are up to date with info.

Remember that the internet often doesnt have old info removed so its a combo of old, new, truth & false out there.

That being said....I am sure its a hell of a shock to you. BUT you have found a good group to come to.

Welcome!

 

[JazzysMom]

CF is still considered a "childhood" disease & most diagnoses are when young. BUT as time goes on & CF is talked about more, it is becoming apparent of how many adults have gone misdiagnosed or undiagnosed.

We have quite a few "old timers" who were diagnosed late. Some didnt present classic symptoms & some just had crappy doctors who never thought of the idea.

I know my clinic has had many asmthatics who ended up being diagnosed with CF.

Also some of the info on the internet is outdated so its important that when you are researching things you stick with organizations that keep up to date info. The Cystic Fibrosis Foundation & Boomer Foundation are two that are up to date with info.

Remember that the internet often doesnt have old info removed so its a combo of old, new, truth & false out there.

That being said....I am sure its a hell of a shock to you. BUT you have found a good group to come to.

Welcome!

 

[JazzysMom]

CF is still considered a "childhood" disease & most diagnoses are when young. BUT as time goes on & CF is talked about more, it is becoming apparent of how many adults have gone misdiagnosed or undiagnosed.

We have quite a few "old timers" who were diagnosed late. Some didnt present classic symptoms & some just had crappy doctors who never thought of the idea.

I know my clinic has had many asmthatics who ended up being diagnosed with CF.

Also some of the info on the internet is outdated so its important that when you are researching things you stick with organizations that keep up to date info. The Cystic Fibrosis Foundation & Boomer Foundation are two that are up to date with info.

Remember that the internet often doesnt have old info removed so its a combo of old, new, truth & false out there.

That being said....I am sure its a hell of a shock to you. BUT you have found a good group to come to.

Welcome!

 

[JazzysMom]

CF is still considered a "childhood" disease & most diagnoses are when young. BUT as time goes on & CF is talked about more, it is becoming apparent of how many adults have gone misdiagnosed or undiagnosed.

We have quite a few "old timers" who were diagnosed late. Some didnt present classic symptoms & some just had crappy doctors who never thought of the idea.

I know my clinic has had many asmthatics who ended up being diagnosed with CF.

Also some of the info on the internet is outdated so its important that when you are researching things you stick with organizations that keep up to date info. The Cystic Fibrosis Foundation & Boomer Foundation are two that are up to date with info.

Remember that the internet often doesnt have old info removed so its a combo of old, new, truth & false out there.

That being said....I am sure its a hell of a shock to you. BUT you have found a good group to come to.

Welcome!

 

[JazzysMom]

CF is still considered a "childhood" disease & most diagnoses are when young. BUT as time goes on & CF is talked about more, it is becoming apparent of how many adults have gone misdiagnosed or undiagnosed.

We have quite a few "old timers" who were diagnosed late. Some didnt present classic symptoms & some just had crappy doctors who never thought of the idea.

I know my clinic has had many asmthatics who ended up being diagnosed with CF.

Also some of the info on the internet is outdated so its important that when you are researching things you stick with organizations that keep up to date info. The Cystic Fibrosis Foundation & Boomer Foundation are two that are up to date with info.

Remember that the internet often doesnt have old info removed so its a combo of old, new, truth & false out there.

That being said....I am sure its a hell of a shock to you. BUT you have found a good group to come to.

Welcome!