fondreflections
New member
How do you feel from day to day? Honestly. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I feel like for the past year I'm having less and less days that I 'feel' really 'good'. My energy level is so-so to good, but I just feel crappy most of the time. If I take Excedrin or Advil, I usually feel fine - like 2 in the AM. That usually holds me through the whole day. Sometimes, I'll take 2 around 7:00 pm as well.
My FEV1 has been stable for the past 3 years - 70%. Also, my cultures are the same, MRSA & PA. I usually require IVs every 1.5-2 years. CF-wise I have been pretty stable.
However, I have noticed something that is somewhat concerning to me. I'm 4'11" and 113 lbs. Now, I know that sounds really good. However, one year ago at this exact time I was 120! I'm eating the same amount of food and everything yet I can't seem to gain more weight. My CF doctor isn't concerned because I am still of a good weight for my height.
I was on 3 weeks of IVs in February after 1.5 years and have been off now for nearly 2 months. I thought for sure I'd gain the weight back, but I haven't. I also felt so good the first month off and coughing up so much less. Now, I'm back to the crappy day-to-day feelings.
Is it my cultures slowing me down? Is it my age? The only thing that I'm doing differently is baby-sitting two days per week. I doubt that has something to do with it. I am also still able to run 2.5 miles in 40 minutes. I don't know. I just rarely feel 'good' anymore unless I take something.
On a side note, I have also noticed that I feel so much worse with my periods each month. My lung function is always less, and I'm more short of breath. My PFTs have proven it. I have such a terrible time falling asleep due to the shortness of breath.
Tomorrow I have a GYN appointment. There is a good chance that I'm going to end up on the birth control pill. Not to prevent pregnancy, but because it helps so much with the discomfort of my cycles and may help shrink the adhesions/scar tissue that I have. The scar tissue is what is preventing me from conceiving for the past 2.5 years. I would most likely be placed on the pill for 6 months if not longer.
In a way, I want to go on the pill. To me, this is the best way to find out if it's more the CF or the cycles. I don't remember feeling this losey (sp?) when I was on the pill. However, I have been off the pill for close to 3 years now - June 19, 2005 to be exact (1st wedding anniversary). I do miss the life I 'use' to have. I only came off it to get pregnant which never happened. Prior to coming off the pill, I was on it for 8 years straight because of my terrible cycles...
However, I still can't come up with an explanation for the lack of weight gain...I'm not sure what to think...
Any ideas, guys and gals? Thank you! <img src="i/expressions/heart.gif" border="0">
Edited to Add: If I feel crappy on the pill, I most likely will not have children. It wouldn't be fair to them or myself. If I feel like my 'old' self, then I will most likely pursue adoption and/or pray for a miracle. There are too many unknowns right now...
I feel like for the past year I'm having less and less days that I 'feel' really 'good'. My energy level is so-so to good, but I just feel crappy most of the time. If I take Excedrin or Advil, I usually feel fine - like 2 in the AM. That usually holds me through the whole day. Sometimes, I'll take 2 around 7:00 pm as well.
My FEV1 has been stable for the past 3 years - 70%. Also, my cultures are the same, MRSA & PA. I usually require IVs every 1.5-2 years. CF-wise I have been pretty stable.
However, I have noticed something that is somewhat concerning to me. I'm 4'11" and 113 lbs. Now, I know that sounds really good. However, one year ago at this exact time I was 120! I'm eating the same amount of food and everything yet I can't seem to gain more weight. My CF doctor isn't concerned because I am still of a good weight for my height.
I was on 3 weeks of IVs in February after 1.5 years and have been off now for nearly 2 months. I thought for sure I'd gain the weight back, but I haven't. I also felt so good the first month off and coughing up so much less. Now, I'm back to the crappy day-to-day feelings.
Is it my cultures slowing me down? Is it my age? The only thing that I'm doing differently is baby-sitting two days per week. I doubt that has something to do with it. I am also still able to run 2.5 miles in 40 minutes. I don't know. I just rarely feel 'good' anymore unless I take something.
On a side note, I have also noticed that I feel so much worse with my periods each month. My lung function is always less, and I'm more short of breath. My PFTs have proven it. I have such a terrible time falling asleep due to the shortness of breath.
Tomorrow I have a GYN appointment. There is a good chance that I'm going to end up on the birth control pill. Not to prevent pregnancy, but because it helps so much with the discomfort of my cycles and may help shrink the adhesions/scar tissue that I have. The scar tissue is what is preventing me from conceiving for the past 2.5 years. I would most likely be placed on the pill for 6 months if not longer.
In a way, I want to go on the pill. To me, this is the best way to find out if it's more the CF or the cycles. I don't remember feeling this losey (sp?) when I was on the pill. However, I have been off the pill for close to 3 years now - June 19, 2005 to be exact (1st wedding anniversary). I do miss the life I 'use' to have. I only came off it to get pregnant which never happened. Prior to coming off the pill, I was on it for 8 years straight because of my terrible cycles...
However, I still can't come up with an explanation for the lack of weight gain...I'm not sure what to think...
Any ideas, guys and gals? Thank you! <img src="i/expressions/heart.gif" border="0">
Edited to Add: If I feel crappy on the pill, I most likely will not have children. It wouldn't be fair to them or myself. If I feel like my 'old' self, then I will most likely pursue adoption and/or pray for a miracle. There are too many unknowns right now...