Advice needed

[Emily65Roses]

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.

As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?

Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.

I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.

Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.

I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0">

 

[Emily65Roses]

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.

As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?

Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.

I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.

Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.

I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0">

 

[Emily65Roses]

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.

As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?

Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.

I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.

Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.

I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0">

 

[Emily65Roses]

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.

As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?

Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.

I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.

Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.

I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0">

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.



As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?



Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.



I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.



Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.



I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0"></end quote></div>


He has o2 at home now but he *only* uses it when he sleeps. He refuses to wear it out in public, and honestly at first I kinda argued with him about it, but I realized it's his body, his life, his choice. And he's made it very clear he would rather not go out at all than go out wearing oxygen.

He might be able to climb stares. But since the venue isn't getting back to me I don't know if they will have seats availabe, and I'm wondering if it will make him feel uncomfortable or make people question us if I wheel him to the stairs and then carry the wheelchair upstairs while he walks it, because I'm sure people will think or say WTF?? And I'm not even sure yet if we will even be allowed to go to the balcony.

It is very old and I see nothing on the website about it being handicap accessible.

I hope you did call him an @sshole. Not that it would change anything about the situation but it's amazing to me how people can be so rude and ignorant sometimes.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.



As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?



Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.



I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.



Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.



I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0"></end quote></div>


He has o2 at home now but he *only* uses it when he sleeps. He refuses to wear it out in public, and honestly at first I kinda argued with him about it, but I realized it's his body, his life, his choice. And he's made it very clear he would rather not go out at all than go out wearing oxygen.

He might be able to climb stares. But since the venue isn't getting back to me I don't know if they will have seats availabe, and I'm wondering if it will make him feel uncomfortable or make people question us if I wheel him to the stairs and then carry the wheelchair upstairs while he walks it, because I'm sure people will think or say WTF?? And I'm not even sure yet if we will even be allowed to go to the balcony.

It is very old and I see nothing on the website about it being handicap accessible.

I hope you did call him an @sshole. Not that it would change anything about the situation but it's amazing to me how people can be so rude and ignorant sometimes.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.



As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?



Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.



I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.



Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.



I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0"></end quote></div>


He has o2 at home now but he *only* uses it when he sleeps. He refuses to wear it out in public, and honestly at first I kinda argued with him about it, but I realized it's his body, his life, his choice. And he's made it very clear he would rather not go out at all than go out wearing oxygen.

He might be able to climb stares. But since the venue isn't getting back to me I don't know if they will have seats availabe, and I'm wondering if it will make him feel uncomfortable or make people question us if I wheel him to the stairs and then carry the wheelchair upstairs while he walks it, because I'm sure people will think or say WTF?? And I'm not even sure yet if we will even be allowed to go to the balcony.

It is very old and I see nothing on the website about it being handicap accessible.

I hope you did call him an @sshole. Not that it would change anything about the situation but it's amazing to me how people can be so rude and ignorant sometimes.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.



As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?



Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.



I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.



Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.



I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0"></end quote></div>


He has o2 at home now but he *only* uses it when he sleeps. He refuses to wear it out in public, and honestly at first I kinda argued with him about it, but I realized it's his body, his life, his choice. And he's made it very clear he would rather not go out at all than go out wearing oxygen.

He might be able to climb stares. But since the venue isn't getting back to me I don't know if they will have seats availabe, and I'm wondering if it will make him feel uncomfortable or make people question us if I wheel him to the stairs and then carry the wheelchair upstairs while he walks it, because I'm sure people will think or say WTF?? And I'm not even sure yet if we will even be allowed to go to the balcony.

It is very old and I see nothing on the website about it being handicap accessible.

I hope you did call him an @sshole. Not that it would change anything about the situation but it's amazing to me how people can be so rude and ignorant sometimes.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.



As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?



Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.



I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.



Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.



I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0"></end quote>


He has o2 at home now but he *only* uses it when he sleeps. He refuses to wear it out in public, and honestly at first I kinda argued with him about it, but I realized it's his body, his life, his choice. And he's made it very clear he would rather not go out at all than go out wearing oxygen.

He might be able to climb stares. But since the venue isn't getting back to me I don't know if they will have seats availabe, and I'm wondering if it will make him feel uncomfortable or make people question us if I wheel him to the stairs and then carry the wheelchair upstairs while he walks it, because I'm sure people will think or say WTF?? And I'm not even sure yet if we will even be allowed to go to the balcony.

It is very old and I see nothing on the website about it being handicap accessible.

I hope you did call him an @sshole. Not that it would change anything about the situation but it's amazing to me how people can be so rude and ignorant sometimes.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

I'm not trying to be funny here, but can he climb the stairs? People tend to deal with a 30% FEV1 very differently. Some people can barely move, others are taking walks. If he can walk up the stairs and just get it done, you can have him sit and relax until it's time to go home.



As for the building, unless it's been deemed a "historical" building, doesn't it NEED to be handicap accessible? Someone correct me if I'm wrong, but I think that's the law. Has it been declared a historical building, do you know?



Oh and... the wheelchair is liable to make people stare anyway, so can he take the o2 this time? If he can, it might make the stairs a little less horrendous. I mean hell, the chair is going to make them stare, so he might as well be more comfortable and drag along the o2.



I don't know, the whole situation really sucks. As for the coughing and people staring, thanks for being his friend. I hate when people stare. Hate hate hate. If someone wants to politely ask "Is there anything I can do to help?" Or "should we get him out of here?" Or even a timid "I'm sorry, is that contagious?" wouldn't bother me much. As long as it was polite, I'd answer and go about my business. The ridiculous staring though... do people really think that's better than asking??? If you're going to do one or the other no matter what, I suggest asking.



Anyways. I try to be understanding but it's really hard when I'm in public and my regular coughing makes people treat me like I've got the frickin plague. I've even told someone "It's genetic, I'm not contagious" and the guy was still "It still makes you wonder, you should get out of here." I wanted to break his face. Hah. I believe I called him an @sshole right out loud.



I don't know why I went off on that, I'm sorry for rambling. And I don't see at all why you would've offended anyone. I'm glad you're going through so much trouble trying to make your friend comfortable and in hopes to get him to be able to go to the concert. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hope it works out for you guys. <img src="i/expressions/heart.gif" border="0"></end quote>


He has o2 at home now but he *only* uses it when he sleeps. He refuses to wear it out in public, and honestly at first I kinda argued with him about it, but I realized it's his body, his life, his choice. And he's made it very clear he would rather not go out at all than go out wearing oxygen.

He might be able to climb stares. But since the venue isn't getting back to me I don't know if they will have seats availabe, and I'm wondering if it will make him feel uncomfortable or make people question us if I wheel him to the stairs and then carry the wheelchair upstairs while he walks it, because I'm sure people will think or say WTF?? And I'm not even sure yet if we will even be allowed to go to the balcony.

It is very old and I see nothing on the website about it being handicap accessible.

I hope you did call him an @sshole. Not that it would change anything about the situation but it's amazing to me how people can be so rude and ignorant sometimes.

 

[coltsfan715]

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.

I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.

As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.

I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.

Take Care and I hope that things work out for the concert.

Take Care,
Linds

 

[coltsfan715]

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.

I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.

As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.

I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.

Take Care and I hope that things work out for the concert.

Take Care,
Linds

 

[coltsfan715]

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.

I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.

As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.

I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.

Take Care and I hope that things work out for the concert.

Take Care,
Linds

 

[coltsfan715]

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.

I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.

As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.

I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.

Take Care and I hope that things work out for the concert.

Take Care,
Linds

 

[coltsfan715]

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.

I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.

As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.

I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.

Take Care and I hope that things work out for the concert.

Take Care,
Linds

 

[coltsfan715]

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.

I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.

As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.

I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.

Take Care and I hope that things work out for the concert.

Take Care,
Linds

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.



I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.



As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.



I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.



Take Care and I hope that things work out for the concert.



Take Care,

Linds</end quote></div>


I will definitely talk to him about your reasons for wearing oxygen (he is also hoping to get a transplant at some point). I never went into much detail with complications lack of oxygen in his blood will cause. I simply told him, you could drop dead, your heart, lungs, and body can only fight for so long and like any other muscle that is working to hard, they can stop. He has stood firm on his choice of not wearing out in public and I felt like I wanted to be a friend and not lecture him on a constant basis. So maybe I will wait a while, the concert isn't for a month or so and then try to talk to him about it again.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.



I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.



As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.



I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.



Take Care and I hope that things work out for the concert.



Take Care,

Linds</end quote></div>


I will definitely talk to him about your reasons for wearing oxygen (he is also hoping to get a transplant at some point). I never went into much detail with complications lack of oxygen in his blood will cause. I simply told him, you could drop dead, your heart, lungs, and body can only fight for so long and like any other muscle that is working to hard, they can stop. He has stood firm on his choice of not wearing out in public and I felt like I wanted to be a friend and not lecture him on a constant basis. So maybe I will wait a while, the concert isn't for a month or so and then try to talk to him about it again.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.



I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.



As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.



I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.



Take Care and I hope that things work out for the concert.



Take Care,

Linds</end quote></div>


I will definitely talk to him about your reasons for wearing oxygen (he is also hoping to get a transplant at some point). I never went into much detail with complications lack of oxygen in his blood will cause. I simply told him, you could drop dead, your heart, lungs, and body can only fight for so long and like any other muscle that is working to hard, they can stop. He has stood firm on his choice of not wearing out in public and I felt like I wanted to be a friend and not lecture him on a constant basis. So maybe I will wait a while, the concert isn't for a month or so and then try to talk to him about it again.

 

[WreckingBall]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

I would maybe make sure that he knows the damage that lack of O2 may be doing to the other organ systems in his body - i.e. his heart, kidneys, liver and so on. You may not necessarily FEEL different but if he is in need of O2 and goes without it temporarily even it could be doing damage he is not even aware is being done.



I will say when I was put on O2 I did NOT want to wear it either. I would take it with me to the store and wear it til I went to get out of the car then I would take it off and put it back on when I got back in the car. It wasn't until I found out that I had pulmonary hypertension and my transplant doc told me I need to be on O2 fulltime or I could end up needing a heart transplant along with a lung transplant that I wised up and started wearing the O2 all the time. I used to tell people that I wore it to PREVENT a heart problem. There was something about me wearing it to prevent a problem instead of my saying I am wearing it cause my lungs are for crap that made me feel better. Like it was MY CHOICE to wear not that I had too. Just a mental way of dealing with it that helped me is all.



As for the stares I used to get irritated or embarassed but what are you going to do. Now that I have been transplanted and I am still having to deal with wearing a mask in heavily crowded areas I just laugh about it mostly. There are times when I get irritated if people make rude comments but most of the time people will look at me and back up or walk in the other direction - I just think GOOD - stay away from me and keep your germs to yourself lol. Out of ignorance people assume things instead of just asking.



I do agree with Emily though if he is okay with the wheelchair - despite the stares it will bring maybe ask him if he would bring the O2 - if for no other reason than climbing the stairs. Then he could take it off if he really did not want to wear it. It may be worth a shot to bring it up and see what he says. I know for me climbing stairs without O2 before transplant was almost an impossibility but climbing them with O2 was pretty simple.



Take Care and I hope that things work out for the concert.



Take Care,

Linds</end quote></div>


I will definitely talk to him about your reasons for wearing oxygen (he is also hoping to get a transplant at some point). I never went into much detail with complications lack of oxygen in his blood will cause. I simply told him, you could drop dead, your heart, lungs, and body can only fight for so long and like any other muscle that is working to hard, they can stop. He has stood firm on his choice of not wearing out in public and I felt like I wanted to be a friend and not lecture him on a constant basis. So maybe I will wait a while, the concert isn't for a month or so and then try to talk to him about it again.