What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Aiden's update

B

beleache

New member
Hi Rikki, This was a pulmonary dr. at a c/f clinic... I would run not walk to the next dr... We cfers come in all shapes and sizes... (i hope and pray it's not, but if it is, it's better if you know so that you can deal with it the right way) also i would speak directly w/ the gastro about the results of the upper g.i. and if he or she reassures you that it's o.k. to a wait , then maybe i would feel a little better. It sucks having to wait.. Praying for a good outcome.. Sorry, but it pisses me off w/ drs make stupid comments... i was miss dx for 44 yrs. and my sister for 50 yrs.. Let us know if anything changes... Joni 55 y/o f w c/f (and at the moment fat as a cow)
 
B

beleache

New member
Hi Rikki, This was a pulmonary dr. at a c/f clinic... I would run not walk to the next dr... We cfers come in all shapes and sizes... (i hope and pray it's not, but if it is, it's better if you know so that you can deal with it the right way) also i would speak directly w/ the gastro about the results of the upper g.i. and if he or she reassures you that it's o.k. to a wait , then maybe i would feel a little better. It sucks having to wait.. Praying for a good outcome.. Sorry, but it pisses me off w/ drs make stupid comments... i was miss dx for 44 yrs. and my sister for 50 yrs.. Let us know if anything changes... Joni 55 y/o f w c/f (and at the moment fat as a cow)
 
A

Aidenmurphy

Guest
Yeah he was a pulmonary dr at Children's Mercy Hospital. And they are booked out for 2 months. Our GI Dr appt isn't til July 25th and I think that's a little to far away. I did the GI clinic today and of course they don't return call back after 3 pm so they will call me back tomorrow.
His ears are becoming a big issue now cause i finally got a hold of the ent here cause they cultured the drainage LAST monday and i still hadn't got a call back, so i called today to have the nurse tell me that she "finally" found the results and it's STAFF!!!! I am not having any luck at all!!!!!
 
A

Aidenmurphy

Guest
Yeah he was a pulmonary dr at Children's Mercy Hospital. And they are booked out for 2 months. Our GI Dr appt isn't til July 25th and I think that's a little to far away. I did the GI clinic today and of course they don't return call back after 3 pm so they will call me back tomorrow.
His ears are becoming a big issue now cause i finally got a hold of the ent here cause they cultured the drainage LAST monday and i still hadn't got a call back, so i called today to have the nurse tell me that she "finally" found the results and it's STAFF!!!! I am not having any luck at all!!!!!
 
A

Aidenmurphy

Guest
Yeah he was a pulmonary dr at Children's Mercy Hospital. And they are booked out for 2 months. Our GI Dr appt isn't til July 25th and I think that's a little to far away. I did the GI clinic today and of course they don't return call back after 3 pm so they will call me back tomorrow.
His ears are becoming a big issue now cause i finally got a hold of the ent here cause they cultured the drainage LAST monday and i still hadn't got a call back, so i called today to have the nurse tell me that she "finally" found the results and it's STAFF!!!! I am not having any luck at all!!!!!
 
A

Aidenmurphy

Guest
Yeah he was a pulmonary dr at Children's Mercy Hospital. And they are booked out for 2 months. Our GI Dr appt isn't til July 25th and I think that's a little to far away. I did the GI clinic today and of course they don't return call back after 3 pm so they will call me back tomorrow.
His ears are becoming a big issue now cause i finally got a hold of the ent here cause they cultured the drainage LAST monday and i still hadn't got a call back, so i called today to have the nurse tell me that she "finally" found the results and it's STAFF!!!! I am not having any luck at all!!!!!
 
A

Aidenmurphy

Guest
Yeah he was a pulmonary dr at Children's Mercy Hospital. And they are booked out for 2 months. Our GI Dr appt isn't til July 25th and I think that's a little to far away. I did the GI clinic today and of course they don't return call back after 3 pm so they will call me back tomorrow.
His ears are becoming a big issue now cause i finally got a hold of the ent here cause they cultured the drainage LAST monday and i still hadn't got a call back, so i called today to have the nurse tell me that she "finally" found the results and it's STAFF!!!! I am not having any luck at all!!!!!
 
A

Aidenmurphy

Guest
Yeah he was a pulmonary dr at Children's Mercy Hospital. And they are booked out for 2 months. Our GI Dr appt isn't til July 25th and I think that's a little to far away. I did the GI clinic today and of course they don't return call back after 3 pm so they will call me back tomorrow.
His ears are becoming a big issue now cause i finally got a hold of the ent here cause they cultured the drainage LAST monday and i still hadn't got a call back, so i called today to have the nurse tell me that she "finally" found the results and it's STAFF!!!! I am not having any luck at all!!!!!
 
You must log in or register to reply here.
Top