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Alternate CPT other than the Vest.

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JennifersHope

New member
Thanks for your replies. I don't think I am being irresponsible because I am still using the vest, I just don't like it, and I think it is perfectly normal, being that airway clearance is still new to me (within the last couple of years) to want to try something new. I am wanting to see if their is other options available to me. I have never used anything else. So I appreciate the feed back.


I think I am going to talk to my doctor about trying the percusser. I think that one may work better for me, the vest is not the most ideal thing for me as it is for you sean, I am pretty sure if you had the same size chest as me, you would feel the same as me. I would have to have my chest cut off in order for it not to be in the way.

That is the beauty of having different options, I can at least try some things. I don't share your same beliefs on how great the vest is, I do think it helps with airway clearance, but it does nothing compared to what manuel does for me.. at all. If after I try everything else, I can always go back to the vest.

Thanks again,

Jennifer
 
J

JennifersHope

New member
Thanks for your replies. I don't think I am being irresponsible because I am still using the vest, I just don't like it, and I think it is perfectly normal, being that airway clearance is still new to me (within the last couple of years) to want to try something new. I am wanting to see if their is other options available to me. I have never used anything else. So I appreciate the feed back.


I think I am going to talk to my doctor about trying the percusser. I think that one may work better for me, the vest is not the most ideal thing for me as it is for you sean, I am pretty sure if you had the same size chest as me, you would feel the same as me. I would have to have my chest cut off in order for it not to be in the way.

That is the beauty of having different options, I can at least try some things. I don't share your same beliefs on how great the vest is, I do think it helps with airway clearance, but it does nothing compared to what manuel does for me.. at all. If after I try everything else, I can always go back to the vest.

Thanks again,

Jennifer
 
A

anonymous

New member
The good thing about the acappela is that you can do it laying down or anyway you want to, which is a lot better than the flutter. Also, you can control how hard it is for you so it clears more. I am sure it is not as good as the vest but it is a great one to do if you are staying somewhere else or don't have the time to do the vest

Sue 24 (today!) w/CF
 
A

anonymous

New member
The good thing about the acappela is that you can do it laying down or anyway you want to, which is a lot better than the flutter. Also, you can control how hard it is for you so it clears more. I am sure it is not as good as the vest but it is a great one to do if you are staying somewhere else or don't have the time to do the vest

Sue 24 (today!) w/CF
 
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JustDucky

New member
Happy Birthday Sue!

Hi again Jenn, I know what you mean about being new to all of this...I didn't start the vest until November if you will believe it. It tends to work well for me...the only issues I have with it right now are when the hoses pop off when the frequency is increased, I swear I will invent some kind of locking device for the vest and machine that is easily removed once you are done with it. Nothing like chasing the tubes around when you are at full force LOL!
When I am in the hospital, the RT's like to do manual CPT, tilting me upside down literally. I am usually sicker then and I have more crap in my lungs. It does work well, because I am on a vent, those methods work welll for me, the percussor, manual CPT and the Vest. At home, the Vest is my choice that's for sure.
I wish you luck with your doc in the CF clinic....I am sure eventually you will find your happy medium.
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JustDucky

New member
Happy Birthday Sue!

Hi again Jenn, I know what you mean about being new to all of this...I didn't start the vest until November if you will believe it. It tends to work well for me...the only issues I have with it right now are when the hoses pop off when the frequency is increased, I swear I will invent some kind of locking device for the vest and machine that is easily removed once you are done with it. Nothing like chasing the tubes around when you are at full force LOL!
When I am in the hospital, the RT's like to do manual CPT, tilting me upside down literally. I am usually sicker then and I have more crap in my lungs. It does work well, because I am on a vent, those methods work welll for me, the percussor, manual CPT and the Vest. At home, the Vest is my choice that's for sure.
I wish you luck with your doc in the CF clinic....I am sure eventually you will find your happy medium.
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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lovingBenandCambree

New member
I use the therapep in line with Alubuterol. After doing ten breaths I stop and do what is called active cyclo breathing with 2 huff coughs at the end. I do 4 cycles of this. This has worked better than any other method including the vest for me. I was taught the breathing when I was about 17 and I love it. It works wonders. Good LUck! I hate the vest and it really didn't do anything wonderful that I wasn't already doing so I don't even own one.

Emilee
 
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lovingBenandCambree

New member
I use the therapep in line with Alubuterol. After doing ten breaths I stop and do what is called active cyclo breathing with 2 huff coughs at the end. I do 4 cycles of this. This has worked better than any other method including the vest for me. I was taught the breathing when I was about 17 and I love it. It works wonders. Good LUck! I hate the vest and it really didn't do anything wonderful that I wasn't already doing so I don't even own one.

Emilee
 
R

Ruby

Guest
I use a pep mask and the active cycle of breathing technique, but I'm very very lazy and don't do either nearly enough. I like the pep mask better than the breathing as I can just sit and breath and it does the work but the active cycle takes much longer and is a pain in the hole. The vest isn't available here, I would love to try it so hope it comes here soon, it looks very expensive is it covered by your insurance or did you all have to pay for it yourselves...
 
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Ruby

Guest
I use a pep mask and the active cycle of breathing technique, but I'm very very lazy and don't do either nearly enough. I like the pep mask better than the breathing as I can just sit and breath and it does the work but the active cycle takes much longer and is a pain in the hole. The vest isn't available here, I would love to try it so hope it comes here soon, it looks very expensive is it covered by your insurance or did you all have to pay for it yourselves...
 
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Emily65Roses

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>SeanDavis</b></i><br>As far as advice? I don't know what to say. It sucks to need clearance nightly and deal with being an adult and wanting to be irresponsible. The best advice I can give is to stick with the vest, and not like it...Channel your hate against CF in a positive way, and use your vest. To me even hardcore exercise can't hold a candle to the vest...It's just such an amazing invention for us!<hr></blockquote>

Heh... Just one comment I have to make. Get boobs, and then talk to me about doing the Vest even though you hate it. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
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Emily65Roses

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>SeanDavis</b></i><br>As far as advice? I don't know what to say. It sucks to need clearance nightly and deal with being an adult and wanting to be irresponsible. The best advice I can give is to stick with the vest, and not like it...Channel your hate against CF in a positive way, and use your vest. To me even hardcore exercise can't hold a candle to the vest...It's just such an amazing invention for us!<hr></blockquote>

Heh... Just one comment I have to make. Get boobs, and then talk to me about doing the Vest even though you hate it. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
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thelizardqueen

New member
I either use the electric purcussion, or my boyfriend does the manual clapping for me on my back. I use the flutter on occasion, or on my good days. I don't think we have the vest available in Canada or the Acapella. If we do (and I'm not aware of it), then it has to be super expensive and not covered by insurance or the gov't.
 
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thelizardqueen

New member
I either use the electric purcussion, or my boyfriend does the manual clapping for me on my back. I use the flutter on occasion, or on my good days. I don't think we have the vest available in Canada or the Acapella. If we do (and I'm not aware of it), then it has to be super expensive and not covered by insurance or the gov't.
 
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