Hi there! I am the person who has the same CF mutations as your two children. I wasn't diagnosed until I was 20 years old and consider that I have a mild case of CF. I have never been hospitalized for CF, when I get sick I go on antibiotics for 2 weeks and that seems to beat it. I am not on any constant medications/breathing treatments, except for the antibiotics when I get sick. I do have a flutter that helps me clear stuff from my lungs when I have congestion.
I have 2 children who are almost 4 and 2 1/2....I had pretty easy pregnancies except for my first, I couldn't gain wait (my CF has never affected my digestive side, except for maybe when I was pg??) so I had a picc line put in for the last 2 months of my pregnancy. My 2nd pregnancy was totally normal.
Both kids have no CF, my husband was tested as a carrier before we made the choice to have biological children. There is no history of CF in my family-so we were very suprised when I was diagnosed at 20! If you have any questions for me-my email is purvisfamily@qwest.net !
I was really suprised to see that your kids have the same mutation as I do, and that we pretty much have the same symptoms!
Marci
31 wcf
I have 2 children who are almost 4 and 2 1/2....I had pretty easy pregnancies except for my first, I couldn't gain wait (my CF has never affected my digestive side, except for maybe when I was pg??) so I had a picc line put in for the last 2 months of my pregnancy. My 2nd pregnancy was totally normal.
Both kids have no CF, my husband was tested as a carrier before we made the choice to have biological children. There is no history of CF in my family-so we were very suprised when I was diagnosed at 20! If you have any questions for me-my email is purvisfamily@qwest.net !
I was really suprised to see that your kids have the same mutation as I do, and that we pretty much have the same symptoms!
Marci
31 wcf