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amazing PFTS CONTINUED

L

lizlas

Guest
<P>Hi I sent 2 posts in yesterday on this topic  and someone sent one in at 1.54 today and I dont see them?</P>
<P>Is it just me ?  I checked laptop, desktop and tablet and they are not there...so I ll post it again under a new topic .  </P>
<P>Congratulations Jonathon!!</P>
<P> </P>
<P>I have a few questions:</P>
<P>Do you have *BXIS and if so how extensive ?  do they class it as mild moderate or severe?</P>
<P> </P>
<P>I think you posted it on another topic but what is your present FEV and what was it in 2005?</P>
<P>also do you take any oral or Inhaled antibiotics for Prevention? and if so what?</P>
<P>do you HTS or Pulmozyme?</P>
<P>what bacteria do you culture and do you ever have to do IVs for an infection and if so how often...?</P>
<P>Do you use vest or flutter or pep at all?</P>
<P> </P>
<P>Geez just send me your medical records ...lolol</P>
<P> </P>
<P>*BXIS  (Bronchiectasis)  that is what is giving me such a bad time with infections these last few years)</P>
<P>Thanks Liz</P>
<P> </P>
<P> </P>
<P> </P>
 
L

lizlas

Guest
<P>Hi I sent 2 posts in yesterday on this topic and someone sent one in at 1.54 today and I dont see them?</P>
<P>Is it just me ? I checked laptop, desktop and tablet and they are not there...so I ll post it again under a new topic . </P>
<P>Congratulations Jonathon!!</P>
<P></P>
<P>I have a few questions:</P>
<P>Do you have *BXIS and if so how extensive ? do they class it as mild moderate or severe?</P>
<P></P>
<P>I think you posted it on another topic but what is your present FEV and what was it in 2005?</P>
<P>also do you take any oral or Inhaled antibiotics for Prevention? and if so what?</P>
<P>do you HTS or Pulmozyme?</P>
<P>what bacteria do you culture and do you ever have to do IVs for an infection and if so how often...?</P>
<P>Do you use vest or flutter or pep at all?</P>
<P></P>
<P>Geez just send me your medical records ...lolol</P>
<P></P>
<P>*BXIS (Bronchiectasis) that is what is giving me such a bad time with infections these last few years)</P>
<P>Thanks Liz</P>
<P></P>
<P></P>
<P></P>
 
L

lizlas

Guest
<P><BR>Hi I sent 2 posts in yesterday on this topic and someone sent one in at 1.54 today and I dont see them?</P>
<P>Is it just me ? I checked laptop, desktop and tablet and they are not there...so I ll post it again under a new topic . </P>
<P>Congratulations Jonathon!!</P>
<P></P>
<P>I have a few questions:</P>
<P>Do you have *BXIS and if so how extensive ? do they class it as mild moderate or severe?</P>
<P></P>
<P>I think you posted it on another topic but what is your present FEV and what was it in 2005?</P>
<P>also do you take any oral or Inhaled antibiotics for Prevention? and if so what?</P>
<P>do you HTS or Pulmozyme?</P>
<P>what bacteria do you culture and do you ever have to do IVs for an infection and if so how often...?</P>
<P>Do you use vest or flutter or pep at all?</P>
<P></P>
<P>Geez just send me your medical records ...lolol</P>
<P></P>
<P>*BXIS (Bronchiectasis) that is what is giving me such a bad time with infections these last few years)</P>
<P>Thanks Liz</P>
<P></P>
<P></P>
<P></P>
 
K

Kristen

New member
I have been having the same problem with that thread. I posted yesterday and saw that there were several people who posted after me, but the most recent post I can see is my own. Weird.
 
K

Kristen

New member
I have been having the same problem with that thread. I posted yesterday and saw that there were several people who posted after me, but the most recent post I can see is my own. Weird.
 
K

Kristen

New member
I have been having the same problem with that thread. I posted yesterday and saw that there were several people who posted after me, but the most recent post I can see is my own. Weird.
 
L

lizlas

Guest
<P>Kristen</P>
<P>Yes so I started same topic but just with continued added ....and I had the same trouble with the Breathe Free 1 post on  tranexamic acid and hemop. w/o embo...</P>
<P>but now I see it finally posted...I think the birthday posts should be totally separate and not get mixed in with regular posts and we need a delete option for duplicates...</P>
<P>so I hope JONATHON sees his topic is still going on....ANSWER THE QUESTIONS ....lol</P>
<P> </P>
<P>Liz</P>
<P> </P>
<P> </P>
<P> </P>
 
L

lizlas

Guest
<P>Kristen</P>
<P>Yes so I started same topic but just with continued added ....and I had the same trouble with the Breathe Free 1 post on tranexamic acid and hemop. w/o embo...</P>
<P>but now I see it finally posted...I think the birthday posts should be totally separate and not get mixed in with regular posts and we need a delete option for duplicates...</P>
<P>so I hope JONATHON sees his topic is still going on....ANSWER THE QUESTIONS ....lol</P>
<P></P>
<P>Liz</P>
<P></P>
<P></P>
<P></P>
 
L

lizlas

Guest
<P><BR>Kristen</P>
<P>Yes so I started same topic but just with continued added ....and I had the same trouble with the Breathe Free 1 post on tranexamic acid and hemop. w/o embo...</P>
<P>but now I see it finally posted...I think the birthday posts should be totally separate and not get mixed in with regular posts and we need a delete option for duplicates...</P>
<P>so I hope JONATHON sees his topic is still going on....ANSWER THE QUESTIONS ....lol</P>
<P></P>
<P>Liz</P>
<P></P>
<P></P>
<P></P>
 
H

Havoc

New member
Haha,

I do have mild bronchiectasis.

Sadly, I don't have the graph of all the PFT's, I just saw it in my chart. I do have my most recent numbers, though:

FVC: 6.09L Measured (Reference 5.03L) %Ref 121
FEV1: 5.01L Measured (Reference 4.01L) %Ref 125
FEV25-75%: 82 (Reference 79)
PEF L/sec: 18.74L/sec Measured (Reference 9.12L/sec) %Ref 206
That's based on 172cm and 65.5kg.

A few weeks ago I began taking azithromycin 3 times a week, but before this I never took any prophylactic antibiotics, inhaled or oral. I have done Tobi a few times, but it's usually after an exacerbation.

I tried both pulmozyme and HTS and didn't like either, so none of that. I do use a Qvar inhaler (beclomethasone) and Flonase daily. I have an albuterol inhaler if I have a particularly bad day, but I rarely use it now that I'm farther outside of the city.

I typically culture pan-sensitive Pseudomonas and sometimes regular staph A. (sometimes H Flu). I didn't culture Pseudomonas until age 23. I have had 4 PICC lines. My first was when I was 25 and ended up with pneumonia (sadly, it was probably acquired at the gym where I was trying to make myself more healthy). My next 2 PICCs came in the same year from sinus surgeries with complications (I was 29). I just had a PICC last month from another pulmonary exacerbation (age 30).

I do not vest, flutter, acapella, or PEP. I do hike, bike, play volleyball, P90X and swim.
I never produce a lot of sputum, CPT never produces a cough for me (I don't have that constant CF cough). A 20 mile bike ride does, sometimes. So I stick to exercises that I like.

Retaining/regaining lung function is directly linked to exercise. We also had a discussion in another thread about people with reasonably low FEV1, yet doing half-marathons. The hypothesis is that with exercise your entire cardio-vascular system becomes more efficient at delivering oxygen to the muscles and brain and can therefore get away with less of a volume of oxygen to exchange in the lungs.
 
H

Havoc

New member
Haha,

I do have mild bronchiectasis.

Sadly, I don't have the graph of all the PFT's, I just saw it in my chart. I do have my most recent numbers, though:

FVC: 6.09L Measured (Reference 5.03L) %Ref 121
FEV1: 5.01L Measured (Reference 4.01L) %Ref 125
FEV25-75%: 82 (Reference 79)
PEF L/sec: 18.74L/sec Measured (Reference 9.12L/sec) %Ref 206
That's based on 172cm and 65.5kg.

A few weeks ago I began taking azithromycin 3 times a week, but before this I never took any prophylactic antibiotics, inhaled or oral. I have done Tobi a few times, but it's usually after an exacerbation.

I tried both pulmozyme and HTS and didn't like either, so none of that. I do use a Qvar inhaler (beclomethasone) and Flonase daily. I have an albuterol inhaler if I have a particularly bad day, but I rarely use it now that I'm farther outside of the city.

I typically culture pan-sensitive Pseudomonas and sometimes regular staph A. (sometimes H Flu). I didn't culture Pseudomonas until age 23. I have had 4 PICC lines. My first was when I was 25 and ended up with pneumonia (sadly, it was probably acquired at the gym where I was trying to make myself more healthy). My next 2 PICCs came in the same year from sinus surgeries with complications (I was 29). I just had a PICC last month from another pulmonary exacerbation (age 30).

I do not vest, flutter, acapella, or PEP. I do hike, bike, play volleyball, P90X and swim.
I never produce a lot of sputum, CPT never produces a cough for me (I don't have that constant CF cough). A 20 mile bike ride does, sometimes. So I stick to exercises that I like.

Retaining/regaining lung function is directly linked to exercise. We also had a discussion in another thread about people with reasonably low FEV1, yet doing half-marathons. The hypothesis is that with exercise your entire cardio-vascular system becomes more efficient at delivering oxygen to the muscles and brain and can therefore get away with less of a volume of oxygen to exchange in the lungs.
 
H

Havoc

New member
Haha,
<br />
<br />I do have mild bronchiectasis.
<br />
<br />Sadly, I don't have the graph of all the PFT's, I just saw it in my chart. I do have my most recent numbers, though:
<br />
<br />FVC: 6.09L Measured (Reference 5.03L) %Ref 121
<br />FEV1: 5.01L Measured (Reference 4.01L) %Ref 125
<br />FEV25-75%: 82 (Reference 79)
<br />PEF L/sec: 18.74L/sec Measured (Reference 9.12L/sec) %Ref 206
<br />That's based on 172cm and 65.5kg.
<br />
<br />A few weeks ago I began taking azithromycin 3 times a week, but before this I never took any prophylactic antibiotics, inhaled or oral. I have done Tobi a few times, but it's usually after an exacerbation.
<br />
<br />I tried both pulmozyme and HTS and didn't like either, so none of that. I do use a Qvar inhaler (beclomethasone) and Flonase daily. I have an albuterol inhaler if I have a particularly bad day, but I rarely use it now that I'm farther outside of the city.
<br />
<br />I typically culture pan-sensitive Pseudomonas and sometimes regular staph A. (sometimes H Flu). I didn't culture Pseudomonas until age 23. I have had 4 PICC lines. My first was when I was 25 and ended up with pneumonia (sadly, it was probably acquired at the gym where I was trying to make myself more healthy). My next 2 PICCs came in the same year from sinus surgeries with complications (I was 29). I just had a PICC last month from another pulmonary exacerbation (age 30).
<br />
<br />I do not vest, flutter, acapella, or PEP. I do hike, bike, play volleyball, P90X and swim.
<br />I never produce a lot of sputum, CPT never produces a cough for me (I don't have that constant CF cough). A 20 mile bike ride does, sometimes. So I stick to exercises that I like.
<br />
<br />Retaining/regaining lung function is directly linked to exercise. We also had a discussion in another thread about people with reasonably low FEV1, yet doing half-marathons. The hypothesis is that with exercise your entire cardio-vascular system becomes more efficient at delivering oxygen to the muscles and brain and can therefore get away with less of a volume of oxygen to exchange in the lungs.
 
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