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Another Noobie

B

Benny

New member
Hey all,<br>
<br>
My names Ben, im 21 and from Australia. Up until recently I didnt
take much notice of my CF (I have had it since birth)and just the
other day I was curious to see if anyone on MySpace had CF as
well.<br>
<br>
I couldnt belive the number of people that had it.<br>
<br>
I stumbled upon this forum and the more I read, the more I scare
myself. I recently had a infection that was worse then normal and I
went to see the doctor and told him my story and his face
practically went white. He put me on Azithromician (1 tablet
everyday for a "long term" and I read on here that it
helps to slow lung damage and possibly reverse the damage
caused.<br>
<br>
In Australia I have only met a handful of people with CF. So I dont
know what the "norm" is for people with CF.<br>
<br>
I have never weighed more then 65kg, which is annoying when I go to
the gym, lift heavier weights but dont see any physical change in
size and I stumbled upon the Nutrition section and there a recipes
there for massive amounts of calories that people are taking
daily.<br>
<br>
Basically what I am trying to say I didnt know CF affected this
many people.<br>
I have been sheltered in Australia<br>
<br>
Oh and also, feel free to add me if you have myspace.<br>
www.myspace.com/theflyingwinger
 
B

Benny

New member
Hey all,<br>
<br>
My names Ben, im 21 and from Australia. Up until recently I didnt
take much notice of my CF (I have had it since birth)and just the
other day I was curious to see if anyone on MySpace had CF as
well.<br>
<br>
I couldnt belive the number of people that had it.<br>
<br>
I stumbled upon this forum and the more I read, the more I scare
myself. I recently had a infection that was worse then normal and I
went to see the doctor and told him my story and his face
practically went white. He put me on Azithromician (1 tablet
everyday for a "long term" and I read on here that it
helps to slow lung damage and possibly reverse the damage
caused.<br>
<br>
In Australia I have only met a handful of people with CF. So I dont
know what the "norm" is for people with CF.<br>
<br>
I have never weighed more then 65kg, which is annoying when I go to
the gym, lift heavier weights but dont see any physical change in
size and I stumbled upon the Nutrition section and there a recipes
there for massive amounts of calories that people are taking
daily.<br>
<br>
Basically what I am trying to say I didnt know CF affected this
many people.<br>
I have been sheltered in Australia<br>
<br>
Oh and also, feel free to add me if you have myspace.<br>
www.myspace.com/theflyingwinger
 
B

Benny

New member
Hey all,<br>
<br>
My names Ben, im 21 and from Australia. Up until recently I didnt
take much notice of my CF (I have had it since birth)and just the
other day I was curious to see if anyone on MySpace had CF as
well.<br>
<br>
I couldnt belive the number of people that had it.<br>
<br>
I stumbled upon this forum and the more I read, the more I scare
myself. I recently had a infection that was worse then normal and I
went to see the doctor and told him my story and his face
practically went white. He put me on Azithromician (1 tablet
everyday for a "long term" and I read on here that it
helps to slow lung damage and possibly reverse the damage
caused.<br>
<br>
In Australia I have only met a handful of people with CF. So I dont
know what the "norm" is for people with CF.<br>
<br>
I have never weighed more then 65kg, which is annoying when I go to
the gym, lift heavier weights but dont see any physical change in
size and I stumbled upon the Nutrition section and there a recipes
there for massive amounts of calories that people are taking
daily.<br>
<br>
Basically what I am trying to say I didnt know CF affected this
many people.<br>
I have been sheltered in Australia<br>
<br>
Oh and also, feel free to add me if you have myspace.<br>
www.myspace.com/theflyingwinger
 
W

welshgirl

New member
hello ben, welcome to the site . see you around and take care of yourself<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
W

welshgirl

New member
hello ben, welcome to the site . see you around and take care of yourself<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
W

welshgirl

New member
hello ben, welcome to the site . see you around and take care of yourself<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
L

lightNlife

New member
Hi Ben,

Welcome to the group. I'm glad that for you the CF monster has been sleeping for much of the time.

It's easy to read some of what people with CF experience and to start to worry like crazy or get quite worked up and scared about your own health. When I was diagnosed (at birth) the doctors told my parents that since every case of CF is so different, don't let other people's stories alarm them to the point where they lose hope. That's a philosophy I have carried into my adulthood. (I'm 26, married for 3 years)

Certainly there is something to be said of being informed about CF, but I think a lot of it is on a "need to know" basis. If you aren't experiencing a particular problem, symptom, or complication, then don't waste your energy worrying about the day when you might have to deal with that issue.

Don't scare yourself, but do be proactive about maintaining health. You mentioned going to the gym--that's GREAT! I'm glad your doc put you on azithromycin too. If your doc a CF specialist?

I don't want to overwhelm you with information. Take life as it comes, and don't just assume that having CF precludes you from experiencing a great life. It certainly has its challenges; we've all had moments where we wish CF didn't seem to rule our lives and we've wanted to just be done with all of it.

No one can predict how CF is going to affect you--not even your doctors. You'll get to the point where it will frustrate the heck out of you to do everything "right" to take care of yourself and still have a nasty infection rob you of another season. Personally, I believe that a good attitude (and good self-care) goes a long way in making life worthwhile and helping you delay, to the greatest extent possible, the truly frightening stuff.

Fight long, fight hard. We're fighting with you and cheering you on at the same time.

-Lauren
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com">Breathing Deeply: My Life with CF</a>
 
L

lightNlife

New member
Hi Ben,

Welcome to the group. I'm glad that for you the CF monster has been sleeping for much of the time.

It's easy to read some of what people with CF experience and to start to worry like crazy or get quite worked up and scared about your own health. When I was diagnosed (at birth) the doctors told my parents that since every case of CF is so different, don't let other people's stories alarm them to the point where they lose hope. That's a philosophy I have carried into my adulthood. (I'm 26, married for 3 years)

Certainly there is something to be said of being informed about CF, but I think a lot of it is on a "need to know" basis. If you aren't experiencing a particular problem, symptom, or complication, then don't waste your energy worrying about the day when you might have to deal with that issue.

Don't scare yourself, but do be proactive about maintaining health. You mentioned going to the gym--that's GREAT! I'm glad your doc put you on azithromycin too. If your doc a CF specialist?

I don't want to overwhelm you with information. Take life as it comes, and don't just assume that having CF precludes you from experiencing a great life. It certainly has its challenges; we've all had moments where we wish CF didn't seem to rule our lives and we've wanted to just be done with all of it.

No one can predict how CF is going to affect you--not even your doctors. You'll get to the point where it will frustrate the heck out of you to do everything "right" to take care of yourself and still have a nasty infection rob you of another season. Personally, I believe that a good attitude (and good self-care) goes a long way in making life worthwhile and helping you delay, to the greatest extent possible, the truly frightening stuff.

Fight long, fight hard. We're fighting with you and cheering you on at the same time.

-Lauren
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com">Breathing Deeply: My Life with CF</a>
 
L

lightNlife

New member
Hi Ben,

Welcome to the group. I'm glad that for you the CF monster has been sleeping for much of the time.

It's easy to read some of what people with CF experience and to start to worry like crazy or get quite worked up and scared about your own health. When I was diagnosed (at birth) the doctors told my parents that since every case of CF is so different, don't let other people's stories alarm them to the point where they lose hope. That's a philosophy I have carried into my adulthood. (I'm 26, married for 3 years)

Certainly there is something to be said of being informed about CF, but I think a lot of it is on a "need to know" basis. If you aren't experiencing a particular problem, symptom, or complication, then don't waste your energy worrying about the day when you might have to deal with that issue.

Don't scare yourself, but do be proactive about maintaining health. You mentioned going to the gym--that's GREAT! I'm glad your doc put you on azithromycin too. If your doc a CF specialist?

I don't want to overwhelm you with information. Take life as it comes, and don't just assume that having CF precludes you from experiencing a great life. It certainly has its challenges; we've all had moments where we wish CF didn't seem to rule our lives and we've wanted to just be done with all of it.

No one can predict how CF is going to affect you--not even your doctors. You'll get to the point where it will frustrate the heck out of you to do everything "right" to take care of yourself and still have a nasty infection rob you of another season. Personally, I believe that a good attitude (and good self-care) goes a long way in making life worthwhile and helping you delay, to the greatest extent possible, the truly frightening stuff.

Fight long, fight hard. We're fighting with you and cheering you on at the same time.

-Lauren
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithCF.blogspot.com">Breathing Deeply: My Life with CF</a>
 
S

Scarlett81

New member
Welcome Ben! You'll find lots of useful info and support when you need it. Some will apply to you, some not-but as someone said, this place is addicitve.
 
S

Scarlett81

New member
Welcome Ben! You'll find lots of useful info and support when you need it. Some will apply to you, some not-but as someone said, this place is addicitve.
 
S

Scarlett81

New member
Welcome Ben! You'll find lots of useful info and support when you need it. Some will apply to you, some not-but as someone said, this place is addicitve.
 
C

catboogie

New member
welcome to the site...there is so much information here --lol-- sometimes it's even too much. <img src="i/expressions/face-icon-small-wink.gif" border="0">

take care
 
C

catboogie

New member
welcome to the site...there is so much information here --lol-- sometimes it's even too much. <img src="i/expressions/face-icon-small-wink.gif" border="0">

take care
 
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